BABY BORN TO CURE HIS BROTHER

Hi Laura ,
Thanx for the link and for an important update ...  its a ray of hope for thals ...

Best Regards
Take Care
Umair

I am so happy for all the family, I do hope everything continues the best it can be, May God bless them all, thanks Laura for the update

manal

Thanks for an update Laura  i wish this little boy health and happiness.

Zaini.

Muchas Gracias. At wednesday I get my email from MedicalNewsToday so I will look of they report it.

  Yesterday  i was  in the bus going to my work when in the radio i listened the news about Javier and Andres, i was so happy for them and their family and  so i coudn´t hide the emotion and coudn´t   stop the tears of happiness and hope that escaped from my eyes ,and later  called to my country to share the good news with my family.

  Laura, please send the boys and their parents best regards form  me and my family and big embrace
wishing them all the best and  the same for the other families that are in the same situation

   kisses

Hi Laura,

Thank you for sharing this wonderful story.  God bless the boys, I hope that Andres cruises through this procedure and leaves thalassemia behind him forever.  God bless,

Sharmin

Hi all,
please let we  pray for Nasko and Martin-  two boys form Bulgaria that  will have the BMT soon. One  of them has it for tomorrow.
Today I told with my friend in the bulgarian association and she told me that.
 Please i want to ask for your prayers, let the  toughts and prayers of more people are with them and their familys in this moments and  hope everything will be ok.
 
Thank you all

Carini,

I am praying for both boys to have success and to survive this procedure event free.

God bless,

Sharmin

May God bless them and help them and their families in this situation, they are in my prayers

manal

May they leave thalassemia behind in their lives.

Zaini.

Hi all,
please let we  pray for Nasko and Martin-  two boys form Bulgaria that  will have the BMT soon. One  of them has it for tomorrow.
Today I told with my friend in the bulgarian association and she told me that.
 Please i want to ask for your prayers, let the  toughts and prayers of more people are with them and their familys in this moments and  hope everything will be ok.
 
Thank you all

Will they have their bmt in Spain? Do you know their age?
They will be in my thoughts and I really hope for the best.  

!!!

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When I hear Bulgaria I think about Romania. A friend of me lives there and I will go to Romania during summer but, have you heard about the thalassemia boy who moved which his parents to Australia? Australia sent the whole family back so soon as they found out out that boy had thalassemia. They said too expensive and it's not a good reason. I am still shocked about that. The boy has more opportunities in Australia and above all his parents could not pay his treatment in Romania anymore.

This happend two years ago, or more, and so far as I know is the boy still in Romania. He has been on the Romanian tv to collect money. I will ask my friend of he heard recently something about this guy in the media.

Our past minister of Integration and Immigration send a two year old twins with their mother back. Those twins has Sickle Cell Anemia and have no chance in this African country. It is still a shame. The sc and thal. organisation has fight for them, but no success.

Dore

That's interesting. I have been involved in a case for a couple years trying to help a family from Romania stay in New Zealand. The family did not declare the boy's thal when they moved there and the government has been trying to expel them. The new trial is this month.

That's interesting. I have been involved in a case for a couple years trying to help a family from Romania stay in New Zealand. The family did not declare the boy's thal when they moved there and the government has been trying to expel them. The new trial is this month.

I will send my friend now an email and ask of he knows to which country they (try to) immigrate. The boy must be in his teens. I think his now around 18yr. Maybe we talk about the same. And please, keep me update about the trial.

As for Australia. Have you heard about the case of the German doctor who moved to A. to be a doctor in a very rural area? Australia refused to give the family permission to stay, because of his son who has Down syndrome. There were (ofcourse) lots of protest and Australia has changed their mind.

The boy I know is around 11 years old. It's a bad situation. He cannot get the same level of care back in Romania. His little sister is named after Lisa. Lisa helped the family when they were still in Romania. They won the first court case but lost the second and now things look bad for the new trial.

The boy I know is around 11 years old. It's a bad situation. He cannot get the same level of care back in Romania. His little sister is named after Lisa. Lisa helped the family when they were still in Romania. They won the first court case but lost the second and now things look bad for the new trial.

I found it. I will wait for the answer from my friend, but we definitely talk about the same person. This was/is my source:

y REBECCA PALMER - The Dominion Post | Tuesday, 6 February 2007
The cost of providing continuing treatment for the 11-year-old boy could climb to $5 million if he lived till the age of 50, Auckland District Health Board staff told the Deportation Review Tribunal.

The tribunal found his parents had deliberately withheld information because they wanted better treatment for their son than he was receiving in Romania. But the family will be allowed to remain because the boy’s health was at risk if he was sent back. “We accept that prioritising and allocating funds for healthcare in New Zealand are indeed matters of serious public concern, however … the humanitarian factors in this particular case outweigh any of these other considerations,” the decision says.

Adrian Vilceanu has the serious inherited blood condition thalassaemia major, which requires him to have monthly blood transfusions and injections five to seven times a week. His parents, Romanian citizens Cezar and Constanta Camelia Vilceanu, applied for New Zealand residence in 2001 - after their son had already received several blood transfusions in Romania.

But during a medical examination in their homeland to support their residence application, they incorrectly answered “no” to four questions about his health. The family told the tribunal they believed they had a duty to give their son the chance of “a normal life and a healthy environment”.

In Romania, his life expectancy was about 20 years, while he could live to more than 50 in the “right conditions”. They were worried the Romanian blood transfusions would be infected with HIV and that funding problems meant the chelation injections he needed to remove iron build-up in his blood would not always be available.

Adrian received his first New Zealand blood transfusion shortly after the family arrived in 2004. Immigration authorities launched an investigation after being contacted by staff at Auckland’s Starship children’s hospital. The immigration minister ordered the family’s residence permits be revoked but the family appealed.

District health board staff estimated the cost of Adrian’s medical treatment between January 2004 and January 2006 at $57,000. Treatment could cost up to $5 million over a 50-year life span. The tribunal noted Romania’s health system was underfunded and subject to corruption. Adrian’s doctor told the tribunal Adrian was thriving in New Zealand and any interruption to his treatment would be dangerous.

Adrian’s parents, who were highly educated, had brought valuable skills to New Zealand, the tribunal said. Mr Vilceanu was working as an aircraft engineer while his wife, an economist in Romania, was caring for their New Zealand-born daughter, who is healthy. The tribunal noted changes to blood-testing requirements meant it was no longer possible for potential immigrants to arrive in New Zealand without authorities being aware of such a disorder.

The tribunal allowed a Bangladeshi family who obtained residence through false information to stay because of their 15-year-old son’s deafness. They have been in New Zealand for 10 years and the tribunal ruled it would be unduly harsh to send the deaf son back to Bangladesh

Source:
Stuff.co.nz

As I understand it right then they are still in Austrlia. It is cute to here about the name of his little sister.

I wish I could do something,

Dore