The Carao Trial - How effective is it & who benefits most etc.

Liitle Z is finishing her 8th bottle of carao,My father has asked his friend to bring 12 more bottles of carao,an year's stock,and Little Z was like " OMG !! why would nana do that to me " ?  .After so many bottles she still can't take the smell .

On serious note,i think that carao is benefiting our children,we saw a week's difference in her transfusion intervals,she was regularly going on three weeks,and her pre transfusion hb was between 9 and 9.5,now she goes at four weeks and her hb is between 9.5 and 10.This month after transfusion she had 104 degree fever and a very severe cough,i thought we'll have to go for transfusion on three weeks this time,but her hb at 3 weeks post transfusion was 11.1,now lets see what it will be after 4 weeks.

Thanks Andy for guiding us towards carao and thanks Lloyd for letting us try it.

Zaini.

" OMG !! why would nana do that to me " ?     

   

Little A is the same way - when I bring him his carao he puts his hand on his head and saying "Oh god why why why.., why is this happening to me."  He is such a cartoon.

Good thing I can ignore him and make him drink it anyway   I think it is really helping too.


Sharmin

Sharmin

This is exactly what is happening with my son and he even gives it names.  He keeps telling me who told you about it, but i am happy that at the end they take it  :rotflI love their sense of responsibility


manal

You will be happy to know that my HB today is........ 12 in such a short time

manal

I'm real happy for you, Manal!  You're thal minor, right? What was the total time you used carao?

All the reports I have received from thal minors have shown dramatic increases in hemoglobin.  I'd really like to know if there are cases of thal minor that do NOT show improvement in HGB.

Thanks Lloyd so much  for everything and for your generous offer

I started the Carao on the 28th of October 2008 with the below data

2. Date when carao is begun - October 28, 2008
3. Dose given - 2 table spoons, my spoon is 10 ml
4. Age and diagnosis of patient - 35, thalassemia minor
5. Average hb before carao was begun on October 4: - HB is 10.9 - MCV 62 - WBCs count 3.200 - platlets 365,000
6. Whether or not any other treatmen  were started during the period that carao was given - : just a mutli vitamin centrum silver but not on regular basis sometimes i take apeppetite supression medication cause i am working on decreasing my weight

On the february 7th, my HB was exactly 12 but what is more important to me is that when i was on Carao, the feeling of fatigue that i have each morning when i wake up is not there and this is the most thing i was happy about

As for my son he is on his nineth bottle and i do feel that it gives him energy and i do think too that it helps in reducing the rate of hemolysis when he gets sick. Before using carao, when he get fever, his Hb decrease with a certain rate, after the carao, it is not the same rate.

Did any body has the same observation???


Please Lloyd, feel free to ask whatever you want

manal

Manal,

I am thinking of giving it a shot myself.  I will be ordering more carao for lil A, I will order some for myself as well.  I would like to get my hg up as well.  Zaini, are you in  ? 

Sharmin

Huh  Why are you punishing me ? 

Anyways i am not sure,although i sure can use some energy,since last few days i am feeling really tired,more then usual,and i have noticed that my feet swell very easily,i had a severe pain in my neck and left shoulder and arm,i went to doctor today and she said there is a big "tired" written on your face and you should be getting some rest ,she saiid you are looking really anemic,and let me tell you i am feeling really anemic now a days,i don't know what is the reason  .day before yesterday i was so dizzy and my head was spinning so muck that it was really hard to get up from bed,but with two kids you can't really stay in bed ,i am thinking of getting my hb checked.

Zaini.

Zaini,

Please take care of yourself my dear.  Make sure that you are eating regularly and taking your supplements.  Have your B12, vitamin D checked as well.  I think that you should definitely start taking carao - then we can vent to each other how awful it smells 

Make sure that you are well hydrated, dehydration causes fatigue too.  Make sure that you do not get run down, that can bring your defenses and immunity down.

Take care my friend 

Sharmin

Sharmin and Zaini , good luck girls with the carao, i am sure it will help you a lot.

Zaini, please do take your supplements i am sure that they will help a lot

manal

Thanks Sharmin and Manal,

I do take supplements but i am not that regular with them,i'll try to be,thanks for your concern dear  .

Zaini.

I know this is a bit late (like 2 1/2 years), but I have a question for Andy about the wheatgrass tablets he linked to here: http://www.iherb.com/ProductDetails.aspx?c=1&pid=4993.

I want to know, how big are the pills? I want to buy this but I can't swallow large pills.

Hello,

 I recently joined the thalpal site. I am interested in the results of the study. My son is thal intermedia and an adult. Would wheatgrass tablets and carao help him? I live in Germany where and how can I order these supplements?

Hello "desperate",
I can't suggest a source for wheatgrass tablets, but I can give you my company's URL for ordering the carao fruit: https://www.tropicalhealthfooods.com/order.shtml.  You can also do a web search for the word "carao."  Information on carao fruit for thalassemia is on my informational site at http://www.hemobuilder.com/taxonomy/term/5

Hi Kitkat,

Wheatgrass tablets come in varying sizes, but are usually medium to large tabs. An alternative is the wheatgrass supsershots liquid. It's a little pricier than wheatgrass tabs but easy to take. http://www.drwheatgrass.com/

Desperate,

It's hard to say when an individual will benefit from hemoglobin inducing natural products. If a hemoglobin electrophoresis shows measurable amounts of HbF (fetal hemoglobin) it is more likely that there will be a benefit. The electrophoresis would also tell me something important concerning the possibility of using the drug, hydroxyurea to help raise the Hb level. It would be very helpful if you can get these numbers. The results are normally expressed in percentages of HbA, HbA2 and HbF. Panos has started on this drug and has seen a remarkable rise in HbF. This is the key to using hydroxyurea, so it is very important to see if this may be a possibility for your son.