Lena,
I agree completely about the problem with organizations and the unpleasant tactics that arise and this is one big reason I have not become involved in any organization. By staying independent, I don't have to ask permission and get approval before doing things like sending needles to patients. I also have no time for the endless meetings and discussions that tend to replace real work. I believe in doing, not talking about doing and this is a big difference.
If I am to join any organization, I have to also remain independent, because to me, the important thing is helping people and not getting bogged down with unrelated issues. Since I live in the US, it was suggested I first join CAF, and actually I would feel more comfortable joining CAF first because I feel it is an org that does more to help individuals than TIF does. TIF also has a big problem with losing sight of what is important as they have their inner battles to deal with. This could change in the future but I am not one who would do that. I just cannot put myself into a position where much of my time is taken by meetings and arguments.
My main reason for joining CAF would be to improve my contacts, but realistically, the org people are not really the most informed when it comes to keeping up on medical advances and general health, so the value might be limited in terms of what I can get out of it. However, being part of an org might help me get the ear of doctors and researchers more easily, so this might be a positive. No matter what, I don't want to lose sight of the things that make our group so unique and so useful.
Lena, I would be very happy if you can give me more advice either in posts or pms.
Thank you so much.