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WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???

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Offline omega

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #15 on: July 05, 2008, 10:33:19 AM »
Hi Micky

Congratulation to you! You are definately the lucky one.

The cost of transplant is very expensive these days. I am not sure how much in total if the transplant is done in Italy, but you should get aside at least US$ 100,000 - US$200,000 for the transplant. In Malaysia it cost some where around RM 200,000 to RM 350,000 2 years ago. You would have to get yourself financially prepared should you decided to get it done in a private hospital. It might cost signicantly less if the transplant is done in a Government funded hospital.

The engraftment is faster in a bone marrow transplant compared to the cord blood transplant. But the chances of getting the GVHD is higher in the BMT. I have seen many sibbling BMT here, and most of them encounter mild GVHD.

All the best to you!

Best Regards

omega.
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Offline nice friend

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #16 on: July 05, 2008, 01:08:13 PM »
Hi
what r the charges of BMT  to Dr lucarreli ?.
what r the charges of bmt to Dr vichinsky at Children hospital oakland ?

if anyone know that so plz answer this post
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Offline kabir_love

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #17 on: July 19, 2008, 12:12:35 PM »
who is  this doctor vichinsky  in oakland?

is he good? i  never heard of him.
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Offline Andy Battaglia

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #18 on: July 19, 2008, 07:19:34 PM »
Dr Vichinsky is regarded s one of the top thalassemia specialists in the world. His efforts have not been confined to the US, as he has been very active in a thalassemia project in India and regularly speaks at international thal conferences. He is the director of the Hematology/Oncology Children's Hospital & Research Center at Oakland Children's Hospital, which is perhaps the top thal center in the world. He is a leader in both the treatment of thalassemia and also in thalassemia related research. He is also one of my personal heroes and a great inspiration to me with his constant efforts to improve the lives of thalassemics. Hearing his talk and meeting him briefly at the Dubai conference was one of the highlights of the entire conference for me.

http://www.childrenshospitaloakland.org/healthcare/depts/hematology_overview.asp

ELLIOTT P. VICHINSKY, MD
Primary Office
Pediatric Hematology Oncology Medical Group
747 52nd St
Oakland, CA 94609
Phone: (510) 428-3377
Fax: (510) 601-3916

Selected Personal Achievements
Listed in Best Doctors in America, 2007 (Best Doctors, Inc.)
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Andy

All we are saying is give thals a chance.
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Offline KHALIFA

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #19 on: July 19, 2008, 09:25:01 PM »
Dear Kabir
    the cost of BMT in italy with Prof.Leucarali will be arround 130,000 euro arround 100.000 USD any way u can send a reguest to Prof Leucaralli and explain to him your setuation and as i remember he have a program for the PpL who they can't pay send for him a reguest and maybe he will do it free or maybe you pay somthing ...
       ALL THE BEST BROTHER I WILL PRAY FOR YOU
                            KHALIFA
                     STATE OF KUWAIT
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RED_PILOT
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Offline kabir_love

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #20 on: July 21, 2008, 07:20:34 AM »
khalifa,
thanx man,, being a father we always want best for our kids, well i m not selfish and specially one cant be in this case. as i had save 1,00,000 usd. for this. so i can give this from my pocket .. ill  mail leucaralli and wil explain him .. i ll can deposit 1,00,000 usd . but as if any problem comes later or complication then cost  of  this  multiplies to 4 times of more for that if he can see my situtation then ill be happy and more safe in this.

well lets see..    do u have his email: address i can atleast consult meanwhile

regs
micky
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Offline KHALIFA

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #21 on: July 21, 2008, 09:10:36 PM »
contact me on my e-mail
                      red_pilot@hotmail.com
               
                                        khalifa
                                  state of kuwait
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RED_PILOT
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Offline nanuaru

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #22 on: August 20, 2008, 07:07:56 AM »
Quote from: kabir_love on June 27, 2008, 10:49:11 AM
Hi Micky,
 It was heartning to read your mail about BMT.May god bless the child and he recovers fast enough to lead a normal life. through your mail I contacted Relicord personal for stem cells and it was heartning news for me to hear from them that they will be able to help me find the matching stem cells for transplant. Right now i'm going for hla typing of nanu in next 2to3months along with matching with her elder sister if god forbids that does'nt match i'll be going for stem cell option tanks micky it has given me second ray of hope that this guilty father would be able to repent and my daughter would be able to forgive me for what i've done to her life . keep posting. secondly there is some confereence to be held at lady hardinge med. college in delhi on 30thaug on exjade many renowned haemtologist such as Dr lokeshwar from bombay Dr marwah from PGI chandigarh are attending it make it apoint to attend. reg fee is 150to300pp and lodging is for 1k to5k pp
        Guilty father of my cutie pie nanu
HI EVERYONE
for a long time i had not made any post. after doing all the known cures and effort for my son but nothing...  lodging is depending upon your need ffinally left with BMT. so i looked for donor but unrelated had there chances. so we plan for another kid..

my wife 14 th week of pregnancy done the test.

1. test  done- my son coming.. is not major, doc said some traits but minor very littel traits.

2. today we were wating HLA typinG===  DOCTOR SAID  100% MATCH.

I DON`T HAVE WORDS TO SAY.. NOW 6 MONTHS. WATING AND HOPE FOR GOOD.

I NEED SOME HELP AS. NOW FOR BMT . DOCTOR CLASSIFY THE PATIENT POSITION FOR OPERATION SUCESS SO FOR KEEP MY SON IN BEST CONDITION TILL THE TIME COMES PLEASE  ADVICE AND SUGGEST YOUR KNOWLEDGE TO ME.

REGS
MICKY
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Offline nanuaru

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #23 on: August 20, 2008, 07:42:18 AM »
Quote from: kabir_love on June 27, 2008, 10:49:11 AM
Hi Micky,
 It was heartning to read your mail . may god bless Kabir .I'm also going in for hla typing and matching of nanu with her elder sister hope she gewts the match otherwise i'll go in stem cells sourced from relicord .thanks for that inf. also. hope god gives me one chance to repent my mistake by giving my cutie pie nqanu to lead a normal life .keep posting . there is one conferens=ce in delhi on exjade at lady hardinge med. college on 30th aug08 try to attend it
HI EVERYONE
for a long time i had not made any post. after doing all the known cures and effort for my son but nothing... finally left with BMT. so i looked for donor but unrelated had there chances. so we plan for another kid..

my wife 14 th week of pregnancy done the test.

1. test  done- my son coming.. is not major, doc said some traits but minor very littel traits.

2. today we were wating HLA typinG===  DOCTOR SAID  100% MATCH.

I DON`T HAVE WORDS TO SAY.. NOW 6 MONTHS. WATING AND HOPE FOR GOOD.

I NEED SOME HELP AS. NOW FOR BMT . DOCTOR CLASSIFY THE PATIENT POSITION FOR OPERATION SUCESS SO FOR KEEP MY SON IN BEST CONDITION TILL THE TIME COMES PLEASE  ADVICE AND SUGGEST YOUR KNOWLEDGE TO ME.

REGS
MICKY
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Offline kabir_love

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Re: WHAT FUTURE HOLDS FOR ME. NEED YOUR LOVE AND PRAYERS.. BMT COMING???
« Reply #24 on: August 20, 2008, 08:27:59 AM »
ill surely come to confrenre. so for reg. do you know where to contact now... or just go and go in. like this

regs
micky
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