fertillity plz help me

hi im new to this site but found it very usefull i wanted some info i have thalassaemia major married and 29 year old i want to start a  family now i not had periods for 3 years now an wanted to know what fertillity treatmenys would i need has anyone had this problem any info would be great thanks

Hi Pinks and welcome,

I will try to get one of the thal major moms to respond to your post.

thanks that wold be great

Hi pink,
you may need to go on the fertility induction programme,what country are you in?

hi
thanks so much for replying im in uk, leicester, whats that

Hi Pinks,

Please contact The Leicester Fertility Centre Assisted Conception Unit.

Contact information

The Leicester Fertility Centre
Assisted Conception Unit
Kensington Building
Leicester Royal Infirmary
Infirmary Square
Leicester
LE1 5WW

E-mail: enquiries@leicesterfertilitycentre.org.uk

Website: www.leicesterfertilitycentre.org.uk
Assisted Conception Unit
Monday, Wednesday and Friday 07.30-17.30
Tuesday, Thursday 08.30-17.30
Tel 0116 2585922
Fax.0116 2587688

 For more information about fertility and thalassemic women, please contact

Fertility and Pregnancy in Thalassemia Major

SUSAN M. TUCK

Royal Free Hospital, London, United Kingdom

Address for correspondence: Susan M. Tuck, Royal Free Hospital, Pond St., Hampstead, London NW3 2QG, UK. Voice: 44-20-7794-0500, ext. 3184. Susan.Tuck@royalfree.nhs.uk

Over the last 15 years, 22 women with thalassemia major have completed 29 pregnancies at the Royal Hospital in London. The major pre-pregnancy issues, medications, and pregnancy care are reviewed. Experience suggests that, with proper care and guidance, pregnancies among women with thalassemia major are practical and can have successful outcomes.

Hi Pink,
I have lived in the uk myself and know in London there is a great hospital and they are great with fertility stuff its UCH in london,also the fertility induction programme is where you have hormone injections to get pregnant,thats usually if you have thal major and your partner does not,its quite complicated to explain and dont know if im explaining properly.You go through cycles so treatment 1 is cycle 1 and for 10 days per cycle you are given injections to increase your eggs to concieve.
someone else may be able to explain better.

hi sydneygirl
Thank you so much i understand what your saying yeh i have thal major and my husband has nothings, i will tell my doctors in leicester to refer me to the uch hospital in london and see what thay can do for me thanks a lot for that

Hi Pinks,

Did you see the earlier post I did about the fertility center in Leicester?  http://www.thalassemiapatientsandfriends.com/index.php?topic=1625.msg13581#msg13581

in line with the post..
im 19 years old with beta thal major and i stopped menstruating for about 3 years now. does this usually happen to thal patients or should i be worried, i mean beyond the usual 'worry level'?? what should i do about it?

Hi Kaye,

What is your ferritin level. Interruption of the hormonal system is usually related to iron in the glands.

my ferritin level is really high, last time i checked it was at 9000. so i guess that is my problem. aside from lowering the ferritin, is there anything else i should do about it? tnx!

Hello Kaye,

Your ferritin level is very very high  what are you using for chelation? Please lower it down,you CAN do it,our member Umair also had very high ferritin levels,i think they were around 9000 once (umair correct me if i am wrong) but now with strict compliance to chelation he is below 3000.So i know with religious compliance with chelation you can do it,or that much iron can damage your organs.
What chelator are you using? Combination therapy of L1 and desferal is considered the best option for people with that much iron.do tell us about the chelator you are using and believe in your self that you can do it.

Zaini.

I would also highly recommend the use of antioxidants to help protect your organs and glands from iron damage. You need to work hard to lower your ferritin. You are at an age where problems will soon develop unless you make the decision to turn things around. We can give you plenty of advice, but you have to make a real commitment to chelation.

my ferritin level is really high, last time i checked it was at 9000. so i guess that is my problem. aside from lowering the ferritin, is there anything else i should do about it? tnx!

What chelation drug you are using and how frequent and in what doses. Please keep in contact with the group and keep us posted. You will get a lot of help and advice on this forum.