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International thalassaemia day 2008

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Offline B Thal Girl

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International thalassaemia day 2008
« on: May 08, 2008, 02:49:28 PM »
Dear friends,
Today is the international day for thals and I would just like to take this opportunity to extend best wishes to all my brothers and sisters here on this website. I have been able to find people who understand and share common problems and I am very grateful as I know that i am not alone in this fight.

I would also like to give thanks to everyone for our connection.
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Offline Andy Battaglia

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Re: International thalassaemia day 2008
« Reply #1 on: May 08, 2008, 04:50:45 PM »
Happy International Thalassemia Day to All!



A special thank you to Dr Asim, Marie, Noora and Amru for the lovely gift. I wish I could be celebrating again with your countrymen in the Maldives this year. Your gift brought a tear to my eyes.  :grouphug  I miss everyone so much.
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Andy

All we are saying is give thals a chance.
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Offline Sharmin

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Re: International thalassaemia day 2008
« Reply #2 on: May 08, 2008, 07:36:43 PM »
Happy Thalassemia Day everyone!!
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Sharmin
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Offline Narendra

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Re: International thalassaemia day 2008
« Reply #3 on: May 08, 2008, 09:36:56 PM »
Happy Thalassemia Day to All,

Let's HOPE for the best in the coming years

Cooley's Anemia and TAG are going to talk with representatives in Washington DC about the issues that affect Thalassemia, which include Blood Safety, Clinical Research Funding and Health Insurance Funding

For more info:- http://brucerod.com/tag/conference/2008/TAG_Conference_Legislative_2008.pdf
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Kathy11

Re: International thalassaemia day 2008
« Reply #4 on: May 08, 2008, 10:47:12 PM »
Ok Guys lets parteeeeeeeeeeeeeeeeeeeeeee :run :run :offtobed :offtobed :offtobed :nurse :nurse :nurse :flirty :flirty :flirty :flirty :spit :spit :khalifa :khalifa :khalifa :frustrated :frustrated :frustrated

this brings new definition of party time.

Thats the best I can do. Always the clown and the party pooper

I think today its a reflection day for all of us thal sufferers .
Kathy
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Offline Manal

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Re: International thalassaemia day 2008
« Reply #5 on: May 09, 2008, 01:03:17 AM »
My dear friends :hugfriend :hugfriend :hugfriend

Wishing you a happy thalassemia day. I spent  yesterday and today in the International Cairo conference, guys it was great. I have loads of information and updates that i will share with you all, but i will write the post tomorrow as i am terriblyyyyyyyyyyyy exhausted, i have many news, so until then prepare yourself for a looooooooooong post.

I love you soooooooo much and i miss you all
manal
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Offline nice friend

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Re: International thalassaemia day 2008
« Reply #6 on: May 09, 2008, 01:23:06 AM »
Hi all ::
HAPPY THALASSEMIA DAY To all of u too may this T'DAY will let us towards  better treatment medications & researchs .... so all thals B Posistive  as i m ........... ( B+ve is my yeah blood group thats y negtive thought can't enter in my Brain )
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Zaini

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Re: International thalassaemia day 2008
« Reply #7 on: May 09, 2008, 04:07:02 AM »
On this thalassemia day,i just wish that our govts start seeing where their attention and funding is needed,which is definitely not getting weapons and waging wars against each others.

ZAINI.
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^*^Xaini^*^
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Offline §ãJ¡Ð ساجد

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Re: International thalassaemia day 2008
« Reply #8 on: May 09, 2008, 04:39:13 AM »
Yes, Zaini :agree !

Yesterday I had surfed through all channels to see a glimpse of the PIMS convention being covered on the T.V. It looked like all the media of Pakistan was there to cover; but I was really disappointed when I had to turn off the t.v as the only highlight news of yesterday on every channel was the news of destruction of humanity rather than the prosperity; it was the announcement of the new cruise missile that Pakistan developed; no Thal. Day report, not even a 20 sec slot; just a news ticker that passed within few seconds for a minute or so. What did all those shutterbugs did there?!?! What happened to the recording of every channel camera that was there?!??! :mad
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Offline nice friend

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Re: International thalassaemia day 2008
« Reply #9 on: May 10, 2008, 03:20:32 AM »
hi sajid :
on 8th may thalassemiia day i watch many documentarys on these chanels AAJ tv , GEO tv,Express News channel  & dawn  news chanel ... especialy on AAJ , EXPRESS NEWS and GEO tv reports was playing with each bulletin ..... i watched that the thalassemia society  of lahore ( which is runing by mam javeria manan )  organized the show  in which thal children showed their  talent as participating in tablo n other activities .i  watched a report on express news chanel in which they reporter's location peshawar  center ( i dont know which thalasemia center that was fatmid or other )...........and AAJ tv i m not  remember but it was karachi or pindi but i gues it was pindi pims.
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline §ãJ¡Ð ساجد

  • Beta Thal Major
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  • اَسّلامُ علیکم Peace be Upon you
    • Islamic Resources
Re: International thalassaemia day 2008
« Reply #10 on: May 10, 2008, 12:03:55 PM »
Hi Umair,
If you saw the Health/Info. Minister Ms. Sherry Rehman on it then that was PIMS otherwise not.
(By the way, did you see me!?!? :biggrin )
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اَسّلامُ علیکم Peace be Upon you
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Offline Lyanne

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Re: International thalassaemia day 2008
« Reply #11 on: May 10, 2008, 01:51:24 PM »
Happy International Thalassemia Day everyone!!!!!!!!!!just had wonderful day with our support group (Mindanao Thalassemia International Foundation) here in our place..... We had a week long celebration and just had the last day today..... We had a blood letting and a new oral chelation(Ferriprox) introduced this day, we also had a motorcade and a drawing contest for the younger patients....which they could win a bottle of the new ferriprox.
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LYANNE :yahoo
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Kathy11

Re: International thalassaemia day 2008
« Reply #12 on: May 11, 2008, 12:04:56 AM »
Hello Sajid.
How are you?I hope you are in manageable health.

Do you by any chance knows what has happened? to our for pastry cook :huh :huh

I would like to place an order for a nice cake to be sent to Zaini and Sharmin ,Vic,Manal and all the other mothers. To celebrate.
Please send the Account to " I forgot who" :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl :rotfl
What is life without a joke?
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Offline Manal

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Re: International thalassaemia day 2008
« Reply #13 on: May 11, 2008, 12:54:32 AM »
Thanks Kathy alot  :kiss :kiss :kiss, you are sooooooo sweet and you really bring a smile on my face. Please Sajid we need a big one for Kathy too

manal
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Offline §ãJ¡Ð ساجد

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  • اَسّلامُ علیکم Peace be Upon you
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Re: International thalassaemia day 2008
« Reply #14 on: May 11, 2008, 05:30:28 AM »
Hi Kathy!

I'm doing good :ty

Your request has been fulfilled. Check the mother's day thread.
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