Latest Update On AQEEL

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Offline AL

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Re: Latest Update On AQEEL
« Reply #195 on: November 25, 2010, 12:33:16 AM »
Best of lick AL, keep updating :biggrin

manal

Sure hope NOT best of lick!    :biggrin

L

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Offline Manal

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Re: Latest Update On AQEEL
« Reply #196 on: November 26, 2010, 01:20:17 PM »
Ooops so sorry AL, best of LUCK :rotfl :rotfl

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Offline AL

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Re: Latest Update On AQEEL
« Reply #197 on: November 28, 2010, 01:53:10 AM »
 :crackup :crackup

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Offline AL

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Re: Latest Update On AQEEL
« Reply #198 on: January 05, 2011, 02:27:35 AM »
Hi everyone,  :hugfriend

Wish us luck, this coming Friday we're gonna bring Aleesya to the hospital during Aqeels monthly check up. The doctor told us to bring her along in order to see if she's a match for Aqeel.

 :hugfriend :hugfriend

LAter

L

 :( Unfortunately she's NO Match with Aqeel. Only 2/6.

Btw, Aqeel just had his transfusion yesterday, His HB was then 7.4.

 

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Offline Dori

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Re: Latest Update On AQEEL
« Reply #199 on: January 05, 2011, 04:16:09 PM »
I am very sorry to hear his sister is not a HLA match.
Do you feel comfortable by 7.4 gl/dl?

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Offline AL

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Re: Latest Update On AQEEL
« Reply #200 on: March 01, 2011, 02:50:51 AM »
I am very sorry to hear his sister is not a HLA match.
Do you feel comfortable by 7.4 gl/dl?

Its ok Dori,,,

i leave it at gods hand. Frankly speaking if you're asking me if i'm comfortable with 7.4, well i do feel comfortable coz i see him as a normal kid without any symptoms whatsoever,,i mean normal kid,,,but the only thing that worries me is that,,his spleen is enlarged etc. I sure hope that he does not need to have BT monthly.

To the rest of the group members  :hugfriend

Well here's an update on Aqeel,,,,we went to the tole (www.thetole.org/) the other day (last saturday to be exact). I told the master (or the chinese doctor) about aqeel and he gave us a compilation of different herbs in 7 packets, for 7 days and were told to see him again after a week. During the visit also he did some acupuncture on Aqeel by sticking those tiny needles (4 of them) at Aqeel's leg for half an hour.

I didn't ask much then, but for sure i'm gonna ask him more during our next visit that is this coming Saturday. There, i see a lot of people there coming from all over malaysia including Sabah (West Malaysia) ,,infact saw some foreigners there too. Btw, that particular clinic was officiated way back in 1993 by former health minister of Malaysia.

We have given Aqeel twice (2 days) the herbs, the herbs has to be boiled and simmer and it tastes bitter (very very bitter). Currently we are wait and see status.

Since Aqeel next appointment to the hospital is on the 6th day of having the herbs this friday, sure hope that there's positive result.  :pray

Will update u guys later when possible

CIAO

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Offline Zaini

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Re: Latest Update On AQEEL
« Reply #201 on: March 01, 2011, 04:35:49 AM »
Good luck :goodluck i hope the herbs benefit Aqeel.
^*^Xaini^*^

Re: Latest Update On AQEEL
« Reply #202 on: March 01, 2011, 06:39:59 PM »
Asa,

best of luck!!!

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Offline joyce

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Re: Latest Update On AQEEL
« Reply #203 on: March 01, 2011, 11:27:34 PM »
Al-
 Don't forget to update Aqeel's progress.
 Really eager to know the result. We pray Aqeel the best!


Re: Latest Update On AQEEL
« Reply #204 on: March 02, 2011, 06:48:12 PM »
joyce how are your kids? haven't gtten any updates...

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Offline joyce

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Re: Latest Update On AQEEL
« Reply #205 on: March 03, 2011, 01:09:43 AM »
Hi Love..
at the moment.. their condition is just 'okay' :wink--
Thnx for asking ..(^^)!

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Offline AL

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Re: Latest Update On AQEEL
« Reply #206 on: May 03, 2011, 06:06:51 AM »
Hi zaini and maha

try to look here.http://www.sureco.com.my/madulina.html

this is the exact product i gve to my Joey and Jovy.

it's cost wisely and it is pure honey and live spiruliina.

Hi everyone, its been a while eh?

Anyway i've been busy for sometime now and haven't got the time to update.

Well, there's nothing much to update, as Aqeel went for his routine BT monthly. Just that, we have been given him the same product as Joyce given. Seems that his HB is slightly raised. Because of this, we're sticking with it for another few months.

Btw, not really sure whether i've updated about this,,well last month,(coz for sure i updated it in facebook) prior to his routine BT, aqeel vomitted a few times, for a few days. And his urine was red (really red) for 2 days (i took photos of it and showed the doctor). Because of that we made an early appointment to see the doctor. About the vomitting, the doctor said that it might be coz of (angin/kembung perut)  not sure the real word here,,,,its "air". But to my surprise the doctor has no explaination about the colour red in his urine because they said that after checking his urine sample (TWICE), it is not blood. I showed the photos to the doctor, they were surprised and said that since it is not blood, they told us to go straight to hospital should it happened again.  Anyone here encountered this problem before?

Just an update, as promised. :)

 :hugfriend



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Offline Andy Battaglia

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Re: Latest Update On AQEEL
« Reply #207 on: May 04, 2011, 01:40:34 AM »
Is it possible that the red urine was related to something he ate like beets?
Andy

All we are saying is give thals a chance.

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Offline AL

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Re: Latest Update On AQEEL
« Reply #208 on: May 05, 2011, 08:31:31 AM »
Is it possible that the red urine was related to something he ate like beets?

Hi Andy,

Its a NO. We have not given him any beets. No beets for sure 100% SURE

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Offline AL

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Re: Latest Update On AQEEL
« Reply #209 on: May 06, 2011, 04:29:03 AM »
UPDATE 06.05.2011 12.15hrs.

 :cheer  :veil :stars  :yay

Just got back from the hospital. Can't believe that Aqeels's HB raised to 10.4. I must say that it must be the MADULINA which we tried, recommended by Joyce. Since it was above 9, today no BT is required. The doctor set for the next appointment in 3 weeks time, istead of 1 month like usual. Just that his ferritin is now 700+/-. The last time that we check was way back in September, that was 8 months back. It was was 400+/- way back then. Not sure whether it increased way too fast or not? Any suggestions you guys?

Joyce,
I just bought another 2 bottles yesterday and i got it both for RM103.00 only. Got it as a dealer/agent price. Btw, how much/often do you give daily? I heard that there another member in here who gave twice a day. As for Aqeel, currently, we gave him once daily and it's in the morning together with his multivitamin and folic asid.

:pray
that he would not have to go through BT every month.

Later u all



 

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