story of my visit

Hi :
here is all that i discussed to my doctor about my reports ...

My doctor was realy happy to see my reports … she said that you are looking good ..your reports r realy good ..i m glad to see your progress .. its nice to see that now your are taking care of your self on your own desires .. its good.. I still remember that time when you came here for the very first time … you are one the patients who I remember in both ways ( by name and by face bcoze u had a long tough struggle behind it) .. your looking changed completely ( well I was in traditional shalwaar kameez which I started to  wear  again after 5 years and it was 1st time I went to visit her clinic in shalwaar kameez ) …you started to care of your self n& now you will see more dramatic changes very soon …..

She re-administrated the dose of Ferriprox  8 tablets a doy instead of 9 … desferal 3 times in week to 2 times in a week … and ssaid that when your ferritin will reach to 1000 I will change your medicine to another … I said  Mam you will start Asunra … she said yes …

Then I said that I want to ask some questions about some other medicine ..

As I said somewhere in my posts that she is a well known doctor and she also know about the herbal medicines as she once sugesst’s a herbal tea for me to cure from Cold & Cough … and that recipe of making herbal tea realy works superb to cure from cough & cold ….

She knew abt these medicines and gave me permission to start some and IP6 is one of them…..as it is made of rice bran that is also good in diabetes …
She told me to controle pre-dinner BSL ... soo 2 more units of insulin added in my morning dose..

Soo… it was the story of those 6 hours … it was a realy a suddenly programmed storming visit ….

Take care
Bye

Umair,

That sounds like a great visit.  I am glad to hear that you are doing well and that you are taking care of yourself. 
I think that you will like Exjade, my son seems to be doing well on it so far. 

Dr. Vichinsky was very encouraging about the use of IP6 he was confident that IP6 played a role in protecting my son from damage during the time that he had iron overload.  He said that he is working on a study to regarding the effects of antioxidant (such as IP6) treatment in preventing iron related issues.  IP6 and other antioxidants bind free iron and prevent it from causing oxidative damage in the body. 

I think you are doing a great job Umair, keep it up! 

Sharmin

hi Sis :
yes, i m realy excited to hear that ,she is looking to start Exjade ... i m waiting for that time ... i will try my best to get my S.Ferritin, under 1000 before november .. i think its alot but  it need a super attention .. i will try my best ... other thing i forgot to say that ... she told to my parents that ,"your son is now keeping his interest in his Health and treatment, and he is now understanding his condition as well as he is asking abt new medicines " ....
onething to add here .. that is a little change in treatment ....

for Liver & Hep-B she adviced Lamivudine Tablets for me ...
and reducing the dose of Spironolactone 100mg(half tablet) to 25mg

Lets see what happened ,, i hope that i will achieve my goal in my estimated time ....

Take Care
Umair

Wishing you all the best for the future.

Your health is your own hands. You have to protect the gift of life.

Take care, Always!

Thanx buddy ,
keep wishing like this ..
keep encouraging like this..
keep pushling me forward like this ..
thats is the key of my success

soo plz keep doing it ..

take care
umair

HI buddies :
last time ,i forgot to mention onething , this is.
when i asked to my Dr about to take the Vit-C supllement durig chelation , first she told its OK you can then
she said : i think its not necessory as your ferritin is coming down without using this .. then she said : you may eat an Orange or drink lemo or orange juice ...
then suddenly she said, especialy try GUAVA ,tha can fullfill exact need of Vit-C dose, you can take( Guava can replace Vit-C suplement )...
i was a little disapointed  about this decision to not to give my Vit-C , after i reached back to home , i decided to search on internet  about rich Vit-C fruits and vegetables ....

Guavas, common, raw  (1)
New Search
Refuse: 22%  (Skin)
Scientific Name:  Psidium guajava
NDB No: 09139 (Nutrient values and weights are for edible portion)

-------
Proximates                   unit                     Nutrient  Units  1 X 1 fruit, without refuse 55g 
Water                               g                                44.44
Energy                              kcal                              37
Energy                              kj                                157
Protein                              g                                1.40
Total lipid (fat)                    g                               0.52
Ash                                   g                                0.76
Minerals  
Calcium, Ca                        mg                               10
Iron, Fe                            mg                              0.14
Magnesium, Mg                  mg                               12
Phosphorus, P                   mg                               22
Potassium, K                      mg                              229
Sodium, Na                       mg                              1
Zinc, Zn                           mg                            0.13
Copper, Cu                      mg                            0.127
Manganese, Mn                mg                            0.083
Selenium, Se                    mcg                               0.3
Vitamins 

Vitamin C, total
ascorbic acid                    mg                 125.6

Thiamin                           mg                      0.037
Riboflavin                         mg                      0.022
Niacin                              mg                      0.596
Pantothenic acid               mg                      0.248
Vitamin B-6                       mg                      0.060
Folate, total                       mcg                      27
Folic acid                           mcg                      0
Folate, food                       mcg                      27
Folate, DFE                        mcg_DFE                27
Choline, total                      mg                      4.2
Vitamin A, IU                      IU                        343
Vitamin A, RAE                    mcg_RAE              17
Vitamin E (alpha-tocopherol)  mg                      0.40
Vitamin E, added                  mg                      0.00
Vitamin K (phylloquinone)       mcg                      1.4

Note : orange is on first place with 136mg of Vit-C total acorbic acid

soo .. Abstract is :  Orange and Guava may fill daily need of Vit-C of a thal .. and may replace the Vit-C tablet from routine dose ....

What do you say Andy ?... your comments mean's alot for me  ... soo have your say to guide me please ....


For complete netrient report :
http://www.nal.usda.gov/fnic/foodcomp/search/          and  then right guava in search field .. on next screen select Guava, commow, raw..... then press submit button .........

wat do u say , this info deserve to take place in this forum or  its unwanted information so that, i have to delete this post .

Umair,

Since thals can't take a lot of vitamin C it is fairly easy to get the daily requirement through diet and in fact, a fruit like guava is loaded with vitamins and minerals, so it adds a lot that you don't get from taking only vitamin C. My only suggestion is that on days when you don't get adequate C from your diet, do take a supplement. Vitamin C moves quickly through the body and needs to be replenished regularly, ideally every 12 hours, so you always need to make sure you have a source on a daily basis. If you make a point of eating C rich foods daily, you may not need to supplement at all. It is also best to eat the C fruits as snacks in between meals so it doesn't add to iron absorption from your meals.

By the way Umair, your doctor has been giving you some very good advice lately, so do listen to her. She is very happy to see someone work so hard to improve his health. 

If you are getting the required amount of a particular vitamin from a fruit then it is better to stick with it instead of taking that vitamin in pill form; because you will get other vitamins and nutrients from that fruit too.

thank you buddies :
definately i will eat Guava as  you sugested ... both you are soo helping and caring ... thank you for the response ...
@andy , there is a big role behind my succes to controle my ferritin .... you're a moral booster buddy ...thanx for the being around me throughout this summer to help me out of this dangerous ferritin level... you made me thinking about my self ... you teached ,how to make your own notes before visiting to doctor .. you helped me to find the fine suplements to ask about those suplements to my doctor.. otherwise it was completely impossible for me , to do this on my own .... thank you buddy for your uncoonditional support ...



@ sajid
thanx buddy for helping me and guiding me time to time .. and guiding me and helping me finding answers for my questions and concerns ... thank you buddy  .... its not end here,you have to more suffer me ... hahahha i m not gona leave you buddies ...  :D

best regards
Take care
Umair

Hi nice friend

It is really nice to see that you are taking care of yourself.  You should keep it up.  You have a very caring doctor, you are a lucky guy.wish you the very best,

jade

Hi Jade ;
thank you for the warm wishes ...
about my doctor , Yes , she is very caring and helping... i still remember the days when i was very ill, i was unable to even change my possition while sitting on bed  ( even my senses were disabled )...  when i first time visited her clinic , she wrote a TO BE ADMITED on my prescription and sent me immediately admitted to the hospital , it was late night 9;30 pm .. her routine was to went sttraight to her home after clinic but she came to visit hospital to see me and gave instreatment instruction again to all on duty doctors and told them to look forward carefuly.  i went there as a normal person . i m still normal person nothing special in me ..
i wasn't soo special ( before that i wasnt her patient and she dont knew me before that ) .. it is her kindness and habbit to care for her patients ... after that she visited several times ... and it is becoze of her special attention that i m here and talking to you ... when i was not regular with the chelation and my ferritin was abt 13000 she told me several time " Son its not good , see from where you're coming to which situation you came out ...  and now you're talking abt to give up .. take care of your self "
now everything seems  O.K  ... everything is smooth and fine .... and i m enjoying myself ... and teasing the other members of thalpal   ..  i want to assure you i will keep teasing you people hahahhahah .... i m not going to be a decent boy , here on thal pal .... thals now you have to suffer with thal and then suffer me as welll  ..... it was Just for laugh  ( wat a bad joke it was )

Best regards
take care
Umair

of thalpal   ..  i want to assure you i will keep teasing you people hahahhahah .... i m not going to be a decent boy , here on thal pal .... thals now you have to suffer with thal and then suffer me as welll  ..... it was Just for laugh  ( wat a bad joke it was )

Best regards
take care
Umair

If you do this you won't be grant  the prize of Higher Rank in Heaven or you risks
 causing the feeble heart  to stop ,  funny
Kathy

If you do this you won't be grant  the prize of Higher Rank in Heaven or you risks
 causing the feeble heart  to stop

Hi kathy :
God made me thal ... you know why ??... its mean he gave me permision to do anything wrong in the world ...
and my balance of insane will remain zero .it is not gona increase ... i m forgiven person bcoze of my suffering   ..hahha soo be prepared to suffer to my posts ..

 About a feeble heart . i just want to say that here is no one with a feeble heart   (diseas ). age doesn't matter your heart is young kathy , still young to fight against thalassemia , and onething , you are using internet and chating to other peoples around the world , i think its a medium of young generation  ( to this point of view you dont have a feeble heart ) ...

all that i have mentioned above   is to assure you that  ... i m not gona stop my self to do that ,wat i mentioned in my last Post ...  Be aware hahhha...

Best Regard
Take Care
umair

14 November 2008
in my this vist, when i reached her clinic there was no patient in waiting room , and she was free, and was in an-other room of her Friend and classmate (mayb) doctor Dr.Yasmin Rashid , bcoze she was free at the moment ,soo when she came back to his room,  i asked several questions to my doctor and took long time of her , as she was free , also keen to know wat i have to ask abt this time ... i asked her about Ferriscan as well , and she told me that , she met to the officials of ferriscan a couple of months ago , when they came to visit Pakistan , she told me that No single MRI Facility meet the requirements of that software which they have ( Ferriscan's Software ) .. i asked even Aga Khan as well ?? .. she replied "Yes , even Aga khan's MRi facility not meet's the requirement of that software " ..... wow is it not that great .. i hope that its solution wil come from Banglore, Inda ( The City of IT ) , they will develop this software and minimize its requirements as they did with Exjade ..... i m just kidding i dont to hurt or offed anyone plz take it lightly .... and ignore it if you dont like it.. i dont mean anything else, its a hope only , HOPE DIE'S IN THE END ( you may also read this quote like this " hope die's , aand the end " ) ...
anyways , we're talking abt my visit , many other topics of that visit has been discussed like, liver ,treatment plan , ferriprox and all ,... i asked her to sugest some new supplements for me bcoze its soo boring o take the same supplement for a long time , i want to change the tast :P ... she said , to the 1st i left it on ur choice ,as i mentioned the vitamins and minerals and a few names of  the supplements to which you may select one ... then i asked , soo may i change it on my own   . yeah , you should there are many supplements there and then she prescripted few names  and said you may take one of these Osnate or Chewcal (actuly i asked abt to change vit-D supplement)...... she said me that , why dont you try to make a group of thal of your city ??... ur progress is good u may convinve them for good care , i said i m doing and making non-thals & thal friends in my thal , i m convincing them to take care , i said the that , if they won't to take care of their selves ,then care of your selves for your parents ... then i asked her abt two of my friend (to whom i sugeest to have a visit of my doctor's clinic and the did that) , she said many patients come from my ciity and i know the few patients with the name u r asking abt .... then i asked several things i will update when i got remember those questions and answers ..

Umair

23-january-2009
Hi buddies , here is an update on my visit .....
today i went to lahore to meet my doctor , she told me to contineu with Ferriprox and Desferal , she asked me how many desferals a week i m using for chelation ??...  she prescripted me last time for 6 desferal a week .. 3+3= 6 .. .but i was using 12 in 10 days between transfusions .. and when she saw the results she prescripted me 12 again .... welll trying hard to get super fine results but back to back prbos are coming like hurdles ////.... like , my doc plans are for the treatment ,
first she wanted to clear the Hep-B and for that reason Zeffix weere prescripted for me , after that she want my Ferritin under 1000 soo we bcome able to star controling Hep-C ( Pegas Interferon ) , i showed my acceptence to start with interferon as well ( lets see i can bear with pain or not i will try my best to bear with it , or i think mayb she will change her treatment plan over this prob ) after clearing up Hep-C mayb then i will be able to star Asunra ,..... i cant predict wat will be her nex advice as she has prescripted some liver test  , i think then she wll review her plan ... till then no worries .... i have 100% confidence on her treatment soo i m not gonna run away to the treatment she want to start .... i recieved my LFT reports i will let you know veery soon . ..tommorow is my TX date soo i m shorting up my reply .... i m still hope to get ride over the complications that i m facing , and i hope that i will INSH-ALLAH ( "If it is God's will" ) get ride over it all ...
My Doc Liked the OsteoCare and its formula , soo she gave me green signal to use osteocare ...
she prescripted me Surbex-T ( a water soluble multi-vitamins film coated pils ) but only when i start chelation with Pump ....


TAKE CAREs
Umair