Latest Update On AQEEL

  Great for you! 

Definitely gonna try this one...I hope my doc will approve 

Hi AL
I have posted in another link that I have ordered madulina online, but it seemed it was lost and i am very very interested in trying it with my son.

Could you please -if possible- send my a contact of the Agent or a reliable good company that can ship it to me, as you know I live in Egypt .
Or even I can send you the money and the shippment fees and you send it to me

Please let me know

Manal

Could you please -if possible- send my a contact of the Agent or a reliable good company that can ship it to me, as you know I live in Egypt .
Or even I can send you the money and the shippment fees and you send it to me

Please let me know

Manal

Hi Manal,

I will contact the company where i got it from,,not sure whether they do post it overseas. Dont worry, i will liase with them and see how it goes. Should it be difficult for them, i will do it for you personally (BTW, not sure about the posting fess from Malaysia To Egypt).

Just that i will be busy for these few weeks coz my younger brother is getting married soon on the 14&15th May 2011. I would say by end of May i will not as busy as for the wedding etc.

Will let you know as soon as i can (perhaps i'm message you personally).

Later

AL
Many many thanks for your kind reply, I really appreciate that sooooo much . I will be waiting for their reply.
Congratulations for the wedding, hope your brother all the best
Manal

HI AL.
Glad to hear that Aqeels HB has increased. hope he is fine now. guess u must be busy with ur brothers wedding.. i just read that u had  started a treatment for Aqeel at the TOLE. what happened? r u still going on with it or did u stop? pls i would really like to know the result. bcoz 2 years ago we also got to know abt the TOLE and went to them. but they said that it is a long procedure and have to stay there for some time if we r doing the treatment. since we were not able to stay there for so many days we did not try the treatment.
 we also saw so many people getting the acupuncture treatment done. and according to the master there he sd he has done it on thals. i would really appreciate it if u could tell me.
thanks
shaziya

HI AL.
i just read that u had  started a treatment for Aqeel at the TOLE. what happened? r u still going on with it or did u stop? pls i would really like to know the result. bcoz 2 years ago we also got to know abt the TOLE and went to them. but they said that it is a long procedure and have to stay there for some time if we r doing the treatment. since we were not able to stay there for so many days we did not try the treatment.
 we also saw so many people getting the acupuncture treatment done. and according to the master there he sd he has done it on thals. i would really appreciate it if u could tell me.
thanks
shaziya

Well, we did go there once, the procedure does not take that much time,,roughly its about 30-45 minutes,,thats it. We did not further becoz Aqeel did not like the taste of the herbs given (seriously even myself too), and to be frank, its quite expensive for us. If i can recall correctly, it costs us rm4++ for the treatment and was told to visit then every week. After discussing with my wife and thinking of i need to spend like almost 2k,,it is just unaffordable. Another thing is, they said that they do thalassemia, the thing is i did not know personally of anybody who has cured or something like that.

AL
Many many thanks for your kind reply, I really appreciate that sooooo much . I will be waiting for their reply.
Congratulations for the wedding, hope your brother all the best
Manal

Thanks bro, will update you about that later.

HI AL
thank u so much for replying.
shaziya

HB 7.1 

An Update,

This month is the worst month ever, Aqeel had fever two times in a month (early of this month and now currently have fever with temperature 39 degrees. Adding salt to the wound, his sister Aleesya also had fever/cough/flu and only recently recovered.

Praying for fast recovery  Insya'ALLAH

I wish Aqeel speedy recovery.

Hope the kids are fine now AL
Manal

Hi  Friends............
I want to collect Madulina & wheat grass (juice/tablet) for my son. Can anybody help me?

Hi you all

Been a while since i posted in here (really miss all of you here), well i've been busy with work etc.

Ok now, there's nothing much to update really, Aqeel is still having his BT on monthly basis. He is now a 22.8 kg 5 years old boy. . Just had his 5th birthday on 21st October the other day (thank god he does not have to celebrate his 5th birthday at the hospital like the one he had on his 1st birthday).

Come to think of it, it has been almost 5 years now that i've joined this family.

Currently Aqeel has 2 appointment at the hospital. One for the BT and the other is his dental appointment. Seems like he has problem cavities, seems like he 2-3 cavities and that they're are having problem in filling it. One of it, has been fill 3 times and it still came off. And his gum are swollen and seems like his wisdom ttoth are on the way (the doctor were amaze at his age it seems to developed, and the doctor mentioned that surely it hurts a lot)

Just wondering if any others facing tooth problem like Aqeel? Is it common for thalasemic patients?

OK got to go now, will definitely keep it touch (just dont know when) if time permits 

Later U All.


Assalamualaikum

Hi Al,

It's good to hear that Aqeel is doing well. You seem much more relaxed these days.    I would suggest that he take a vitamin C supplement of 50-100 mg daily. He can't take a lot of C but he can take small doses like this and this may help with the gum problems, which are often a sign of vitamin C deficiency, one of the most common deficiencies in thals.

Hi Al,

It's good to hear that Aqeel is doing well. You seem much more relaxed these days.    I would suggest that he take a vitamin C supplement of 50-100 mg daily. He can't take a lot of C but he can take small doses like this and this may help with the gum problems, which are often a sign of vitamin C deficiency, one of the most common deficiencies in thals.

  thanks Dr. Andy (heheheh) , dare not say that i'm more relaxed these days, just that its now a routine monthly transfusion and busy with work etc. Not to mention, we have Aleesya now. Both of them really make us hard to control (knowing kids at their age) 

I didn't know its a common deficiencies in thals, will for sure get some vitamin supplement later (small dosage as recommended).

Thanks Doc.