Hi Puja
Priya´s Hemo from India Is Dr. V.P. Choudhry.
He is retired Prof. and Head Deptt. of Hematology AIIMS. He was also President-Indian Society of Hematology & Transfusion Medicine and also Chairperson-Pediatric Hemato-oncology I.A.P.
His cell No. is
9811073904.
I hope he can advise you very well.
Let me tell you when i was in India in aug 07 Priya´s HB was dropped to 5.8 and i was really very scared. But Dr. V.P.Chaudhry was quite confident that Hydrea and Recormon will help her.
And that’s what happens. Thanks to GOD when we did her last CBC on 21 Oct. and her HB were 8.3.
I can really understand your situation, but Pls. don’t be dishearten, Have faith in GOD and Give one call to Dr. V.P.Choudhry & lets See what he has to say and you can also ask him about Spleenetomy.
And as far as wheatgrass is concern, I think natural juice will be more effective.
you can check following link.
http://www.thalassemiapatientsandfriends.com/index.php?topic=94.0Also you can check another link of Carao. You can go through it. I cant tell you much about this because I have just ordered it and I waiting for my shipment. Let’s hopes it will work.
http://www.thalassemiapatientsandfriends.com/index.php?topic=1259.0Recormon : It comes in prepaired syringe of 1000, 2000, 5000, 10000 UI. Priya is taking one injection of 5000 UI Weekly. I really don’t know much about its side effect. Yes I will definitely ask her Hemo.
L-carnitina : I have just came to know about it. I will ask Priya´s Hemo if we can strat giving L-carnitina.
Any other thing which i can help you, pls do write. it will be my pleasure.
Take care
Dimple