Thanks Sharmin and Kathy,
For understanding,i believe we all are going through the same situation,grief is overwhelming,i can't stop thinking about him,he was trying very hard to get his ferritin levels low,but unfortunately couldn't take ferriprox due to his WBC levels,i think if he could have taken ferriprox,situation might have been different.As we saw in umair's case how combination therapy helped him.
What we have to understand is that we have lost our dearest friend to iron overload,i know this overload was because of thalassemia,but we have members elder then Sajid on this forum,and in Sajid's case we can't even say he wasn't being compliant,Umair told me that he was doing desferal 6 nights a week.
He was a very strong person and held his self respect very high,never ready to accept help,when i sent him desferal,he never gave me his home address because he didn't want me to dend him desferal although he was short of desferal those days,i sent the package with his name on it to his thal centre and then just informed him.
Unfortunately,finances are a big problem in our country,managing a thal child can be very expensive,if you are managing him/her in the real sense,what with good treatment centres to ensure that you are getting properly screened blood,getting proper medicine with exact doses for chelation,along with the supplements that can help a thal child.
I belong to the so called upper middle class family,but i have help in managing my daughter's supplements atleast,from kind friends i got to know through this site,and my father,who helped me in getting wheat grass and carao,IP6 was provided by another kind friend.
How those parents must feel who have no means to get there kids even chelating drugs?I am thinking about tracking such patients and try to get help for them.It would be a difficult task considering i have two kids ,am a full time mom and have all doemstic responsibilities,but i think i can take my first step then Allah will definitely help me in my cause.
Zaini.