Singapore Conference Report

I just want to check in and give a short report on the first day of he conference. The previous issue has been resolved and we are attending what we want/need to see. One thing I will be stressing even more, if possible, is the role of antioxidants in combating the damaging effects of iron in the cells. Studies have shown there is no doubt at all that antioxidants play a big role in maintaining the health of thalassemics. Vitamin E should be taken in a dosage of at least 600 IU daily. 1000 IU is a safe and effective dose for thals. I will be taking more about this in the future. Do not underestimate what you can do for yourself by taking safe, natural supplements.

Hi Andy ,
Thanx buddy for the F.I.R ( First Instalment of Report ) ......
i hope that you will get more usefull information for us all ... thanx again buddy .
you're doing alot for us .. take care of your self as well buddy .... wish that you have a good time theree ...

Best Regards
Take Care
Umair

Andy,

Thank you for the report.  I'm also glad that you are having access to the information you require. Is sounds like a good day at the conference.  That is wonderful news, to know that they are stressing the use of vitamin supplements - because as you have said - this is
something we can do for ourselves.  I am looking forward to hearing what else you learn!

Thank you,

Sharmin

So relieved to know you are there and getting the latest information for the members.

Regards.

Things opened up so everyone can go where they wish. I wondered how they would police the chaos and it proved impossible. Ironically, one book available at the conference is a book produced by TIF, solely about patient rights. I didn't realize that the patient rights I take for granted are not to be found in some countries. This has to change. Patients need to be aware that they do have a right to be informed and to decide for themselves, every aspect of their care. Nothing less can be accepted.

Wow,1000 I.U of vitamin E for thals of any age?

Zaini.

Zaini,

I would suggest 400-500 IU vitamin E daily for a child.

And I want to say hi to Roanna, whose mom I met on day two. She is working at the Iron Warriors booth, which is sponsored by Apo Pharma, the makers of Ferriprox (L1). She is a lovely woman and we had a really nice talk.

Day two was an incredibly productive day for me on several fronts and I think that we finally have some solid answers for our member, Asyam, who I was able to connect to two of the best doctors on earth. I'm doing a lot of hustling to make things happen here, and it is really paying off.

Back to bed. LOL. Woke up to go to the bathroom and you know me...I can't stay away from this group. 

Wishing you guys another good day at the conference!!

Sharmin

good job andy
i hope u can get all the anweres
we need ....
good luck buddy

Thanks a lot Andy 

I am happy that you are happy with the way the things are going on . I started Vitamin E for my daughter ,400 I.U daily.

Zaini.

Hi thalpals in Singapore,

Hope you are having continued success gaining information at the conference.  Andy, has anything been mentioned with regards to mixed chimerism and bone marrow transplants at the conference? 


Sharmin

@Zaini

Can u please tell me the brand name of vitamin e supplement you are giving, as i was looking for them and only found one named Ephynal which is 100 mg USP which sure is not enough for me. Thanks

Hi Andy,
thanks a lot, really sorry that I missed out on the conference as well. Good to know that you managed to meet my mom.
Hope that all is going well in Singapore.
Roanna

Hi Tariq,

I am giving my daughter "Tokosvit",each capsule contains 400 I.U of Vitamin E,i also use it myself,before that i was using evion,but then Andy informed me about the difference in synthetic and natural vitamin E formulas and i noticed that Evion is not natural Vitamin E supplement,so i changed it.Apparently,synthetic vitamin E is not as useful as natural one.

Hope it helps.

Zaini.

Thanks Zaini, really appreciate it. i will look for these capsules first thing tomorrow