Hello, my darlings!

I miss you guys.  I had been dealing with all sorts of stuff, and then went to Florida with some family and friends to get away for a while.  Now I'm back to dealing with junk.  As my luck would have it, the very first night in Florida, I slipped and fell into a shallow pool, tearing ligaments in my ankle.  So, I ended up in the ER in Florida. 

It's ok, though.  I wasn't going to let that ruin my (or anyone else's) time, so I rented a little scooter to get around on, and we still had lots of fun. 

I had the last few tests done for my stomach, and the surgeon is going to tell me on Thursday what my options are.  So far, I was told that they may keep my colon in tact, but they need to fix the hernia and prolapse.  They also need to do something with the muscle in there, but I don't exactly know what yet.   

Anyway, you will start seeing more of me in the next week.  I apologize to you all for not being around.  I'm hoping that things start to get better in the next week or two.  Once I get some answers, I'll feel a lot better.

I hope you are all doing well.  I think about you guys all the time.   

I'll end this post with a silly picture of me and a bird, in Florida, on my jazzy little scooter.   

Hi Danielle 

I am so happy to hear from you, i really missed you sooooooooooooooooo much . I am sorry to hear about your anckle, but at the same time i feel that you are much better than your previous posts. It was a really good idea to travel, i think you deserve to take a break and i know Florida would be a perfect place. Also i am happy about the good news of not having to take away the colon and i am sure that you will have better news  next Thursday. Please keep us updated, wish you all the best.

Manal
PS: I like the picture so much, you are so pretty

Hi Danielle!!

I am so glad to hear they think they might be able to keep the colon intact! Woohoo! I'm also very happy to hear that you had a good time in Florida, and didn't let your ankle bother you. You look GREAT in that "silly" picture, silly! ;)

Hi Danielle,
I was starting to wonder where u are,havent seen ur posts in along time!
Im glad your having a great time in Florida,it looks lovely!
sorry to hear about your ankle,but its great to see that didnt spoil your holiday.
Take care,best wishes.
P.S you look fab in the picture!

Hey Danielle,

U look wonderfull in that pic,sorry to hear about your ankle though,but you really are a high spirited person,whatever u go through u always keep your spirits high, you are an ispiration to us all.

Love Always,

ZAINI.

Hi, Danielle!
    We missed you so much! So glad you're doing good, safe and sound with your family and friends.  And that you still had a great time even though you had a bad fall. I do hope for the best  and wish you feel better already! Take Care! Be positive and everything will be alright!

Hi Danielle,

Great to have you back.

I wish you good news on Thursday. Sorry to hear about your ankle though; as if the things weren't tough already

I hope that you had fun in Florida. You look Great! and the bird looks cute as well.

Take care.

Danielle! So good to hear from you. I'm glad you have gotten some advice concerning your surgery that is a little easier to live with. You look great on your scooter with your red friend. I am so glad you went to Florida to relax after all the intense things you were dealing with. You're a fighter with lots of spirit! Take care, love, Jean

Hi Danielle!!  It is so great to hear from you - we missed you very much.  I just know that you are goig to be better soon!!  You look absolutely beautiful!!

Love,
Sharmin

hi danieele,
welcome back!  its reassuring to know that the regulars are still here, reading posts and responding.  its what makes this site one of a kind.  we may have never met but it feels like we are not strangers.
cheers vic

Yes, Vic 

Manal

Thanks, everyone!  I've missed you guys more than you know and I think about you all the time!  Don't worry, I didn't leave for good.  I promise.  I'll be coming back around more often.   

we may have never met but it feels like we are not strangers

I totally agree, Vic!   

  why me ? and i look and find others i have nothing to live for anymore i am killing my own son i new i had a chance of haveing a child with thal major but didnt ever think it will ever happend to me i said oh me no way i haer about others been sick but never imajined it would happen and how am i suppose to deal with it how will i ever forgive myself how when i know my son will suffer all his life why? becuse i wantted a boy thats all i ever wanted in my life and look whats happen i got a boy and a sick boy i feel so lost and confussed i want to help him but i cant what shall i do please help me his heart rate reaches 188 his blood comes down to 9 he is aways sick from infrections what is going to happen tpo him i wish i could give him my life and he will be ok if he needs a new heart i will give it to him i will give everything to him but there isnt anything i can give wich will help him thats what kills me more is knwing i cant do anything i am disablied looking at a innocent child wich i got to greedy in life and wannted and know we are both suffering

Aysam:
Thalassemia is no longer the death sentence that it once was.  Your son will need care, good care.  But if he is taken care of, he will lead a very normal, healthy life.  We are very fortunate to live in a day where there is much research devoted to Thalassemia.
We have adopted a daughter with Thal major and although we worry about her, we know that with proper treatment, she will be ok.
Hang in there.  Get him treatments.  It will be ok.

Hi Aysam,

You live in Australia and care for thals is actually quite good there. We have members from your area who are doing quite well, so please be assured your child will be in good hands as long as medical treatment is regular and sufficient. Smurfette is in your area and she does remarkably well. She is in her late 30's and has very low ferritin and leads a pretty normal life. She is a great example of what to expect if you have good treatment and comply with it.

Please do not feel guilty about having your child. It is time to be positive about his future. You can make a big difference in your child's life as long as you hold your head up and stay positive. We're here to offer strength and support and answers. Lean on us.