I'm new!! glad to be here :)

Hi everyone,

Boy am i glad to find this site! A quick intro...
i'm Lilian 26 yrs, thal major, singapore

since i'm here, i'd like to take this opportunity to check with you guys....
anyone has been / am on L1 (ferriprox) and experiencing joint pains?

You see, i'm on fortnightly transfusion, and have been on desferal since 2 years of age. A year back, i was given L1 (a life saver, i must say). recently my  knees are getting reallly painful to the point where i can't squat (even climbing the stairs hurts like hell). also my knees are swollen.

went to see a different hematologist, who took me off L1, and back on regular desferal again. (sob sob). said might be a side effect of L1.

so, is anyone experiencing anything similar? any advice for me? thanks!!

Hi Lilian,

  on the forum,try to read through as much posts as possible,you will learn a lot,and joint pains can be due to L1 ,or osteoporosis? i hope you are taking calcium and vitamin D,here is the thread on our forum about joint pain.

http://www.thalassemiapatientsandfriends.com/index.php?topic=143.msg706;highlight=joint+pains+l1#msg706

ZAINI.

Hi Lilian,

Welcome to the site!  This is a great place to learn and have your questions addressed - I'm sure we have lots to learn from you as well!
 

Sharmin

 



    Welcome! Lilian. you've come to the right place.........

Hi everyone,

Thanks so much for the warm welcome!
zaini, thanks for the link. will read up on it soonest

does anyone know if there are any painkillers on the market that is not so taxing on the liver? i have hep c too, so have to go easy on my liver. but my knees are so painful that i can hardly walk, thus i had to take paracetamol. sigh....

thanks!
cheers and take care...

hi lilian :
i m a patient hep B .wel when i was on wheelchair Doctor s told me to try  walk even it seem to difficult but try try n try ... after that dr sent me to a physio he told  me to do some ..he said that it will be difficult in begining after that u will feel the changes .. and thats wat happened it was difficult to start but effective realy effctive ....... ask to ur dr abt it ... secondly abt painkillers......
Dicloran ... i found it best for joints  pain.... but u have to consult to ur dr b4 taking any decission ....  oh yes for knee pain here is the a emulgel for you but plz consult to ur dr b4 doing anything ......  Tabiflex 100 mg   EMULGEL   .. well i bought it from saudia n i m going to send u some links i hope these links will b helpfull ....

Tabiflex TABUK PHARMACEUTICAL MANUFACTURING CO Diclofenac Sodium  Suppositories Suppositories

Tabiflex TABUK PHARMACEUTICAL MANUFACTURING CO Diclofenac Sodium Suppositories Suppositories

Tabiflex TABUK PHARMACEUTICAL MANUFACTURING CO Diclofenac Diethlamine GEL

Diclofenac Sodium Suppositories  or Diclofenac Diethlamine GEL i i m not sure which one will b suitable for u  so plz  consult to ur dr ..

please check these link for more info

http://www.bioline.org.br/request?mf06008

http://www.moh.gov.bh/druglist.asp?id=T



 

Hi nice friend,

Thanks for your advice! i'll be checking them out

I hope you're doing better now. are you on any treatment for your hep b?

take care yea

hi llilian :
well i m not  on any treatment of hep-B but my dr is investigating my liver profile and some other test to began hep-b treatment .... i was on Hepamerz syrup a few yrs back but due to diabeties dr told me to stop taking this syrup...... i have done my test now i m planning to go for routine check-up and i think my dr will start  treatment of hep-b .......... i will keep u updated .............  take care bye