Singapore Scientific Programme Schedule

  • 156 Replies
  • 126626 Views
*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: Singapore Scientific Programme Schedule
« Reply #105 on: October 21, 2008, 10:36:49 AM »
Hi Mariam

When hemolysis occurs (the breaking of the red blood cells ), there is a waste that comes out of this process called bilirubin. Bilirubin is the reason that non transfused thal  have jaundice (their skin, the white of the eyes, all body fluids like urine becomes yellow in colour). Excess of bilirubin may cause stones to build in the gall bladder.

From my knowledge, transfused thal and especially who have frequent transfusions don't have a high rate of bilirubin since they are maintaing a high HB?

Please Andy advice
manal

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #106 on: October 21, 2008, 10:42:15 AM »
 ??? ??? ??? ??? ??? ??? ??? ??? ??? ???
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline poo gill

  • ***
  • 247
  • Gender: Female
Re: Singapore Scientific Programme Schedule
« Reply #107 on: October 21, 2008, 10:57:04 AM »
dont worry dearie, prat's bilirubin are always high. it is to do with haemolysis(breaking of cells) in their body. Vishal's bilirubin is also normally on the high side - this is how we know even when we are minors haemolysis is happening to them.

I need to check with someone on Aysam's Bilirubin results. let me study this  for a while. meanwhile you see the pics which manal helped me to upload and njoyyyyyyyyy.

Guys  - finally the pictures are up for viewing, sorry for the delay.

Luv

puja

"We are like angels with just one wing. We can only fly by embracing each other." 

*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: Singapore Scientific Programme Schedule
« Reply #108 on: October 21, 2008, 11:13:46 AM »
Mariam, i really don't intend to scare you and as Puja said intermedias has high bilirubin as my son his total bilirubin is ( 1.8 to 2 ) , so from this came my question. Having aysam transfusing, should result in less bilirubin compared to non transfusing. That is why i am wondering and i think you have to check with the doctors.

By the way Mariam, does Aysam suffer from any other thing or there is another genetic disorder that runs in the family???

manal

*

Offline poo gill

  • ***
  • 247
  • Gender: Female
Re: Singapore Scientific Programme Schedule
« Reply #109 on: October 21, 2008, 11:24:41 AM »
mariam

I checked prat's reports when he was 2.5 years but it only shows that Aysam's alkaline phospates are much lower than Prat. Prat was 333.


normally total bilirubin consists of conjugated and un conjugated. So accroding to the rport which you have enclosed looks like that uncojugated has gone from 2 to 3 that is y total is 5.


I read this on the medical dictionary:

bilirubin
an orange bile pigment produced by the breakdown of heme and reduction of biliverdin; it normally circulates in plasma and is taken up by liver cells and conjugated to form bilirubin diglucuronide, the water-soluble pigment excreted in the bile. Failure of the liver cells to excrete bile, or obstruction of the bile ducts, can cause an increased amount of bilirubin in the body fluids and thus lead to obstructive or regurgitation jaundice.
Another type of jaundice results from excessive destruction of erythrocytes (hemolytic or retention jaundice). The more rapid the destruction of red blood cells and the degradation of hemoglobin, the greater the amount of bilirubin in the body fluids.
Most bilirubin is excreted in the feces. A small amount is excreted in the urine as urobilinogen.
___________________________________________________________________________________

conjugated bilirubin
bilirubin that has been conjugated, mainly to glucuronic acid, in the liver and gives a direct result to the van den bergh test. High blood levels indicate obstructive or hepatocellular origin of the jaundice.



Bilirubin
A pigment produced by the liver that is excreted in bile which causes a yellow discoloration of the skin and eyes when it accumulates in those organs. Bilirubin levels can be measured by blood tests, and are most often elevated in patients with liver disease or a blockage to bile flow.

unconjugated bilirubin
bilirubin that has not been conjugated in the liver. It gives an indirect reaction to the van den bergh test. A high level of it in the blood is indicative of hemolysis or a lack of bilirubin clearance by the liver. Called also free bilirubin.
 
___________________________________________________________________________________________
I dont understand  these values at all as I dont have any reference.
                                      
 
alanine txaminase   58 H                             134
 
gamma-gluttxferase  14                           16
 
 

What did the doctor tell you for this report. Is he looking jaundiced????????????  manal do u understand the above 2 terms.
"We are like angels with just one wing. We can only fly by embracing each other." 

*

Offline poo gill

  • ***
  • 247
  • Gender: Female
Re: Singapore Scientific Programme Schedule
« Reply #110 on: October 21, 2008, 11:51:26 AM »
Manal

Prat's biliunbin  was 2.5 but not 5.  5 is double. I think it is very high. I just called Mariam she spoke to the Doctor and Doctore said that I am going away fro 2 weeks when i am back we will do a liver biopsy.
I dunno waht is wrong with her doctors.

Anyways


I am not able to get any references on this:
alanine txaminase   58 H                             134
 
gamma-gluttxferase  14                           16
 
Do u hv any idea?
"We are like angels with just one wing. We can only fly by embracing each other." 

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #111 on: October 21, 2008, 12:14:32 PM »
bilirubin total                                      5                                                         lymphocyte count                  9.2
 
 
 
 
                                                                                                                   c3d T cells                               15.5
 
 
 
bilirubin  (conjugated)                          2
                                                                                                                    CD4  T HEPER SUBSETS            3.22
 
 
                                                                                                                                 
                                                                                                                       PLASMA PROTHROMBIN TIME    15.3
 
           
                                                                                                                APTT          38.6
 
 
 
                                                                                                                  ANTI TTG ANTIBODY                  5*
 
 
aspartate txaminase                          80
 
 
                                                                                                                      VITAMIN C     57
 
                                                                                                   
 
 
alanine txaminase                             134
 
 
gamma-glutxferase                            16
 
 
alkaline phosphastase                      165
 
 
calcium                                              2.48
 
 
magnesium                                           076
 
 
phosphorus                                            181
 
 
glucose                                                      5.1*
 
 
albumin                                           49
 
 
globulin                                              29
 
 
a/g ratio                                              1.69
 
 
 
[/pre]
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #112 on: October 21, 2008, 12:20:56 PM »
hay guys manal and puju i dont know all i know is they dont give a **** 
they tell me nothing and want me to knwo nothing even they have told me never to take aysam to any i read about his some results they all meen high high high eveything is high i am so worried his liver is it to late have they already done damage i dont know  yes he is yellow but more pale to me aoud his eyes black circules and yellow just around his eyes the side they have put up the exjade to 250 ml daily now but i asked if he can come in hostpital and get it down fasster they said that it wont come down faster than it should ? this si not what i was told at the confrence i have a feeling if i do nothing i will lose my son but they just wont listen to me i am going as i told u all in feb to lebaonon only lebaonon now i called told me they cost over $20.0000 a year and no exjade mmm so its a lose lose for me he has to go back to desfral cuz they dosnt give xjade
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #113 on: October 21, 2008, 12:26:29 PM »
llymphocyte count                  9.2

phosphorus                                            181


glucose                       5.1*


albumin                                           49


globulin                                              29


a/g ratio                                              1.69




, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #114 on: October 21, 2008, 12:28:07 PM »
THE RESUTS ARE SHOWING ME ALL H NEXT TO THEM WICH MEENS HIGH AND I HAVE COMPARED ALL THESES FROM OTHER MONTHS ALL IS GOING UP ECH RESULT NOTHING EVER SAYING NORMAL PLEASE SOMENE HELPME EXPLAINE WHAT IS ALL THIS
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #115 on: October 21, 2008, 12:31:11 PM »

EVERYTHING I HAVE WROTE IS ALL SAYING HIGH NEXT TO THE RESULTS SO ALL NOT GOOD HOW HIGH I DONT KNWO WHAT IS THE DAMAGE I ALSO DONT KNWO SOMENE PLZ PUJA MANAL  :wah

bilirubin total                                      5                                                         



c3d T cells                               15.5



bilirubin  (conjugated)                          2


CD4  T HEPER SUBSETS            3.22



PLASMA PROTHROMBIN TIME    15.3


APTT          38.6



ANTI TTG ANTIBODY                  5*


aspartate txaminase                          80


VITAMIN C     57




alanine txaminase                             134


gamma-glutxferase                            16


alkaline phosphastase                      165


calcium                                              2.48


magnesium                                           076

, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #116 on: October 21, 2008, 12:36:01 PM »
even if ilook search online i still dont understand what the other things meen ? i know they all are doing some kind of damage like thsi web site www.liverdooctor.com and many others in one i read the cells in the liver are being attacked when crtin results are high and the liver stops working  and all my two yaer old results are very hgh most of theses results i was told by a nurse should range from 10 to 50 some are way to high his iron now is 3100
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #117 on: October 21, 2008, 12:38:28 PM »
A Typical Liver Function Test
 
Result Unit Reference 
• AP (Alk Phos) U/L (30 to 120)
• GGT (Gamma GT) U/L (5 to 35)
• LD Lactate Dehydrogenase U/L (100-225)
• AST (Aspartate aminotransferase) U/L (5 to 45)
• ALT (Alanine aminotransferase) U/L (5 to 45)
• Albumin g/L (38-55)
• Clotting Studies (Prothrombin Time) Seconds (11 to 13.5)
• Total Bilirubin - Normal range is 3 - 18 umol/L (0.174 - 1.04mg/dL).

 
After the result is the laboratory reference range and the units in which the result is expressed eg: U.L
Each laboratory will provide a "reference range" or ‘ normal values' This is the average reading that is deemed a ‘normal' reading for the majority of the population. This will assist the doctor in determining if the patient's results are abnormal.
             
The normal values for liver function tests will vary between men and women, at different times of the day and will change as you get older. Different laboratories may have slightly differing reference ranges.
Liver Enzymes
ALT - (alanine aminotransferase) - was previously called SGPT is more specific for liver damage. The ALT is an enzyme that is produced in the liver cells (hepatocytes) therefore it is more specific for liver disease than some of the other enzymes . It is generally increased in situations where there is damage to the liver cell membranes. All types of liver inflammation can cause raised ALT. Liver inflammation can be caused by fatty infiltration (see fatty liver) some drugs/medications, alcohol, liver and bile duct disease.

AST - (aspartate aminotransferase) which was previously called SGOT.  This is a mitochondrial enzyme that is also present in heart, muscle, kidney and brain therefore it is less specific for liver disease. In many cases of liver inflammation, the ALT and AST activities are elevated roughly in a 1:1 ratio.
AP - (alkaline phosphatase) is elevated in many types of liver disease but also in non-liver related diseases. Alkaline phosphatase is an enzyme, or more precisely a family of related enzymes, that is produced in the bile ducts and sinusoidal membranes of the liver but is also present in many other tissues. An elevation in the level of serum alkaline phosphatase is raised in bile duct blockage from any cause. Therefore raised AP in isolation will generally lead a physician to further investigate this area. Conditions such as Primary Biliary Cirrhosis and Sclerosing Cholangitis will generally show a raised AP. Raised levels may also occur in cirrhosis and liver cancer. Alkaline phosphatase is also produced in bone and blood activity can also be increased in some bone disorders.
GGT - (gamma glutamyl transpeptidase) is often elevated in those who use alcohol or other liver toxic substances to excess. An enzyme produced in many tissues as well as the liver. Like alkaline phosphatase, it may be elevated in the serum of patients with bile duct diseases. Elevations in serum GGT, especially along with elevations in alkaline phosphatase, suggest bile duct disease. Measurement of GGT is an extremely sensitive test, however, and it may be elevated in virtually any liver disease and even sometimes in normal individuals. GGT is also induced by many drugs, including alcohol, therefore often when the AP is normal a raised GGT can often (but not always) indicate alcohol use. Raised GGT can often be seen in cases of fatty liver and also where the patient consumes large amounts of aspartame (artificial sweetener) in diet drinks for example.
Bilirubin is the major breakdown product that results from the destruction of old red blood cells (as well as some other sources). It is removed from the blood by the liver, chemically modified by a process call conjugation, secreted into the bile, passed into the intestine and to some extent reabsorbed from the intestine. It is basically the pigment that gives faeces its brown colour.

Bilirubin concentrations are elevated in the blood either by increased production, decreased uptake by the liver, decreased conjugation, decreased secretion from the liver or blockage of the bile ducts.
 
In cases of increased production, decreased liver uptake or decreased conjugation, the unconjugated or so-called indirect bilirubin will be primarily elevated.
In cases of decreased secretion from the liver or bile duct obstruction, the conjugated or so-called direct bilirubin will be primarily elevated.
             
Many different liver diseases, as well as conditions other than liver diseases (e. g. increased production by enhanced red blood cell destruction), can cause the serum bilirubin concentration to be elevated. Most adult acquired liver diseases cause impairment in bilirubin secretion from liver cells that cause the direct bilirubin to be elevated in the blood. In chronic, acquired liver diseases, the serum bilirubin concentration is usually normal until a significant amount of liver damage has occurred and cirrhosis is present. In acute liver disease, the bilirubin is usually increased relative to the severity of the acute process. In bile duct obstruction, or diseases of the bile ducts such as primary biliary cirrhosis or sclerosing cholangitis, the alkaline phosphatase and GGT activities are often elevated along with the direct bilirubin concentration. (See Gilbert's Syndrome)
Albumin - Albumin is the major protein that circulates in the bloodstream. As it is made by the liver and secreted into the blood it is a sensitive marker and a valuable guide to the severity of liver disease.
Low serum albumin concentrations indicate the liver is not synthesizing the protein and is therefore not functioning properly. The serum albumin concentration is usually normal in chronic liver diseases until cirrhosis and significant liver damage is present. There are many other proteins synthesized by the liver however the albumin is easily, reliably and inexpensively measured.
Platelet count - Platelets are cells that form the primary mechanism in blood clots. They're also the smallest of blood cells. They are derived from the bone marrow from the larger cells known as megakaryocytes. Individuals with liver disease develop a large spleen. As this process occurs, platelets are trapped within the sinusoids (small pathways within the spleen) of the spleen. While the trapping of platelets is a normal function for the spleen, in liver disease it becomes exaggerated because of the enlarged spleen (splenomegaly). Subsequently, the platelet count may become diminished.

Prothrombin time (Clotting Studies) The prothrombin time is tested to evaluate disorders of blood clotting, usually bleeding. It is a broad screening test for many types of bleeding disorders. When the liver is damaged it may fail to produce blood clotting factors.
How do the liver cell membranes get damaged in the first place?
Inflammation is a common cause of damage to the delicate liver cell membranes.  Liver inflammation is medically termed hepatitis (hepato = liver, itis = inflammation).
This has many different causes including long term alcohol excess, some medications such as long term antibiotics, cholesterol lowering medications and pain killers, oral synthetic hormone replacement, viral infections of the liver such as hepatitis A, B & C, auto-immune hepatitis, hemachromatosis, primary biliary cirrhosis, exposure to toxic chemicals such as insecticides & pesticides & organic solvents & incorrect diet.
Fatty liver can cause raised Liver Function Test results
One of the most common causes of liver inflammation is fatty liver (see section on Fatty Liver).  Fatty liver is also known as NASH, which stands for Non- Alcoholic Steatorrhoeic Hepatosis. It is very common in overweight persons, over the age of 30 who have had a long term poor diet high in processed foods, sugar, saturated fat and dairy products.
             
Generally an ultrasound of the abdominal area should also be performed. Many cases of fatty liver can be picked up this way. The ultrasound will detect areas ‘of increased echogenicity' meaning that the liver tissue is beginning to become infused with fat.
What can be done to lower the readings?
In my medical practice where I do a lot of routine blood tests for hormone levels and liver function in overweight patients, I often find slight elevations in liver enzymes which signifies mild impairment of liver function and slight liver damage. This can easily be reversed with "The Liver Cleansing Diet" principles and specific dietary supplements.  I have found that it is very difficult for many of my overweight patients to lose weight even though they may be eating only normal amounts, unless I first improve their liver function. Once they are five to six weeks into the "Liver Cleansing Diet" their liver-function tests are usually back to normal and the process of weight loss takes on increased momentum. Yes, the liver is the strategic organ for those who have found it very difficult to lose weight or simply just to maintain a healthy weight as they get older.
TESTS FOR LIVER DISEASE
If you suspect that your liver is not working properly or may be diseased, ask your doctor to check your liver. The liver can be seen with various imaging techniques, such as ultrasound scanning or CAT scanning, which are done by a radiologist. An ultrasound scan of the upper abdomen will show the size and shape of the liver, gallbladder, spleen, and pancreas. CAT scanning is used to check for cancer or tumors of the liver.
             
Blood tests can check levels of serum bilirubin and bile acids, which may be elevated in certain types of liver and gallbladder disease. If the bilirubin is too high you may also notice that your bowel actions are very pale and that your urine is a darker color because bilirubin is diverted from the bowels to the urine.
             
When diagnosing liver disease, often, but not always the most used test in each disease is generally:
 
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

*

Offline poo gill

  • ***
  • 247
  • Gender: Female
Re: Singapore Scientific Programme Schedule
« Reply #118 on: October 21, 2008, 12:39:31 PM »
Mariam please dont think negative.

Honestly I saw the report but I am not able to understnd anything. We need a doctor here.


You email  this report to Dr Ali and tell him that they are saying that we will do a liver biopsy after 2 weeks, is it safe to wait.. Also tell him about what they said about the iron  - cannot come down so fast. Lets get his opinion.

His email address is ataher@aub.eu.lb

But your scanned copy is a bit small, can u scan a bit bigger and then email him.  Email the reports to Andy also.
Andy - where are you? Please look into this
"We are like angels with just one wing. We can only fly by embracing each other." 

*

Offline aysam

  • AYSAM
  • ***
  • 129
  • Gender: Male
  • my litrtle man
Re: Singapore Scientific Programme Schedule
« Reply #119 on: October 21, 2008, 12:42:49 PM »
puja i sis babe i emailed him lol 20 times no response  but babe i sent a copy of aweb site liver doctor i dunno if u can even understand this  thanx so much talking to u has calm me down i swear i love u all u esp cuz u care for me and my son
, MY LITTLE MAN ,
I MEET A BOY EVER SO SWEET THERE HE TOOK MY HEART FROM NOW HE WANTS TO SET IT FREE
       I WENT HOME TO CRY ON MY BED MY FATHER CAME IN TO FIND ME DEAD
HE FOUND A LETTER IT SAID
 (DIG MY GRAVE DIG IT DEEP ON THE STONE UP ABOVE TELL THE WORLD I DIED FOR LOVE )

 

SMF spam blocked by CleanTalk