especialy to Andy question abt chelation

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Offline Andy Battaglia

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Re: especialy to Andy question abt chelation
« Reply #285 on: August 15, 2010, 04:58:13 PM »
Good attitude, Rehman. Faithful compliance will have its rewards.
Andy

All we are saying is give thals a chance.

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Offline Rehman

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Re: especialy to Andy question abt chelation
« Reply #286 on: August 16, 2010, 04:49:26 PM »
Dear Andy

thanks Again.
THALASSEMIA  MAJOR.

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Offline Rehman

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Re: especialy to Andy question abt chelation
« Reply #287 on: October 27, 2010, 04:22:41 PM »
Hello Dear Andy

my chest is come out
THALASSEMIA  MAJOR.

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Offline Dori

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Re: especialy to Andy question abt chelation
« Reply #288 on: December 11, 2010, 09:24:59 AM »
I don't know of this is the right place.
Ferritin still goes up by Exjade of 750mg. I have now increase it to 1125mg. I hope it won't take me another 8 - 9 months to get it down. Any help would be apericiated (sp?)

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #289 on: February 12, 2011, 11:39:07 AM »
hi ya guys ...
gues wat i have to share ??  .. ofcourse my latest fe reports :P .... here  it is ...

Quote
Latest S.Fe Report  05-January-2010
                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                         [bgcolor=#ffffff]603 ng/ml[/bgcolor]

Quote
Latest S.Fe Report  07-April-2010
                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                         [bgcolor=#ffffff]458.2 ng/ml[/bgcolor]

imy chelation plan since 05-January-2010 uptil 30-Nov-2010 .. ...
Ferriprox = 9 tablets a day  :medicine
Desferal = 2 with Tx only

beside the few desferal wastege scene during transfusions , and a few week gaps of Ferriprox ...

here's my latest S.Ferritin Report Done on 30-11-2010
                                                    Normal range (for my age)                         Result
Serum Ferritin                                      30 - 400 ng/ ml                         [bgcolor=#ffeb00]590.1ng/ml[/bgcolor][/quote]

hurraayyeeee ,,,,, :happydance  :yahoo :grin :thumbsup :party  :yay


  :nana to desferal at home n pump

 :coffee to Tea n Coffee :P  :laughspit

  :thumbs :thumbup :hi5boys :hiyaboy :thankyou2 :ty :love for U all .. n  :grouphug  :high5

and  :clap  :getwell  :clapcheerboy :thumbs :thumbup for all those who r strugling to bring Fe down and also for those who have done this job :P .. .

Best Regards
Take Care
Umair

Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Sharmin

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Re: especialy to Andy question abt chelation
« Reply #290 on: February 12, 2011, 06:44:06 PM »
Umair,

This is wonderful news!!  I wish you ongoing success!  You look amazing and well in your pictures!  God bless


Sharmin
Sharmin

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Offline Zaini

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Re: especialy to Andy question abt chelation
« Reply #291 on: February 13, 2011, 12:22:33 PM »
Umair you are on thr right track buddy,keep going and you'll hit the normal levels pretty soon InshAllah  :hugfriend .

Zaini.
^*^Xaini^*^

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Offline Lena

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Re: especialy to Andy question abt chelation
« Reply #292 on: February 13, 2011, 05:16:32 PM »

Good for you, Umair ! Good for you! :yes :yes

Re: especialy to Andy question abt chelation
« Reply #293 on: February 13, 2011, 06:30:30 PM »
this is wonderful news but may i please ask something...
your level went from 458.2 ng/ml to 590.1ng/ml,  does that mean something?

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Offline Andy Battaglia

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Re: especialy to Andy question abt chelation
« Reply #294 on: February 13, 2011, 06:38:24 PM »
Good question, love and prayers, and I am sure others would want an explanation. The difference is slight in measured ferritin and we know that ferritin is not a stable count, as it is affected by other conditions in the body. The real significance is that Umair is maintaining a stable ferritin level with a much reduced chelation regimen. Not long ago, our nice friend was taking IV desferal and kelfer. He is now on a normal chelation program and the fact that he is maintaining a stable ferritin level, shows us that the hard work is now done. Umair can now maintain a level, rather than aggressively fight to reach that level.
Andy

All we are saying is give thals a chance.

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Offline Manal

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Re: especialy to Andy question abt chelation
« Reply #295 on: March 31, 2011, 12:38:45 AM »
Congratulations Umair  :biggrin :hugfriend

manal

Re: especialy to Andy question abt chelation
« Reply #296 on: March 31, 2011, 11:33:16 AM »
salams umair.
congrats to u. v happy to see ur good news. Masha Allah.

shaziya


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Offline Dori

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Re: especialy to Andy question abt chelation
« Reply #297 on: April 03, 2011, 09:54:39 AM »
Congratulations Umair!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  :cheer :jumping :thumbsup

I plan to restart this tuesday..... I will restart or open a new motivitation topic. I need it.

I am so happy for you. My apologies I read it only now!

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Offline nice friend

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Re: especialy to Andy question abt chelation
« Reply #298 on: April 11, 2011, 07:24:58 AM »
Sharmin , Zaini ,, Lena , Manal N Shaziya ,
 :thankyou2 Alll ,,

love n Prayers ,
yeah ,, that means i missed Ferriprox for more than a month mayb for 40 days  (time to time since last january to November in whole 9-10 months ,, :D ) .... actuly 9 tabs a day and 2 desferal was gr8 combination it was doing its job really well and it was slowly lowering down Ferritin as i needed at that time ,, but unfortunately i missed a few days of ferriprox doses that played its role in all that .,,,, n yeah a few time Desferal Wastage Scene putted its share as well ( as a few oh thal pals knows that sumwhere in mayb Auguest 2010 one of my status update on FAceboo was " i wasted Desferal for the very 1st time in last 2-3 years :( due to Fever " ...... then in january 2011 when i went to see my doc she added 1 more Desferal after seeing this Hike in Ferritin level ,, so i'm sure it will b much better in control than it was ,,, i hope my next Fe Report will b much better and encouragin than the last Fe report :) ....

Andy ,
absolutely right ,,, hard work is done now ,, its time to feel relaxed and have chill pill and enjou the life with less work ( no more hard work ) ...  .. ;) .. .

Dori ,
Thanx ya ,,, its ok ,, its better to b late than never ... lolzz...


best Regards
take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline nat

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Re: especialy to Andy question abt chelation
« Reply #299 on: April 12, 2011, 11:54:10 AM »
 :thumbup Great job, Umair! Motivates me to be more discipline in taking my iron chelators... Thx!  :letsgo

 

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