My Treatment Plan on :
http://www.thalassemiapatientsandfriends.com/index.php?topic=1689.msg26441#msg26441After That :
Hi ALL ,
here's my Treatment Plan Update's ..
As you people know that my S.FE level in January's Report was 2330ng ... After that my Haemo prescripted me Vit-C , the same dose of Desferal, i was on ...
then if you remember ( Especially Andy) i was having trouble as i suffered with Swollen feet condition and you and Moderators sugested me to start
IV Desferal as it was the sign/symptom Congestive Heart Failure (bcoze of Iron overloadat heart ) ... then i did 63 hours non-stop IV (for one time only)
4 vials a day and then back on Pump ... and then in start of February i had stomach ache and then in the end of February i had Malaria Fever and then
break to chelation from 25-Feb to 05-March during this 3-4 extra Transfussions and then back on chelation with pump with 4 vials of desferal a day (24hours)
till march 18th .... and then my S.Fe come's to 2060ng ....
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after all that i visited my haemo and my haemo pprescripted me 4 vials ( i increased my dose from 3 to 4 vial according to my own plan (at the time, when my haemo prescripted me 3 vials a day ) ... and then she prescripted 4 vials a day i said to her " Ma'am i have tried this dose and its safe , if you wana increase then turn me on 5 " she said it could be toxic so play safe ....... bfore that i had tried 5 vials once .. soo i turned on 5 and it was my decission and it was according to 60-65mg/kg dose ( as i weigh 41kg at that time .).. i transfused 2 times from 18-march to 6-april and during this time no chelation at home ,.. after visitng my haemo i restarted chelation and turned on to 5vials a day dose , and first i started another IV desferal session for 24/6 but only for once and with 5vials a day.... after that i came back on pump again and 4-6 days out of 12 days between 2 Transfussions chelation plan and was on this till 22-april ( 2 days bfore S.Fe Tests).....
Note : i m on 4-6 days out of 12 days between 2 Transfussions results to get decreased iron on good rate , since 03-january ..... only difference is IV Sessions and increased dose of desferal ...
Best Regards
Take Care
Umair