I am shocked. Ashish was the first Thal(Major) whose story I read (on his thal website) and got comfort from his posts and feelign that - "Yes, Thals can live" (Note: - I had no idea what Thalassemia meant when I was reading his post and I had got some words like Thals only live in their teens). This is the same story Andy has posted in this post. Those posts made me think completely positive and I started following his posts and infact I had him as a hero in my thoughts. I did try to get in touch with him while I visited India, but somehow could not meet him. What he and Lisa have changed is: - They made the thal’s come closer (through the Internet) and understand that Life does NOT stop with their thal and that thals can fight it out with will and determination and enjoy life.
Thals, who are/were in their 30s did NOT get the treatment what today's newborns or toddlers are getting. They were left to the mercy of their doctor's trying to figure out what it is and mind you these are/were thals in countries where NOT much medical advancement was done (in 1970's and 1980's). Not only, did these thals guide the younger thals but they also got themselves Experimented (I really did NOT want to use this word but that is the reality) and I think today’s thals should be grateful for what Ashish has done for the thals around the world. Awareness was close to none, when they were born and Iron Chelation was Unknown. Desferal was unheard. Kelfer came in later and as Andy has mentioned Ashish was a Kelfer user since a long time
I also think the parents of Ashish were a huge impact on his life and I salute them. Always being asides with Ashish. Hats off to them and Ashish.
I know his soul will rest in peace as he has done what he could and what he leaves behind is a legacy, which as Andy has mentioned needs to be taken forward.