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1st update on Biological treatment

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Offline Manal

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Re: 1st update on Biological treatment
« Reply #45 on: May 27, 2008, 11:15:41 PM »
Kathleen, where have you been, it has been a long time since you posted but i am happy you did and i am happy too that little Olivia is doing well :hugfriend

Ahmad was on hydra from May 2007 till November 2007 and we stopped it as we are on other treatment ''as explained above''  and if it didn't work, we will go back to the hydrea again. when we started the hydrea, the hematologist gave us 4 ml at the beginning but after two days i found that Ahmad couldn't tolerate the dosage as it make him dizzy and had stomache aches. She reduced the dose to 3 ml ( 20mg/kilogram ) and it was okay for him. Starting the fourth month from taking hydrea, he showed some increase in hb and he reached 7.4. I don't know if he would continue rising if we proceeded or not as the doctor had told that o one can judge before 9 months at least.

manal
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Offline olivia mary

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Re: 1st update on Biological treatment
« Reply #46 on: May 30, 2008, 12:59:21 AM »
Hi everyone......

Today Olivia had har appointment and her hb was a 7.2 and after discussing the last few visits with her dr we decided to transfuse her today.  She was so brave. We will have her next appt. in 2 weeks to see her hb is. I will let you what happens.

Love Kathleen
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Offline §ãJ¡Ð ساجد

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Re: 1st update on Biological treatment
« Reply #47 on: May 30, 2008, 05:04:24 AM »
Oh dear...

I hope this was the last Transfusion that she will ever get. Amen. :pray
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Offline sah

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Re: 1st update on Biological treatment
« Reply #48 on: June 06, 2008, 11:51:46 AM »
Hello Manal,
How is Ahmed?Please update us on his next CBC.
With good regards and best wishes - Sah. :flowers
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Offline Manal

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Re: 1st update on Biological treatment
« Reply #49 on: June 07, 2008, 12:05:39 AM »
Thanks Sah for your concern.  :hugfriend :hugfriend

On May 28th we did him the amino acid and heavy metals blood test as his doctor thinks that it might help in this biological treatment. The blood needed for these tests where huge , they withdrew 35 ml ( minimum quantity required ) which is really a big amount and the doctor didn't withdrew them except when he made sure that Ahmad drank a liter and half of fresh juice before the withdrawl ( it was really difficult to convience him to drink all this amount ) He said that without a lot of liquids full of nutrition it could be really dangerous as it may lead to a coma!!!!

Any way it went well, million thanks to God and i will get the result by the mid of June. This test is done in Germany as we don't do it here in Egypt.

So i will postpone the CBC a little bit for a while as i don't want to draw any more blood right now.

Take care
manal 
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Offline §ãJ¡Ð ساجد

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Re: 1st update on Biological treatment
« Reply #50 on: June 07, 2008, 03:41:45 AM »
Oh dear....

:scared

Reading what the little soldier is going through is giving ME the shivers.

I hope he gets well soon.

Manal give lots of love to your son on my behalf :hugfriend

:pray
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Offline maha

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Re: 1st update on Biological treatment
« Reply #51 on: June 07, 2008, 06:02:56 AM »
Hi Manal
This is really frightening. Hope that Ahmad`s hb improves soon and all the tough situations you have been through are well rewarded.
Take care
Maha
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Offline Sharmin

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Re: 1st update on Biological treatment
« Reply #52 on: June 07, 2008, 08:34:28 AM »
Manal,

I hope for the the best for our little Ahmad - I hope his hg improves very soon.

love,
Sharmin
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Offline Manal

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Re: 1st update on Biological treatment
« Reply #53 on: June 07, 2008, 11:31:27 AM »
Thank you so much my friends for your wishes and concern :grouphug

manal
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Offline Zaini

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Re: 1st update on Biological treatment
« Reply #54 on: June 08, 2008, 10:42:34 AM »
It's really hard even to see 5 ml blood being drawn from ur kid's body,it's kinda physical pain for me atleast,i hope everything turns out fine for ahmed.

Good luck.

ZAINI.
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Offline Manal

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Re: 1st update on Biological treatment
« Reply #55 on: June 08, 2008, 10:59:35 PM »
Yes Zaini you are right , thanks dear for your wishes

manal
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Offline sah

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Re: 1st update on Biological treatment
« Reply #56 on: August 16, 2008, 12:28:42 PM »
Hi Manal,
How is Ahmed doing?What is his latest cbc report?Hope everything is fine.
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Offline Manal

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Re: 1st update on Biological treatment
« Reply #57 on: August 16, 2008, 09:57:33 PM »
Hi Sah

Thanks for your concern, actually now we are on our summer vaction and will be doing the cbc on the 1st of September. Gernerally he looks good, maybe the good weather of the north coast where there is no pollution helps. Also my mum feeds him well which is not our normal trend :rotfl :rotfl :rotfl Can't tell about the bilirubin as he has been ''roasted'' by the sun as he stays at the sea until sunset.

 Sometimes his lips are so pink and other times his lips are so pale don't know why is that , maybe this is related to the activity level :huh

manal
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Kathy11

Re: 1st update on Biological treatment
« Reply #58 on: August 16, 2008, 11:35:20 PM »
Hi Manal.

Have a nice vacations with your family :hugfriend :hugfriend :hugfriend :hugfriend

I'm so happy for Ahmed I don't blame him for enyoying the seaside, good on him.
Take care

Kathy
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Offline sah

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Re: 1st update on Biological treatment
« Reply #59 on: August 17, 2008, 02:12:01 AM »
Thanks Manal for such a swift reply.Enjoy your vacations and take care.
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