1st update on Biological treatment

Hi Manal.

How are you & How our little Ahmad is doing with his new treatment? What are the further devlopments ? Can you pls. update us .

With Lots of Love and Best wishes for you and Ahmad.

Take Care
Dimple

Thanks Dimple

I was supposed to make the CBC last week but actually Ahmad had a viral infection and had fever for two days which i am sure will affect the CBC to a great extent , so i will  postpone it for a week until his body is clear from this infection.
 I wished so muich that in the first three months of the treatment he won't catch anything so i can objectivly evaluate the treatment , but as you know we can not control those viral infection

Anyway, i will keep you updated as soon as i know anything but what i can say is that he looks pale though he is still active even in the fever time

Manal

Hi Manal

I am really sorry to know that Ahmad had god viral infection and as you said, these viral infections always effect to the blood count. I wish he get well soon and hope the best with this treatment.

With lots of Love for you and Ahmad.

Dimple

Hi Manal,

Hope Ahmad gets well soon

Thanks dimple and Hope, i will do the CBC on Saturday

Manal

Good luck for the CBC dear   

ZAINI.

Our prayers are with you!

Manal,
Its good news for you so far. I am really happy for you. My only concern is based on my own feelings. When my hb drops under 10 I find it very difficult to concentrate and do stuff. With an even lower hb i have been told that it can cause bone deformation as well.

just wanted to point that out to you based on my won feelings.
all the best
Roanna

Thanks Zaini and Sajid

Roanna, You are right in what you are saying. But till now and thanks God for that there is no bone deformation, only the bone age is younger by 1.5 years than my son's actual age and the doctors told me that this is accepted in chronic diseases. As for development, my son is still in the normal range for his age. The doctors are telling me that it seems that his body adapted with the decrease of Hb.

But since what you mentioned is a fact and if it is not happening to me now, i am sure it will be in the coming years ( onset of puberty ), i am trying to make every possible thing to try to increase his HB as much as i can

Thanks a lot for your concern

Manal

Hi

As you all know, i was supposed to do the second CBC after the treatment on the 20th of February and i did it. The results were terrible because i found out that after taking the blood sample for the CBC , Ahmad started a fever for two days and later cough and running nose started after the fever until now.
The results were:
HB------- 5.8
MCV----- 58
MCH----- 20
Bilirubin------ 3 ( the highest he ever reached)
Ret. count---- 6%
The differential count showed lymphocytosis

I was really shocked and took all the results to the doctor who is responsible for this treatment. he told me that infections in general whether viral or bacterial will hinder the progress a little bit as well as any trauma that a body would expierence like accidents, bleeding,...

When i told him that this is hard to deal with as infections at school age is so common and it is impossible to prevent them, and i don't want to end up building in one place and then having just a simple infection destroying everything for me.

He said that even normal persons have there HB affected when they have colds and same applies to Ahmad. He added that the benefit here is that he will re-gain his Hb back quicker than he used to as he is giving him the ready made cells so it will be more easy for the body to increase once more in a short time. So he asked me to do another CBC after 10 days.

TODAY, i did the CBC and the results were:

HB ------ 6.9
MCV ---- 56.9
MCH ------19.7
Ret. count -------6.6%
Bilirubin------------ 2.3
In the differential count , there were something called Normoblasts 9/100 WBCs ( this is the first time this appears in the CBC )


So what i can see is that we reached the same end as the last month and thank God that he increased.
From tomorrow the doctors is going to increase the concentration of the shots to give him a jump start after this infection, actually it is still there. It will be given IV for 30 minutes instead of a shot because of the higher concentration and i hope it will go smoothly with Ahmad, i will be in need for your prayers.


One more thing the doctor mentioned today is that he will be taking a blood sample from Ahmad to make a special ''medicne '' for him ( custom made specially for his plazma and will be done in germany) that will boost his immune system a little bit more.  He explained that though thal has nothing   to do with the immune system or the formation of white blood cells but all the system of the body get used to work or function at its lower capacity, same as what is happening in the formation of the red blood cells. I really can not explain what he told me,but he said that this will help him to strengthen his immunity in general.  This medicne could be formed in the form of shots but under the skin or as drops but the shots are more effective.

That is all for the moment and will be waiting for your feedback

Manal

Hi Manal
Since his hb came back to what it was within 10days I suppose this treatment has started to work. My prayers are with you and Ahmed
With lots of love
MAHA

Hi Manal

Its good that Ahmad has come back to his blood count. I wish with increased concentration of shots and boosting his immune system will helps him a lot.
My prayers are always with you and Ahemad.

With best wishes and Love

Dimple

Hi Manal,

I am relieved to hear that Ahmad's hg has increased over the 10 days.  I wish him continued success with this therapy - I hope that you see a continual and significant increase in his hg. 

Take care,
Sharmin

Manal,
I continue to pray as well. I remember when i was younger, everytime I got transfusion I would get the cold. This used to break down my blood faster as my hb levels were always lower than those months I was luck enough to be spared.

You do have some positives there though as his blood level actually went up!

Best wishes
Roanna

Thank you so much my friends for your wishes

Manal