WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???

HI EVERYONE
for a long time i had not made any post. after doing all the known cures and effort for my son but nothing... finally left with BMT. so i looked for donor but unrelated had there chances. so we plan for another kid..

my wife 14 th week of pregnancy done the test.

1. test  done- my son coming.. is not major, doc said some traits but minor very littel traits.

2. today we were wating HLA typinG===  DOCTOR SAID  100% MATCH.

I DON`T HAVE WORDS TO SAY.. NOW 6 MONTHS. WATING AND HOPE FOR GOOD.

I NEED SOME HELP AS. NOW FOR BMT . DOCTOR CLASSIFY THE PATIENT POSITION FOR OPERATION SUCESS SO FOR KEEP MY SON IN BEST CONDITION TILL THE TIME COMES PLEASE  ADVICE AND SUGGEST YOUR KNOWLEDGE TO ME.

REGS
MICKY

This is indeed a great news that you got all the parameters of HLA matched 100%

Please take all the possibilities of the outcome in mind. It's a risky process.

praying for all the best and wishing you complete success.

Hello Micky,

We have few posts where we have discussed about BMT. You can find it at
http://www.thalassemiapatientsandfriends.com/index.php?topic=117.0 (Successful BMT)

http://www.thalassemiapatientsandfriends.com/index.php?topic=119.0 (Successful BMT)

http://www.thalassemiapatientsandfriends.com/index.php?topic=280 (Possible 2nd BMT)

Also, Khalifa's son went through BMT for his son. He went through some tough times but came back with success due to the good treatment of doctor's

You might want to keep his ferritin levels in check and give him the best care so that his body is healthy before he goes in for BMT.
I got this from somewhere and which shows if the following criteria is met the the bone marrow transplantation can have a very high rate of success (over 90%):
1.   Normal Serum Ferritin
2.   Normal liver function
3.   Normal liver size on U.S.G. or clinically
4.   Normal liver histopathology on biopsy.

If these criteria are satisfied, the age of the patient and number of transfusions no more appear to be a bar towards the success of BMT.

You have been doing all you could for your son and am glad that the HLA matched 100% with the upcoming baby.

I am praying for you, please keep us updated

manal

hi kabir :
how  r u ?.
dont worry broo .. everything will gonna b  fine ...  umair

Hi Micky,

Hope everything will work out for the best. WIll be praying for you and your family. Take care and keep us updated!

lilian

Hi Micky
congratulations. Have you discussed cord blood transplants. Kabir definitely has our prayers. All the best for whatever you decide
regards
maha

thnx.
for cord blood my doctors here suggested that this thing is not that much sucessful then bmt.  as per doctor we have to wait for 2 years before bmt.  so we are in sreach for  best place hospital to do bmt , i dont have much knowledge for this so will start searching for this and i hope in 2 year time more advaces comes in this feild making this more easier.

regs
micky

Hi Micky
I was of the opinion that cord blood is more successful and a less risky procedure as chances of GVHD is greatly reduced. Andy or Narendra will definitely detail you on that. Transplant or no transplant Micky do store the cord blood , you will atleast have that option open.
regards
maha

oh. i had done booking to storing cord blood here. as here new compnay reliance is  storing.. also selling stemp cell as per your match for 6000 usd only. and this company is 100% best we know . one of patinet from pakistan came yest. and bought the matching stemp cells from them for transplant. but after that what happne i dont know yet.

storing also is ok normal cost about 1700 usd for 21 years.

and they gurantee the precentage and no. of stemp cell they ware able to preserve. to us after doing it.

micky

Hi Kabir Love,
I think that you are very lucky and i will add you to my prayers for a successful transplant. My understanding of it though is that the transplant using cord blood cells would be faster and safer for the child as there is less risk for GVHD which is graft versus host disease- problems arising out of antibodies from the donor. Where would you be looking at going for transplant? I know of the hospital in Pesaro Italy where Professor Lucarelli first started off doing transplants, maybe you should check around while you have time.

Please continue doing your research.
Roanna

I was of the opinion that cord blood is more successful and a less risky procedure as chances of GVHD is greatly reduced

maha you are right. In relation with GVHD, Cord blood is preferred to Bone Marrow Transplant

Micky, Go to this site, it has a nice table comparing cord blood transplant and bone marrow transplant
From:- http://www.womens-health.co.uk/bone_marrow.html

Graft Versus Host Disease is a potentially serious complication for any organ transplant. In fact, it is estimated to be fatal in up to 40% of patients. However, because cord blood is more primitive than bone marrow, there is a lower chance that these cells will attack the recipient's body, resulting in a lower incidence of GVHD. 

Also considering that cord blood contains more stem cell than bone marrow, cord blood transplant is preferred
Stem cells are found in greater proportions in umbilical cord blood. In fact, some experts say it contains nearly 10 times the amount of stem cells found in bone marrow. Also, it is believed that stem cells found in cord blood have greater regenerative properties since they are younger than bone marrow.

I think saving the cord blood is definately a good idea.

I WAS HOPING THIS SUPPORT HERE THAT Y I OPEND THIS THREAD TO KNOW EVERYTHING. I HAVE 2 YEARS WATITING BY THE TIME I HOPE THIS THING ADVANCES AND I MIGHT GO FOR CORD BLOOD. SO LETS SEE

TILL KNOW I KNOW  ITALY LUCRALLI FOR BMT AND CMC VELLOR.. AS BOTH OF THESE DOCS DOING BMT ARE BEST NOW. SO LETS SEE WHEN TIME COMES.

HOPE FOR GOOD FOR ALL OF US

MICKY

Hi Micky.

Dr Lucarelli is the most experienced bone marrow transplant specialist on earth. His clinic is where our member, Khalifa had the bone marrow transplants done for his son. It has now been 3 years and the boy is doing well. If you want to know more about Lucarelli and his clinic, please message Khalifa.

hi andy
ya i know lucraelli is best. well i m also planning for doing there only but what i get to know is that the bmt cost there is about 1,00,00 usd. which i can do but doctor told me that if any complication comes in this case then the cost will multiply to anything can go 3 times, 4 times or even more. i m really confuse that if this happen what will i do... 4,00,00 usd is  really difficlut. but i will try as i have 2 years for this, so i will try my best.


micky