Just wondering how Umair is doing and if anyone has heard from him

Hi Sharmin Sis,
Thanx for your Encouragement ,  but its not gona end yet after getting down Ferritin below 1000 ,. i got to know my doc's plan and that is to start Hep-C treatment bcoze i cant be a candidate for Asunra (AKA Exjade) untill my liver shows improvements , i m trying to recall but not 100% sure wat was my questio it was
Can i start Asunra  if my LFTs comes to normal ranges only wiith medicines (without Hep-C treatment) ??, or it was , Can i start Asunra yet ??,   she replied that my ALT is high, so "No" , exactly wat i want to say is after getting S.Fe below 1000 she will start interferon therapy bcoze  she said i have both viruses (Hep-B & C) soo i think in her point of view there's only 1 choice in treatment book for me ... she said to contineu desferal as long i can  bcoze it is the only chelating drug that i can use to take during Peg-Interferon Therapy , and during therapy , bcoze of decrease of Hb again and again i wil have to take Tx very frequantly, soo definitely iron will increase as well ... and that is more dis-hearting , it took almost 1 year to get on this stage and  i m seeing the chances of getting back to iron overload in future .. but, i dont have any other choice and as i have both viruses it couldn't be controled with medicine , as i complete Lamuvidine's course of 3 months  to controle Hep-B viruses its better than it was  before starting that treatment but its not completely sweept out ..... sooo i dont know wat i m gone go through in soon future .... i started chelation to be fine and healthy to join my Father at bussiness ( to get a reason to come out to home as my father said me to join for a few 1-2 hours a day to refresh my mind, it is the oly activity option that i have on daily basis to go out of home for time pass ) but it has been 15 months to that i m still in progress to join ... and now 6 months more to wait for ..... anyways , its the part of life ... soo , leave it ..

Best Regards for all you people l.
Take Care
Umair

                         

Zaini.

Bravo, Umair! You've done great in the last few days with DFO!

Today, I'm trying a little less than 2.5g mixed in 20ml over 20hrs SubQ. Let's see if additional dilution and longer infusion time helps with the irritation around the site...

@ Zaini ;
Thank you , for the encouragement , its mean alot for me , Thanx alot ....

@ SF ,
Thanx GOD its only bravo not Johny BRavo ahhahaha ....  Thank you for encouragment , yes you can also do it , 2.5 is good dose , my doc prescripted me 2g in my last visit i told her that i m on 2g dose since last febraury and never got any reaction , she smiled and replied but its the fine dose for your according to your weight but yeah today i m gona try 2.5g ahhahaha ...
yeah, longerinfusion time and  additional water will definitely help you to get ride ove irritation and cyst like lumps , as once i asked to my doc that can i take 3 vial in 10 or 12ml water? , she replied " No it will make solution a little thicker and thick solution will take time to penitrate and till then that will remain at site of infusion like cyst , and it could be irritating and painy experience for you ... BEST OF LUCK for chelation and new changes that you r gonna try in your chelatio plan ...
===================

Best Regards
Take Care
Umair

Hi buddies ,
hurrrraayeee , yep another wound , tis time i was openeing a syrup's seal and that was made of tin like steeled seal , that cutted my thumb's upper area very deeply and bottom are slightly ... upper area was as deep as i tried to clean that with spirit and tried alot but cant clean the cut  tha is very deep , yup i cant use my thumb anymore and its my right hand , just thinking how i will take my meals ( spice will hurt it more ) eyyyyyyyyyy , very frustrating , i m consistantly getting hurts wounds and etc etc ....    dont know wat to do to avoid getting hurted ...

Best Regards
Take Care
Umair

Get some quality sleep, nice and long... 

that happened just before dinner when i was opening up the syrup i have to take before meal , and its second time when that syrup's seal marked a couple of cutts on my thumb , i dont kno how that happen's but  .......... awe both time the cut were very deep .... , yeah i think i have to sleep for a little long to get out of frustration , ......  it wil be settle down soon , i hope ....

Umair

Due all those infusions in my hand/arms I became both handed. I can't only not write with right. Umair, I suggest you are going to do what SF told you to do! 

Si, I will rest in the car tomorrow morning.  I got my luggage packed, dad can bring it downstairs. It is pretty heavy, but I got the bed stuff and towels. Oh jee, I forgot my pyjama...  Now I must do my hand bagage. (Oho, forgot my calcium/folic acid...)
I am searching for a present I get. It's a cd of the tape we had for many, many years. I will search for some songs when I am back and share them with you. They are funny and neat songs.

Btw I have for many, many years infusions in my feet!!! Why? My wanted to keep the veins in arms/hands alive a bit longer.

Ok, I will tidy up the house and don't annoy you any longer.

As for your cut. You don't need stitches?

 

Umair,

I am sorry to hear about that,but remember when opening such syrup bottles,you should put a piece of fabric on the cap,that way it won't hurt you.

Zaini.

Dore,
Thanx for your concerns and sugestion , ... i m here again to spend a few minutes by sittting bcoze i just ate Nigella with honey and now ii have to sit for a few minutes , after that iw ill be sleeping again  ...  hey , where did you got this words of Urdu ( oh jee ) good attempt ....

Best of luck for your vacation/holidays and dont forget your medicine ... making a list of things that you hae to take with you will be better to not forget anything ...

As for your cut. You don't need stitches?

noop , although its a deep cut but its not long and opened to get stiches on it ... i hope it will heal soon ... i was frustrated coze these things are happening to to me time-to-time ,...
almost 8-10 days ago, when i was on IV desfferal,  i was filling ( or mxing ) insulin  , insulin syringe slipped to my hand and i dont know how that pricked i my left hand,  that hurt's soo badly  and hanging at my left hand when i was taking out the swab to put on the accidently poked site .. that bleed  fastly as well but bleeding stopped soon ....
after that, 3 days ago i was making desferal to replace the empty sryinge and during that 10ml syringe's needle struck badly in my left hand smallest finger , that start bleeding but controle earlier .. both accidential pricked sites are still aching and then now right hand ... this is soo frustrating na ..... and then  slipping scene , ....
all this is very frustrating and happening cosistantly to me  ...

Best Regards ( i need )
Take Care
Umair

Zaini Sis ,
Thank you sis for a good sugestion , i usually follow this but last night i was in hurry to join my family on dinner table that's why i forgot to follow this precautive measure .. once again Thanx sis , i will keep it in my mind for next time, when open the seals of my medicine   ,.. Good sugestion Thank you sis ...

Best Regards
Umair

Umair,

I am sorry to hear that you have had another incident.  I hope that it heals very soon.  I think Zaini's suggestion is a good one and that it should help you to avoid such injuries in the future. 

Take care,

Sharmin

Sharmin,
Thanx for the regards
dont feel sorry for this all, its a part of life ( i think ) injuries make's the man perfect ( instead of practice ) hehehhehe  i think this is why i m geting injuries time to time  , to learn the lessons ( that how i can prevent these injuries ) hahaha .. yeah, definately, i will follow zaini's sugestion , that is super one ....

Best Regards
Umair

Hi ALL ,

Latest CBC Report 17 March 2009
Test                                              Normal range                                                   Result   
[Hemoglobin Haematocrit]
Hemoglobin                                      13.7 - 16.3 ng/ ml                                9.5gm/dl
Haematocrit                                      41.9 - 48.7 ng/ ml                                28% ng/m

CBC
RBC                                                    4.5 - 6.5                                  3.24 10E12/L
MCV                                                   76 - 96                                             89.2 FL
MCH                                                   26 - 32                                             29.4 PG
MCHC                                                  32 - 36                                             33.0 %

WBC                                                   4 - 10                                     13.0 x10E9/L
Neutrophils                                          40 - 75                                             40 %
Lyphocytes                                         20 - 45                                              50 %
Eosinophils                                          1  -  6                                               02 %
Monocytes                                         2 - 10                                                08 %
Basophils                                            0 - 1                                                 00 %
Platelets                                           150 - 400                                        810 x10E9/L

Latest CBC Report 25 April 2009
Test                                              Normal range                                                   Result   
[Hemoglobin Haematocrit]
Hemoglobin                                      13.7 - 16.3 ng/ ml                                9.5gm/dl
Haematocrit                                      41.9 - 48.7 ng/ ml                                29% ng/m

CBC
RBC                                                    4.5 - 6.5                                  3.35 10E12/L
MCV                                                   76 - 96                                             86.2 FL
MCH                                                   26 - 32                                             28.4 PG
MCHC                                                  32 - 36                                             32.7 %

WBC                                                   4 - 10                                     19.1 x10E9/L
Neutrophils                                          40 - 75                                             40 %
Lyphocytes                                         20 - 45                                              50 %
Eosinophils                                          1  -  6                                               02 %
Monocytes                                         2 - 10                                                08 %
Basophils                                            0 - 1                                                 00 %
Platelets                                           150 - 400                                        759 x10E9/L

wat does it show's ?? ....
i m worried about remarks they wrote "Lymphocytosis" ..... Andy and all otehr please interprate this CBC report ...

Take Care
Umair

Umair,

As far as I know, Lymphocytosis indicates an increased proportion of lymphocytes in the blood.  Yours do not seem to be highly elevated.  As far as I know, having a higher number of lymphocytes in the body is not a problem itself, but if highly elevated it may be indicative of another problem - such as infection or illness.  Again, I don't think that your levels are that highly elevated - has your doctor commented on this number?  What do Andy and the others think?

Sharmin