losing hope in my life

hey their im new to this web sit, i have thalasimia major im also 24 from london ! i jus read ur post and i can realate to wot ur goin through its not a nice thing !!! i stoped doin my treatment coz i was so deprest and now im diebetic becouse my body is iron overloaded !!!  im so depresed also im scared of the out come !!! who wants to die thats my worst fear at the mo i could have a heart attack at any time and im only 24   id like it if u got bak to me as where  da sme age i can relate to you ??

Hi mel :
hope that u will b fine n healthy .......... be brave man.... dont give give up ....... u know i was in comma like sitution a few yrs ago i was on bed i didnt walk i even didn't take the glass of water to my mouth my eye and senses were failed bcoze of high levels of iron and Sugar levels  i wasn't able to understand  the discussion............ but now i m back to the life again i do play cricket i do everyting i want to.......... so plz bro dont give up  and keep fighting to the illnes n will b the winner ....... winner of the life's game .........  dont lose ur courage and patience and u will b fine soon ................................... take care n keep us informing abt ur health   
                                                                              UMAIR

hi mel :

its a little abt me  :

Iron level  :   13509 ng

i m a hepatitas B patient
i have ulcer in my stomach
spleen removed       ( ithat was a big operation 32 stiches )
and i m a diabetic                                                                          Umair

sorry for the negativity guys. i am not normally like that.

i know we all have our problems.

Hello Mel and Welcome.
I think  that you made the right choice to post on this forum here you will find support and make friends that will strenghten you and maybe gives you  new perspective on your life.

Don't ever apologize for how you feel, you have the right to feel bad if is not good for you.


I must say it saddened me when I read this kind of post. Losing hope in ones life is very hard because ones feels that there is no place else to go and no nobody to turn  too.It can have dire consequence. I hope you dont give up while youve got life there is always hope.

We all feel down at times and we tend to forget about the good things that we have ,we tend to consentrate on our pain only and meanwhile the people around us suffer with us because the also feel helpless.
I think ,that you are feeling down because is not easy having a chronic illness and all the stuff e;g med, ect:
Its okay to take Medication to assist you to get back on your feet, what have you got to lose you are already feeling so low.
I suggest you do take the medication for a short while ,to assist you getting back on your feet, most of us has too if needed.
Please Mel take your strength from all the brave young people you have on this website they are very brave despite of there struggles   you are not alone, we are all here for moral support ,

I'm close to 54yrs old and I have been in pain for a long time I know how it feels like, but I don't want to give up I try hard for me and the people around me.

You are valuable and worthy, chin up, tomorrow its another day.

"One day at a time"

Please read all the post it will help you.
My name is Kathy I'm a friend and I'm here for you
with much love
Kathy

Well said! Kathy.

Hi Mel,..
yeah totally..i'de love to talk to you and be able to share stuff we relate to..

FOR SURE.......

well..let me say this first...its so funny that i saw this post back up here cuz i was like...."hhheeehh? i had wrote that so long ago!"
but infact..it feels like its been so long cuz i am totally away from that mentality now!
i feel like someone else right now..someone who can take care of that girl who had first written that post and tell her.."hey, listen..things will get better for you if you realize you are capable of taking the matters into your own hands"
that girl who wrote the post didnt realize that at the time..she felt like alllll these mattresses were upon her, and there was no way out except for them to be pushed off by other people.
well the more she waited for the mattresses to get pushed off, the more she was just lying there under them..helpless..untill she felt like she couldnt breathe..untill she felt the complete utter darnkess that she was under..untill she felt this massive clautrophobia...
(SORRRY FOR ALL THE WIERD VISUAL REFRENCES HAHAHA)
but one day ..as she was lying under the mattresses..she said to herself.."you know what..its been a few months now (it had actually been 3 years)...and uuummm..yeah...noone is taking these mattresses off me...and i'm getting pretty tired of myself being so whiny and useless, so i think i'm gonna try taking these mattresses off myself!"
and thats when i slowly started to change!!
each "mattress" was a task that i hadnt accomplished that i knew i needed too in order to be able to look in the mirror and say.."there you go..now there is a tough strong character who is freakin AWSOME!!"
hahahah
not to sound egotistical..but i kinda am now..and you know what..its a good feeling.
ahhaha
so yeah..basically what i'm tryin to say is..i accomplished what i wanted to accomplish and what i KNEW i needed to accomplish one step at a time..at my own time (BUT NO LOLLYGAGGING WAS IN ORDER!) hahahahah
and slowly but surely...i got myself to a point where i knew i COULD be and where i WANTED to be..being able to take care of my own stuff and my own self!
At our age Mel..i think we have been through our fair share of s@*% (excuse my language)..and so for that fact..we can say that we know a bit about ourselves right..
i always say..you have to go through s@*& to get through s&*%!
People like us can face anything we want..anyone can, ..you just have to want it bad enough, and be able to say to yourself WITH YOUR HEART (not to sound cheesy but its true)...that..life is an adventure..its so much more fun to go through your adventures and see what they are all about!! then to lye there under all those freakin mattresses!

i hope that helped a bit!
but if not..just let me know what i missed and i'll talk to you about ..
but just know..that i'm totally rooting for you , even tho i have no clue who you are.
but just the fact that i know you have soldiered up this far..
i know you are tough enough to face you own challenges!
DONT EVER FORGET THAT!

 

ZAINI.

Hi Everyone,
being a thal major myself, i know what it feels like and we all have good days and bad days. Its important to share this with everyone. Today is one of my good days so i am here for everyone!!!!
chin up folks, you will be there for me on my bad days.

Sure we will be  but i wish you all the good days 

ZAINI.

 

Thanks Zaini, You know I have never met you guys face to face but feel that you're family...but then we all are one big family.

Hi everyone


 Im a Thal major too  and ive been done that path many times too

especialy when close friends (thal) pass away i get realy sad
  sometimes i feel real tired and i dont mean body i mean emotionaly tired   , i just get fed up having to fight to live
test more tests....  transfusion....splenectomy...... desferal...now exjade and so on and so on....  i just get real sad sometimes
and i feel that i cant talk to my mom although she realy suportive just that i know that i would hurt her feelings.... because to be honest the only reason im still fighting is for my fam....   i dont want them to hurt if anything had to happen to me
 u see im not scared of death because i feel that it will be a releif for me...so much pain in my 32 yrs of life..... sometimes i feel sad and other times i feel strong like a hero..i dont know why i feel down and i hate it when i do :/

anyone feel like that or is it only me?

Your feelings are very common among thals, Nina and it's a big reason why this group continues. I hope others can offer some encouragment for you, as they experience the same emotions. Lisa did too at times.

Dear Nina,

I can understand your feelings, and survival is more of a struggle for you than it is for other people - and somedays must be very difficult.  However, I hope that you remember survival in many ways is a struggle for all of us - yet your time on this earth - apart from your identity as a member of your family - is very important and your well being is needed just for you being who you are. 

People suffer many ailments, whether it be diabetes, asthma, epilepsy etc etc. yet there is a need for us all here - and our lives are worth the struggle. 

Sending you my best,

Sharmin