Hi Zaini,
Yea, i do feel really weak in my last week before transfusion. Climbing the stairs is enough to get me breathless. Also, my mood also gets affected quite badly. I'll be more temperamental, impatient and easily frustrated.
I find myself sleeping a lot before transfusion. I just seem to feel sleepier than usual. I guess it's my body's way of conserving energy hah.
Well, i always find that eating healthily as well as getting enough rest is crucial during this week. This is the time when my immune is also affected, thus leaving me more vulnerable to catching colds and stuff.
Yea, i know how mums feel. Sometimes when i see my mum looking at me, i can feel her pain. it's like she'd gladly trade places for me. And i always try to downplay my physical pain so as not to worry her. One thing that breaks my heart is that my mum blames herself for my thal tho. i keep telling her like it's not her fault, my life is not that bad, i have lots of blessings...... if only she'd stop blaming herself.
I tell my mum that God gave me thal becos He knows i am strong enough to endure it. Whenever i tell my friends about my transfusion, they go like "gosh, if i were in your place, i'd have killed myself a long time ago. i dunno how you do it". and they have not heard about the desferal injections!!
so you see, luckily it's me and not them huh
Take care, and God Bless to you and your girl
