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BABY BORN TO CURE HIS BROTHER

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Offline tsvetag

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #45 on: March 16, 2009, 09:23:39 PM »
Thank you for your prayers and support ,  i am sure that this help a lot,

Dore, the boys are 5 and 12 years old and the donors are their little brothers, the BMTs are in Bulgaria, not in Spain.

I dont  know the case about the rumanian boy and this  case in Netherlands  that you are tolking about,but i hope this families have found some solutions and the children and their families are ok.

 And yes, generaly in Bulgaria and Rumania  the health system is not very good, ( i don´t know much the rumanian health system but i do know the bulgarian) and it can´t offer the same treatment for TM like in other counties, there are problems with the medicine and the necessary doses, but the assotiation and the patients are faithing to change this and hope soon the results be visible.
 

 And thank you  all again  for your prayers, especially now accompaning  the families of the boys in this process

God bless  :hugfriend
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Offline Andy Battaglia

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #46 on: March 16, 2009, 09:26:42 PM »
They have never been in Australia. They are in New Zealand. Ady was a very special friend of Lisa's and I have tried to help with this case for a couple years. I have posted about it before.

http://www.thalassemiapatientsandfriends.com/index.php?topic=726.msg5621#msg5621
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Kathy11

Re: BABY BORN TO CURE HIS BROTHER
« Reply #47 on: March 16, 2009, 11:28:33 PM »
Hi guys,
I live in Australia, and I would like to point out that despite of the stringent immigration  laws,

I pride myself that I also live in a country with a fair Justice system,

Usually when those unfair judgement is set by the immigration department ,the welfare group comes in and advocate ,they  contest , and 99% of the time defendant wins its case, and they stay in the country.Under humanitarian ground.


Having said that , I would also like to point out that the sick and the weak, usually carries no, voting power, therefor in the scheme of things, they, can be overlooked in" any society"
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This is why there are organisations that protects underprivileged  in our society.
Australia are no different from any other country or may be even better than some because  of  there equal opportunity  Laws in Placed.
I hope I have clarify few misunderstand that we might have.
Kathy.

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Offline Dori

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #48 on: March 17, 2009, 11:39:47 AM »
Quote from: Kathy11 on March 16, 2009, 11:28:33 PM
Hi guys,
I live in Australia, and I would like to point out that despite of the stringent immigration  laws,

I pride myself that I also live in a country with a fair Justice system,

Usually when those unfair judgement is set by the immigration department ,the welfare group comes in and advocate ,they  contest , and 99% of the time defendant wins its case, and they stay in the country.Under humanitarian ground.


Having said that , I would also like to point out that the sick and the weak, usually carries no, voting power, therefor in the scheme of things, they, can be overlooked in" any society"
.
This is why there are organisations that protects underprivileged  in our society.
Australia are no different from any other country or may be even better than some because  of  there equal opportunity  Laws in Placed.
I hope I have clarify few misunderstand that we might have.
Kathy.



Did i give you that feeling? I do know a few things about the immigration laws in your country. I am pretty involved in our immigration laws, so I know the rules of this game a bit. And yes, this case could be happening in any part of the world. I think you try me to convince about that? There is no need to convince me about that.

Dore
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Kathy11

Re: BABY BORN TO CURE HIS BROTHER
« Reply #49 on: March 17, 2009, 10:41:08 PM »
Dore.

I was not convincing you or anyone for that matter.I was trying to defend the reputation of my adopted country as a citizen of Australia I have the right to protect my country from" innuendo"

You might know,all,  but I know about loyalty, despite of my ignorance I will not allow any body to be derogative towards any things that I held close to my heart. (My country is one of them)As A matter of fact I wasn't hurt untill you post back and told me you know it all . good luck with this attitude you will get very far,
In the future please refrain yourself from addressing me I shall not interact with you anymore.
I don't come on this forum to get abuse from you ,Each time a person dont get my message they single me out and abuse me I wonder why ??? ??? ??? ??? ???  I start to think that you people bait me for that purpose."Shame".That is not the first time this happen.I am not keeping quiet anymore .I sick of being the forum scapegoat.
I chose this forum because I thought I had some friends and I could have some kind of support with my illness and interaction with people  who has the same kind of issues with thier health .Obviously the likes of you make it impossible.

Kathy

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Offline Sharmin

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #50 on: March 17, 2009, 11:01:48 PM »
Dear friends,

You are both very valuable on this forum.  Dear Kathy, you will always have friends here who care a lot for you.  Your well being is very important to us and your input is always welcome.  Dore, we learn a lot from your knowledge bank and research. 

Sometimes it is very difficult to communicate using a common language - one that is not everyone's first language.  Without facial expression and tone, phrases sometimes appear to be very direct.  Sometimes, it is nearly impossible to predict someone's intent.    My hope is that no one meant any harm or disrespect toward one another.   I also hope that no one is hurt and that we can all continue to support and learn from one another. 

Dear Kathy, I hope that you are feeling well and that your family is also doing well.  Dore, I hope that your studies are going well.  We are all here to bring out the best in one another  :grouphug 

Sharmin


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Offline Manal

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #51 on: March 17, 2009, 11:44:13 PM »
I totally agree with Sharmin and i am very sure that no bad intentions are meant from any side, we all do respect each other. To all my friends accept my sincere respect and love

manal
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Offline Zaini

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #52 on: March 18, 2009, 02:57:06 AM »
Well said Sharmin,

You are totally right that with the language which isn't our first one and just with the writings of each other,it gets hard sometimes to understand what the other person is saying,so please give each other the margin of this.

Kathy,

We have always valued your opinions and i love reading your quotes :) .

Dore,

I love your thirst for knowledge and your frankness :)

Love you all.

Zaini.
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Offline T @ r ! Q

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #53 on: March 18, 2009, 05:13:47 AM »
Fully agree with Sharmin. Most of the time i too need to edit my post in order to make my post say what i meant to say.

I am sure no one here comes and post with any intention of proving his/her knowledge and capabilities.

Cheers!
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Offline Dori

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #54 on: March 18, 2009, 07:46:27 AM »
Kathy,

Now I don't understand it anymore.  :dunno English is not my mother langauge, so I miss the perfection for playing with the words as I have with Dutch. So there must be probably something wrong with the intonation. Most of the time is it good, but my personal situation sticks his nose in it and then I get lost.

And Kathy, you are not the scapegoat!!! I really love to read your posts, especially the ones in your topic about quotes.

Please accept the apologies of this scapepear,

Dore

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Offline nice friend

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #55 on: March 18, 2009, 08:22:47 AM »
Quote
Fully agree with Sharmin. Most of the time i too need to edit my post in order to make my post say what i meant to say
:exactly :agree to Sharmin, Zaini and Tariq .... almost everytime i need to edit my post to make my post or to say wat i meant to say ..... bcoze English isn't my native language ... a few times i love to write a note for the people to understand wat i meant to say and then explain that hehehhehehe .......
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Offline Zaini

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #56 on: March 18, 2009, 08:51:36 AM »
Dore  :hugfriend :hugfriend :hugfriend

Zaini.
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Kathy11

Re: BABY BORN TO CURE HIS BROTHER
« Reply #57 on: March 18, 2009, 10:26:27 AM »
Dear Dore,
I  too. I apologize for my outburst.I think that I have over reacted.
 :flowers :flowers :flowers
This morning I was very upset with myself and I suppose I vent it out on the wrong person.
I  am not feeling well at the current moment. take for example,,,,,,, this morning I burnt my kettle beyond recognition I forgot that I put the kettle on the fire for my morning coffee.

I've been missing  time and  when it happen, I seems to completely forgot about what I'm suppose to be doing ,this frightened me because I feel i'm losing my memory and I dont know how I will manage, I'm here alone with no close relatives other than my sons and they are busy with their lives.

I think the illness is taking its toll on me and it leaves me angry , bitter and very fustrated,
it comes down to I don't like myself and what I'm becoming.

I dont know much, but I'm sorry if I have said stuff that might have hurt anyone.
I know you genuinely care for me, thank-you all for your friendship. :hugfriend :hugfriend :hugfriend

I do care too again I'm sorry.
Kathy
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Offline Zaini

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #58 on: March 18, 2009, 12:03:12 PM »
Kathy  :hugfriend

I am sorry you are not feeling well,but i am sure these small mishaps happen with every one from time to time,you are not loosing your memory  :console.I hope you'll feel better soon. :flowers

Zaini.
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Offline Sharmin

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Re: BABY BORN TO CURE HIS BROTHER
« Reply #59 on: March 18, 2009, 02:51:08 PM »
Dear Dore  :hugfriend :hugfriend :hugfriend

Dear Kathy, I hope that you feel better soon.  Please be patient with yourself, when you are sick the last thing you need is to get angry with yourself.  I know that you are an intelligent and caring woman and you always expect the best from yourself - but we can't always be perfect and that's when we need to take it easy on ourselves.  Even though you don't have family around, I am glad that you have us - so keep posting and keep smiling my friend.  We love you  :hugfriend :hugfriend

Even though English IS my first language and I mess it up sometimes  :dunno - no big deal as long as we know that our heart and intentions were in the right place  :heartpink

Sharmin
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