Hey Sammy whats up...red here
I appreciate your project..it's very noble of you especially as a friend of someone with thal to want to step up and speak out to the public. You have my many thanks!
As someone with thal myself, I find the biggest problem here (i'm from the U.S) to be lack of expression. You could call that awareness. What I mean is that, I strongly feel that a productive way to get thal issues circulating hopefully to the point of agknowledment by government funds and support, is to put thal out there in the MEDIA.
There are programs out there that do outreach, like T.A.G (thalassemia action group), and The Cooley's Anemia Foundation that I know of in the U.S..there are many more groups such as these all over the world. But in the U.S..there has not been media exposure.
I feel that if an informative commercial is broadcast, as they are on many other forms of illness, that people would actually say 'wow, this exists?' And then, who knows, hopefully it would make for more Blood Drives or individual donor action...or maybe even a celebrity to come out to the media about thal. I actually think that that would draw most attention. Maybe then, kids with thal or any other person effected by it, would be motivated moreso to speak up about there own story, as it is a very private matter to most. An outpour of circulating thal around the world