Arohanui to you too Cherieann,
Thank you for your compliments Cherieann - we are just learning from grown up thals like you:)
You all have just taught us that thals can do anything that they put their minds to - we gave it a try with Little A - and he is
doing exactly that and having fun doing it. Thals need to fill their lives with what they love, just as you are doing. Given a chance - given a hockey stick and a pair of skates any thal can put the puck in the net.
As you have done for us, I am hoping to show other parents of thal children that their children can do anything. When they ask what thals do and what they look like I want them to see Little A playing hockey - and when they ask how young thals feel about their lives I hope that Little As messages will reassure them.
Honestly, if genotype testing had been done for little A prior to transfusions and had he not developed antibodies - thalassemia would not have been any burden for us. My hope is that to encourage people to do the things that we have done right - sports, positive attitude etc. and also to take precautions that we did not know about that is what each of us needs to do for the younger thals. Having dealt with the antibodies - my hope is to have the simple monthly transfusion/chelation routine of thalassemia back because it really wasn't that bad at all.
Thanks again friends,
Sharmin