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The heart in transfusion dependent homozygous thalassaemia today

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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #15 on: February 05, 2008, 11:37:58 AM »
Thanx a lot,

Kathy,Sajid,Manal,Canadian Family and Hope

Your kind words made my day,thanx a lot for being there for me,we will be checking zainub's ferritin with her next transfusion, i hope there would be a positive change we'll see.

LOVE ALWAYS,

ZAINI.
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #16 on: February 16, 2008, 06:50:06 AM »
Hi Everyone, :grouphug

We went for Zainab's transfusion today as per schedule,after three weeks,last time when we went for transfusion after the same duration,her hb was 10.5, and today they sent us back  :yahoo :yahoo :yahoo her hb was 11.7,can you believe it.I AM SO DAMN HAPPY.i don't know  how it happened,but isn't it a great difference? do any of you can think of a reason for that, my husband was like ,noway, there must be some mistake ,but then we reconfirmed at the lab and they said her hb is 11.7, Now dr told me to come next week but iam thinking that i'll get her hb checked before going for transfusion,may be her hb will last till ten for two more weeks,i can only hope and i am praying for it.Moreover i am waiting for her ferritin results,and i hope it will be as good as her hb.

LOVE YOU ALL  :grouphug

ZAINI.
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Offline Sharmin

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #17 on: February 16, 2008, 07:04:14 AM »
This is wonderful Zaini!  I hope you always receive results that make you celebrate. 
Rejoice - be happy - we should celebrate every positive news along the way - one less transfusion - less iron!

Love,
Sharmin
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Offline §ãJ¡Ð ساجد

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #18 on: February 16, 2008, 08:05:45 AM »
Hi Zaini,

That's a great news! :stars

I get excited too when they postpone my Transfusion. You get the idea how I felt in December when I was sent back twice and that too when there was no blood left to be transfused. That was a miracle that I will never forget.

So, this means that you are getting a good treatment and blood that is lasting long.

Best wishes.
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Kathy11

Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #19 on: February 16, 2008, 09:30:36 AM »
Good news Zaini.
Maybe zenab will be like me  as she grows older she  will be able to produce more  mature red cells /
Keep fingers cross ,  god is great. I'm happy for my little friend :bighug :bighug :bighug
from aunty Kathy to Zenab  and my best wishes to you. :cheer :cheer
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Offline Manal

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #20 on: February 16, 2008, 12:54:10 PM »
Alhamdull lah Zaini, i am soooo happy to hear those wonderful news

Keep it up

Manal

 :yahoo :yahoo :yahoo :yahoo :yahoo :clap :clap :yahoo :cheer :cheer :yay :yay
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #21 on: February 16, 2008, 06:05:13 PM »
Thanx all of you,

As i said before,it's a pleasure sharing anything with you,i hope it will last atleast for two more weeks :) anyways i got her ferritin result also and it's 1549, last checked it was 1871,so not much declline in numbers, but still at least a lil bit reduced ALHUMDULILLAH.

ZAINI.
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Offline Andy Battaglia

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #22 on: February 16, 2008, 06:13:46 PM »
Zaini,

It is very positive news and I believe it shows that the things you are doing are having some success. Keep up the supplements and let us know how she does in future checkups.
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #23 on: February 16, 2008, 06:21:01 PM »
Thanx Andy  :hugfriend

ZAINI.
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Offline priya

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #24 on: February 17, 2008, 04:59:10 AM »
Hi Zaini

I am really very happy for Zenab. :congrats

With best wishes & lots of Love for Zenab.

Dimple
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Offline maha

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #25 on: February 17, 2008, 05:29:48 AM »
Hi Zaini
I did not know Zainab was having problems with her hb :what. Alls well thats ends well. I am really happy to know whatever problem she had, it has passed.Keep up the good work.
with warm regards
MAHA
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #26 on: February 17, 2008, 07:28:14 AM »
Hi Dimple,

Thanx a lot  :hugfriend lots of hugs and kisses for Priya.

Hi Maha,

There was not much problem,just a few points variation is her pre transfusion hb,though Andy told me it's nothing of great concern,the thing that made me happy is that she didn't have to transfuse this month,and as you know one less transfusion means less iron,thanx for your concern  :hugfriend,I hope hassan is doing well.

ZAINI.
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Offline Hope

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #27 on: February 17, 2008, 09:05:08 PM »
 :cheer :cheer :cheer

Hoorray..I am soo happy for you and dear Zainab...Please share your secrets....whatever you are doing is working.... :yahoo
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #28 on: February 18, 2008, 11:16:47 AM »
Hi, :biggrin :biggrin

There are no secrets dear,i think it was pure luck,or may be our prayers.

ZAINI.
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Offline Zaini

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Re: The heart in transfusion dependent homozygous thalassaemia today
« Reply #29 on: February 26, 2008, 12:27:37 PM »
Hi,

As i last posted on feb 16 about how we were sent back from hospital on the date of transfusion as Zainab's hb was 11.7,it was 15 feb when her hb test was done,and after a few days on 21st feb i went to a physician near my place,he has that compact machine on which he can run some tests and give you the results immediately,i asked him about the accuracy of the results on that machine and he said that other then the points variation which comes in different labs reports,the results of this machine are pretty accurate,i asked him to check Zainab'z hb ,he pinched Zainab's finger with some small device and took a very small amount of blood in a capillarie (spelling??) and placed a drop of blood on a strip and slid it into that machine,the reading came with in a minute and it startled me,her hb was 11.8.

I know i should be happy that her transfusion was delayed for one more week,but that's freaking me out somehow,i am happy and worried at the same time,how's that possible that after 5 or 6 days her hb was same? no dropping? not even a point?

Waiting for your comments.

ZAINI.
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