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something about Liver, iron overload, chelation, diabetes and hepatitis

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Offline Andy Battaglia

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #75 on: May 29, 2009, 03:58:26 AM »
Umair,

How do you feel now physically compared to when your ferritin was so high?
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Andy

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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #76 on: May 29, 2009, 04:34:16 AM »
Andy,
Feeling of you're looking cool & smart is a great feeling soo it make's me feeling freshed-up and energized , ..
physicaly : as you know high level of fe slow down's the growth rate and that effects your health in term of feeling fit and the micro fractures in bones that you mentioned a lil ago could happen bcoze of high fe ... i was having pain in bone at the time my fe was high pain like something is crushing the bone to inside and weak bones , if something touch's  little hard was painful for ...  and i was feeling sick not well ..
but now , i m feeling happy more energized than i ever been , i m at best of my health , main thing is i m not feeling sick anymore .. now thalassemia for me is only a day after 10-12 days and nothing more than that .... bcoze i m maintaining my hb above than 9.5 (pre-tx) and i think that's to feel fine but i m thinking to keep that in a lil more up from 10-11 pre-tx ... soo Thalassemia is a day for me ... and that is a good feeling i think .. . feeling strong and forgoten the aches which i had bcoze of iron overload (e.g chest aches , heart palpation, bone aches, ucler of stomach, frequent tummy aches, tightened liver, fluctuating and out of controle blood sugar levels and alot more complications of iron ) .. as i mentiioned the link between iron overload and insulin need in this thread, a long time ago :
http://www.thalassemiapatientsandfriends.com/index.php?topic=1825.0;highlight=judge

overall i m feeling superfine, i never been in that much good condition i m now a days, as some of you mentioned that i m looking like Salman khan now a days , and to Andy i reminded the memories of Sherlock holmes, mean's that i m looking good and healhty now a days and I am hahahaha :grin  ......

Feeling like , i m back in the game again, i m back in the life again ALHUMDU-LILLAH(All Praise to God )

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Umair
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Offline T @ r ! Q

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #77 on: May 29, 2009, 05:30:05 AM »
Quote from: nice friend on May 29, 2009, 04:34:16 AM
now thalassemia for me is only a day after 10-12 days and nothing more than that

Exactly how i think of Thal, just one day, not more than that.
« Last Edit: May 29, 2009, 05:35:53 AM by T @ r ! Q »
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Offline SF

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #78 on: May 29, 2009, 06:28:47 AM »
Quote
@ SF,

Quote
Quote
I wonder what you were upto in the kitchen?   j/k
wat else you're expecting that i was doing there ?? :D  please.... please tell me, i m worried abt that .. ( how early i woke-up and got to know that i had to ask this :D  )

I had no particular thought on my mind when I asked you this question... It was simply a teaser...

It's so nice to hear your liver function is also better and that you're feeling really good! Keep up the good work! You're an inspiration for me!
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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #79 on: May 29, 2009, 02:31:13 PM »
a lil mistake in my last post : now thalassemia for me is only a day after 10-12 days and not more than that....
================

Hi SF ,
i was trying to recall why i missed to ask that bfore and just got the reason that is " bcoze there was an abreevation of just kidding there in the last of your question [ j/k ] " i m sure thats why i replied with an answer and decided not to ask about that question .. it is nothing serious , this time i was j/k hahah , sorry if i made you feel worried or if you offenced by this  :imsorry ...

@ Topic,
Thanx alot for the complement and i think you may try nigella now and i hope & wish that will work for you too INSHA-ALLAH ( If it is God's will / God willing ) ... Thanx alot for taking time to reply :) ...

@ Tariq bhai ,
yeah buddy, that is best attitude to cope with Thalassemia, thats why you and me think's the  same at this ;) ...

Best regards
umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline SF

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #80 on: May 30, 2009, 05:02:43 AM »
Umair,

So, do you also grind the nigella seeds like Ambareen suggested, or do you take them as whole with honey? I didn't like the ground nigella in honey. So, I have started eating whole seeds with food. My mom usually uses them in cooking, and when I feel I don't have enough on my plate, I add some more to my meal.

Andy, would taking Nigella as described above be equally effective as taking them with honey or taking them empty stomach as some of the members on this forum do?

Thanks,
SF
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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #81 on: May 30, 2009, 07:19:26 AM »
Hi SF,
i take 11 Nigellla seed as whole seeds mixed in honey on empty stomach before breakfast after that i avoid drinking water or eating something for next 30 minutes ( i dont know why but i think my papa told me to do this, i think its bcozeto let Nigella work and get into stomach and then to eat anything else or to take break fast ) .... i swallow whole seed after mixing them in honey its very easy to swallow , for cooking i think nigella should be added in the last touch ...
i hope you'll find nigella beneficial very soon and you'll witness its benefits  very amazing ....

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Andy Battaglia

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #82 on: May 30, 2009, 11:19:32 PM »
I don't think there's any reason to use them on an empty stomach. Ambareen suggested using the nigella mixed with honey after meals.

http://www.thalassemiapatientsandfriends.com/index.php?topic=2639.msg26081#msg26081

In fact, since nigella is used as a spice it is easy to incorporate them into the diet by adding them to foods. They can be put in a frying pan until the seeds pop, which doesn't take long, and then added to various dishes as you prepare them.
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Andy

All we are saying is give thals a chance.
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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #83 on: May 31, 2009, 03:21:36 AM »
Andy,
Quote
The best way to take Nigella seedz is by grinding them. and keep it in a bottle and a bottle of honey beside it on your dinning table or near you computer coz ppl never 4get to sit on  the computer no matter wht happenz isnt it..!!![bgcolor=#ffffff] so tht you ever 4get it, and have it after every meal[/bgcolor], for babies just a pinch of the powder mixed with honey on you palm n let the baby have it
i highlighted a line , i think she wanted to say that if you forget to take Nigella+Honey Bfore meal then you can take it after meal ... i think that she wanted to say this ... i think she is the only one who can clear this issue , asking to her would be a better option than anything else.. and yes , i think we can add it in meal like a spice , but to use it as herbal remedy we should have to take like a remedy as well/too ( seprately to the meals , bcoze i heard that , Nigella work's differently with everything like honey is good and hot when that is taken in warm water and that works different as differently that mixed with ) ...

i hope i make the sense :grin .... anybody there to explain clearily wat i wana say ???? ... please explain if anybody can do it ...

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline SF

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #84 on: June 01, 2009, 05:35:17 AM »
Andy and Umair, Thanks for your posts!

I've been taking Nigella as part of meals. I may start taking them separately with honey in addition to taking them added to meals as I don't think I get enough through meals only.
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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #85 on: June 01, 2009, 07:58:06 AM »
Your Welcome SF ,
i forgot to mention that i m take's Nigella+Honey only once a day ...

@ Andy.
Is that enough for me to take Nigella+Honey only once a day bfore breakfast on empty stomach ??? wow pretty much confused after reading again and agin the quote i posted in my last post .... if i m not wrong Ambareen is taking that with/bfore every meal ... :whew ....

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline nice friend

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  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #86 on: August 23, 2009, 06:19:35 PM »
Quote
My Latest LFT report May 26 2009

Test                                        Results                     Normal range
Liver Prfile ( L.F.T )
[bgcolor=#ffffff]S.TOTAL BILIRUBIN            1.8 mg/dl                   ( 0.2 - 1.25 )[/bgcolor]
S.DIRECT BILIRUBIN            0.7 mg/dl                   ( 0 - 0.15 )
[bgcolor=#ffffff]S.INDIRECT BILIRUBIN         1.1 mg/dl                   ( 0.2 - 1.2 )[/bgcolor]
GAMMA GT                         84  I.U/L                    ( 3 - 50 )
[bgcolor=#ffffff]SGPT (ALT )                       72 I.U/L                    ( 0 - 55 )[/bgcolor]
ALKALINE PHOSPHATASE     106 I.U/L                  ( 28 - 124 )

My Latest LFT report July 23 2009

Test                                        Results                     Normal range
Liver Prfile ( L.F.T )
[bgcolor=#ffffff]S.TOTAL BILIRUBIN            2.1 mg/dl                   ( 0.2 - 1.25 )[/bgcolor]
S.DIRECT BILIRUBIN            0.3 mg/dl                   ( 0 - 0.15 )
[bgcolor=#ffffff]S.INDIRECT BILIRUBIN         1.8 mg/dl                   ( 0.2 - 1.2 )[/bgcolor]
GAMMA GT                         60  I.U/L                    ( 3 - 50 )
[bgcolor=#ffffff]SGPT (ALT )                       72 I.U/L                    ( 0 - 55 )[/bgcolor]
ALKALINE PHOSPHATASE     110 I.U/L                  ( 28 - 124 )
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Kathy11

Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #87 on: August 23, 2009, 11:35:13 PM »
Hi Umair, :wink


I'm so proud of you. In reading your blood tests result .it indicate that you are doing really well with your chelation , keep up the good work  :clap :clap :clap :clap :clap :clap

Sajid is looking and is happy too.
you are an inspiration to all the young on this web-site
Much love
Kathy

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Offline nice friend

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Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #88 on: August 24, 2009, 09:39:14 AM »
Hi Kathy ,
its Very nice to see you posting again ,, i m really soo happy to see you posting ... yeah, i worked really soo hard  but it bcome easy with time , the most difficult time was the when i started that but after that things start turing easy and came easy , first month of chelation was the most difficult one but after that it bcame like a routine thing to do ... whenever i see a person star's chelation bcoze of knowing my Fe levels and benefits of lnormal Fe levels i feel soo happy , now i have more than 10 friends at thal center who are chelating on regular basis bcoze of seeing the change in my colour and health bcoze of this and this made me feel soo good that at least i m th reason of something good :grin ... Thanx alot Kathy for taking time to reply and encouragment :) ..

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline nice friend

  • Thalassemia Major
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  • 2836
  • Gender: Male
  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: something about Liver, iron overload, chelation, diabetes and hepatitis
« Reply #89 on: January 26, 2010, 04:21:29 AM »
Quote
My Latest LFT report July 23 2009

Test                                        Results                     Normal range
Liver Prfile ( L.F.T )
[bgcolor=#ffffff]S.TOTAL BILIRUBIN            2.1 mg/dl                   ( 0.2 - 1.25 )[/bgcolor]
S.DIRECT BILIRUBIN            0.3 mg/dl                   ( 0 - 0.15 )
[bgcolor=#ffffff]S.INDIRECT BILIRUBIN         1.8 mg/dl                   ( 0.2 - 1.2 )[/bgcolor]
GAMMA GT                         60  I.U/L                    ( 3 - 50 )
[bgcolor=#ffffff]SGPT (ALT )                       72 I.U/L                    ( 0 - 55 )[/bgcolor]
ALKALINE PHOSPHATASE     110 I.U/L                  ( 28 - 124 )

My Latest LFT report 05 - Jan - 2010

Test                                        Results                     Normal range
Liver Prfile ( L.F.T )
[bgcolor=#ffffff]S.TOTAL BILIRUBIN            1.5 mg/dl                   ( 0.2 - 1.25 )[/bgcolor]
S.DIRECT BILIRUBIN            0.5 mg/dl                   ( 0 - 0.15 )
[bgcolor=#ffffff]S.INDIRECT BILIRUBIN         1.0 mg/dl                   ( 0.2 - 1.2 )[/bgcolor]
GAMMA GT                         78 I.U/L                    ( 3 - 50 )
[bgcolor=#ffffff]SGPT (ALT )                       100 I.U/L                    ( 0 - 55 )[/bgcolor]
ALKALINE PHOSPHATASE     192 I.U/L                  ( 28 - 124 )


QUANTITATIVE HCV PCR [ Final Report ]
HCV RNA is less than 2000 copies/ml .

HCV RNA GENOTYPING [final report]
test sample  is negative for HCV RNA genotype.

wat does it mean's ?? ... plz  xplain this in details .... another question , does age factor effect's on the test results ??? as they placed my age wrong on Reports and the request slip ( they mentioned 27 years and i m 23 years old )

Note : for both ( Quantitative HCV PCR and HCV  genotyping ) blood sample was givven on the same date 08-Jan-2010

_____
Umair

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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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