especialy to Andy question abt chelation

  • 317 Replies
  • 265549 Views
*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #105 on: April 28, 2009, 09:39:12 PM »
Hi Andy ,
Than for encouragement and support throughout the year , i m reallly thankful of you to the bottom of my heart ...  :heartpink :heartpink :heartpink :thankyou2
===================

Hi Khalifa ,
Thanx for the advice buddy ,.. yeah, i m really a lover of all these drinks ( TEa, Coffee  & Green Tea  :coffee :laughspit :coffee ) , i love to drink these drinks and i drunk ( not that one form of drunk eg drunk fine $100 :teehee )  almost 3-4 cups of tea a day ... coffee , ocassionally just for style, you kow :grin  .... thanx for seprating time to reply and encourage me ... i hope and pray that ABDUL-WAHAB  is doing fine and not flirting to nurses at Dr.Lucarali's Hospital ( as you mentioned once ) .. keep an eye on him  hahahaha just kidding :teehee :happydance   :rotfl :rotfl ...
wish you and ABDUL-WAHAB ALL the Best of luck and health and everything ...
=============

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #106 on: April 28, 2009, 09:45:31 PM »
Hey buddies,
i m planing to upload my new pics , bcoze all my relaties are saying i m looking cool and super heatlhy  , and i saw yes complexion got fair enough ,,,, sooo , i will upload one here and an album at my msn live space , but only 1 condition , you people have to comment on that , done na ??. ..

Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline maha

  • ****
  • 424
  • Gender: Female
Re: especialy to Andy question abt chelation
« Reply #107 on: April 29, 2009, 03:53:55 AM »
Hi Umair
 :yaaaaaay :congrats. From 13000 to 1300 in one year. Maybe a 130 in less than a year now. May Allah reward your perseverance and patience.
take care
maha

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: especialy to Andy question abt chelation
« Reply #108 on: April 29, 2009, 07:40:44 AM »
Umair,

Thats the determination every thal needs to live a great life,I am sure in a few months we will hear the same good news from one other member of this forum,and i am waiting for the news.

Congrats Umair,and keep it up. :hugfriend

Zaini.
^*^Xaini^*^

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #109 on: April 29, 2009, 08:15:33 AM »
Maha & Zaini SISs :
Than you for the wishes and encouragement . its bcoze of your support and encouragment that i m here on this stage and the advice and then follow uup to make sure that i have started IV or not a bigl thanx to you all .... By the grace of ALLAH (GOD) that IV sessions worked alot for me and covered lots of iron ....
Zaini who is that member ??? ... may i know ?? ... i mean is he Jatin you're talking abt ??.. or anyone else ?? ..asking this just to know ... Thanx Alot Maha Sis for a super wish that i m desiring for to happen ( 130ng S.Fe ) .... hoping, praying and wishing the better health and succesful life for your kidZ  as well ( alot better Health & Succssive life than mine ) ....

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Lena

  • *****
  • 581
  • Gender: Female
Re: especialy to Andy question abt chelation
« Reply #110 on: April 29, 2009, 09:28:56 AM »
What can I say, Umair?
Am I right or am I right? In one year's time we'll start searching iron pills for you!!!
Keep up with the good work!!!

Lena.

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #111 on: April 29, 2009, 10:32:28 AM »
Hi Lena ,
yeah, you're right , i will need Iron pils really soon ( INSHA-ALLAH ) So please speed-up the search you've only a month left to search iron please ( i hope and wish ) .. otherwise i wil have to get an extra Tx to keep safe my-self  from Iron Defiency :teehee ...  :rotfl

Thanx alot for alerting earlier, and to advice to have an eye on iron pillz for any new sitaution ...  Keep praying for me ... n you people are always in my prayerz ./...

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #112 on: April 29, 2009, 01:10:51 PM »
My Treatment Plan on :
http://www.thalassemiapatientsandfriends.com/index.php?topic=1689.msg26441#msg26441

After That :

Hi ALL ,
here's my Treatment Plan Update's ..
As you people know that my S.FE level in January's Report was 2330ng ... After that my Haemo prescripted me Vit-C , the same dose of Desferal, i was on ...
then if you remember ( Especially Andy) i was having trouble as i suffered with Swollen feet condition and you and Moderators sugested me to start
IV Desferal as it was the sign/symptom Congestive Heart Failure (bcoze of Iron overloadat heart ) ... then i did 63 hours non-stop IV (for one time only)
4 vials a day and then back on Pump ... and then in start of February i had stomach ache and then in the end of February i had Malaria Fever and then
 break to chelation  from 25-Feb to 05-March during this 3-4 extra Transfussions and then back on chelation with pump with 4 vials of desferal a day (24hours)
till march 18th .... and then my S.Fe come's to 2060ng ....
========
after all that i visited my haemo and my haemo pprescripted me 4 vials ( i increased my dose from 3 to 4 vial according to my own plan (at the time, when my haemo prescripted me 3 vials a day ) ... and then she prescripted 4 vials a day i said to her " Ma'am i have tried this dose and its safe , if you wana increase then turn  me on 5 " she said it could be toxic so play safe  ....... bfore that i had tried 5 vials once  .. soo i turned on 5 and it was my decission and it was according to 60-65mg/kg dose ( as i weigh  41kg at that time .).. i transfused 2 times from 18-march to 6-april and during this time no chelation at home ,..   after visitng my haemo i restarted chelation and turned on to 5vials a day dose , and first i started another IV desferal session for 24/6 but only for once and with 5vials a day.... after that i came back on pump again and  4-6 days out of 12 days between 2 Transfussions chelation plan and  was on this till  22-april ( 2 days bfore S.Fe Tests).....

Note : i m on 4-6 days out of 12 days between 2 Transfussions results to get decreased iron on good rate , since 03-january ..... only difference is  IV Sessions and increased dose of desferal  ...

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: especialy to Andy question abt chelation
« Reply #113 on: April 29, 2009, 03:18:03 PM »
Umair,

Good luck with the plan, you are already doing a wonderful job, and i am sure that everything will just go the way you want.

Umair, where are the photos, so excited to see them :wink

manal

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #114 on: April 29, 2009, 03:36:07 PM »
Manal Sis,
Thanx again for the wishes and ..... hummmmmm...... a lil wait for Pics i will copy them on Pc tonight ,....  :grin ...

Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline SF

  • ***
  • 107
  • Gender: Female
Re: especialy to Andy question abt chelation
« Reply #115 on: April 30, 2009, 07:53:41 AM »
Great work, Umair! I'm so proud of you! You've proved that with great dedication and hard work, anyone can bring their ferritin down to normal range (for thals). You're such an inspiration for myself and other thals! I always look up to you when it comes to Iron Chelation and fighting the iron overlaod!

 :cheer :stars :love :congrats :yay :yaaaaaay :yay :congrats :love :stars :cheer

Best Regards,
SF

*

Offline SF

  • ***
  • 107
  • Gender: Female
Re: especialy to Andy question abt chelation
« Reply #116 on: April 30, 2009, 07:57:06 AM »
Looking forward to seeing your latest picture, soon, insha-Allah!!

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #117 on: April 30, 2009, 01:38:47 PM »
Hi SF ,
Thanxx alot for the comment/reply/compliment ... Thank you for considering me as an inspiration and for encouraging my efforts to bring Fe Down to this level. i always need encouragement to you and all other members as well. ... :thankyou2 and Best of Luck for Chelation to you as well ...
====================
Dear ALL Members and Friendz,
ANOUNCEMETN :
Ahum..... Ahummm ......... Attention Please ...
Pic Has been posted there in gallery and its just a lil and half pic, i will upload a complete album on my MSN Space very soon INSHA-ALLAH, soo people who are in my list keep visitng my Space which is not created yet but will be created soon INSH-ALLAH .... please dont forget to leave comment okiey ...
====================
Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: especialy to Andy question abt chelation
« Reply #118 on: April 30, 2009, 02:16:02 PM »
Umair,

You look great  :wink Determination is shining in your face  :biggrin.

Zaini.
^*^Xaini^*^

*

Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: especialy to Andy question abt chelation
« Reply #119 on: April 30, 2009, 02:45:27 PM »
Zain Sis,
Thanx alot Sis,  :biggrin  :shy :cloud9 :thankyou :thankyou2

Best Regards
Umair

Edited : if i failed to get 21 commetns within 21 days , then i will start thinking....... you know i will start thinking wat   :rotfl :grin
« Last Edit: April 30, 2009, 03:21:56 PM by nice friend »
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

 

SMF spam blocked by CleanTalk