It is very difficult to get insurance coverage in the US unless you live here. Most insurance is through employer based programs. If you are visiting the US and will need to arrange for transfusions, please contact the Patient Services Coordinator at the Cooley's Anemia Foundation I don't know if Eva is back from maternity leave, so Eileen Scott may still be filling in for her.
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999
Patient Services Manager: Eva Chin-Li eva.chin@cooleysanemia.org
Program Coordinator: Eileen Scott eileen.s@cooleysanemia.org