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Message from my son:

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Offline Sharmin

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  • Gender: Female
  • Little A
Re: Message from my son:
« Reply #15 on: October 16, 2008, 03:22:01 AM »
Thank you for your responses everyone:) 
He sat up on his bed waiting to see everyone's responses before falling asleep.  He went to bed with a big smile on his face.
He adores all of you guys.  He loved 'big A' and 'little A'. 

Sharmin  :heartpink
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Sharmin
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Offline Annie

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  • 86
  • Gender: Female
Re: Message from my son:
« Reply #16 on: October 16, 2008, 10:30:58 AM »
Hello Lilttle baby.
it's very nice to see your post.welcome..
you are an ideal to other...
like your positive attitude, :clap keep it up.
and all the very best for hockey.
God bless you son
take care :clap :clap
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I AM  SUFFERING FROM THALA MAJOR
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Offline nice friend

  • Thalassemia Major
  • *
  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: Message from my son:
« Reply #17 on: October 16, 2008, 11:36:49 AM »
Hey Little A ,
its nice to hear from you buddy ... i was waiting for this moment ...
i hope you will contineu it on regular basis ... you are our youngest thal pal ..
sorry for replying too late buddy . but it was due to my complusion ...
i hope you will enjoy your stay over the site ....Nice To meet Ya buddy ..
i never used ya instead of you before ... its for you buddy ..
i m confused between to welcome cards soo sending you both ..



Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Narendra

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Re: Message from my son:
« Reply #18 on: October 16, 2008, 07:41:27 PM »
Little A,

Amazing my friend. I feel that your positive attitude with make you a very good person. Also, keep up with your extreme will power and stay in good shape. You have won a battle, but you have to win the war. Your mom has tirelessly been trying to find out the best treatment for you and even though it might have been difficult for you, I am glad you have co-operated and won the battle.

I would say as you have mentioned never consider or allow yourself to be considered having Thal as a big issue. Mind set makes everything and if you build up on that you will be a successful young men like many of my friends who are successful thals who are doctors, engineers, lawyers, doing PhDs and all this is because of their being faithful to their management of thal.

Way to go and I would say - Give special hugs to your mom for what she has done for you and we expect to hear more from you - especially on how your games are going on.
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Offline Canadian_Family

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  • 1064
Re: Message from my son:
« Reply #19 on: October 17, 2008, 07:41:25 PM »
Hi Little A,

So you like 'Calgary Flames', my favourite is the 'Toronto Maple Leaf'. I know this hockey season will be awsome and infact the flames are playing the maple leaf on Novemeber 11, 2008 at the Pengrowth Saddledome, Calgary.

ARE YOU GAME!!! :)
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Regards.
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Offline Sharmin

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  • Gender: Female
  • Little A
Re: Message from my son:
« Reply #20 on: October 18, 2008, 03:48:36 AM »
Thank you so much for your warm messages - my son loves reading them!  He will write again soon. 

Wishing everyone all the best,

Sharmin
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Sharmin
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Offline maryo0m

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  • Gender: Female
  • ---SPREAD UR WINGS AND FLY---
Re: Message from my son:
« Reply #21 on: October 27, 2008, 11:45:23 AM »
Hi there , thats a great post  :clap

hope some day you turn out to be a famous hockey player
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------------Spread your wings and fly-----------
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Offline Andy Battaglia

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  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: Message from my son:
« Reply #22 on: November 03, 2008, 12:32:32 AM »
Hey little A,

Your mom showed me some pics of you in June and September and I have to say WOW! You are looking great! What a difference in just a few months time. And just in time for hockey season.  :biggrin
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Andy

All we are saying is give thals a chance.
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Offline Sharmin

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  • Little A
Re: Message from my son:
« Reply #23 on: November 03, 2008, 03:57:32 AM »
Andy,

Little A read your message - I actually let him compare the two pictures as well - he had the same reaction.  The change in him is unbelievable, it looks as though they are pictures of two different boys. 

During the time that he had antibody he was on very frequent transfusions and steroids.  When I look at pictures from the spring I can see the coppery, grayish tone in his skin and the puffy face from prednisone.  After rituximab and the new combination chelation therapy - he is almost off of the prednisone.  Now his face is its normal shape and his skin is pinky - he looks like he did before this whole antibody situation. 

Also, thanks to the supplements you recommended - the B vitamins, minerals, vitamin e and carao - he has tons of energy and he is doing great at hockey and track and field.  Other parents have remarked that little A has such great speed and energy in hockey - they are wondering what we are feeding him:):)  His dad is beaming with pride after each game. 

Andy, thank you from the bottom of our hearts for giving us our son back  :ty :ty :ty :ty 

Sharmin
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Sharmin
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Offline avasmom

  • mom of a beutiful baby girl with thal major
  • *
  • 14
  • Gender: Female
Re: Message from my son:
« Reply #24 on: November 04, 2008, 06:35:37 PM »
                                         :biggrin :biggrin

                    hi lil A, you are so encouraging to me as a new parent of a baby with thal major, i pray that my daughter is as upbeat and helpful to others as u are!!u made me feel like my daughter wont have issues in fitting in and living a normal life. and u just seem so bright, god bless u and im so glad that the antibodies are gone
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Offline sahil

  • Thal Major
  • ***
  • 170
  • Gender: Male
Re: Message from my son:
« Reply #25 on: November 05, 2008, 01:17:26 AM »
Its so good to read a 10 year old posting such posts. Truly amazing man!! I am trying to recall what did I do when I was a 10 year old  :smiley

All the Best with your hockey mate!!


\peace/
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My formula for living is quite simple. I get up in the morning and I go to bed at night. In between, I occupy myself as best I can.
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Offline Sharmin

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  • Gender: Female
  • Little A
Re: Message from my son:
« Reply #26 on: November 05, 2008, 01:41:01 AM »
Thank you for your comments :)
You are all so sweet   :hugfriend :hugfriend

Sharmin
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Sharmin
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Offline Bostonian_04

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  • 395
  • Gender: Male
Re: Message from my son:
« Reply #27 on: November 05, 2008, 07:51:12 PM »
Sharmin,
Your son is an inspiration for all new parents and I salute you and your husband for all the hard work. I hope to learn from you and see my daughter grow up to be like Little A.

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Quis custodiet ipsos custodes ? - Plato
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Offline Sharmin

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  • Gender: Female
  • Little A
Re: Message from my son:
« Reply #28 on: November 13, 2008, 12:08:37 AM »
:ty :ty :ty :ty :ty :ty :ty

Sharmin
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Sharmin
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Offline Sharmin

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  • 4155
  • Gender: Female
  • Little A
Re: Message from my son:
« Reply #29 on: November 13, 2008, 05:35:02 PM »
Canadian Family,

Little A was wondering you saw the Flames 4 - 3 victory over the Leafs on Nov 11th??   :wink

Hope things are going well with your family:)

Sharmin

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Sharmin
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