Appointment in February

Sharmin, if possible ask about the

1- effiency of DEXA at young age
2- suitable anticoagulants that can be given to children rather than asprin,since it shouldn't e given to children and teens. Vitamin E is mainly an antioxidant, but also has the ability to thinner the blood, so would this be enough or there would be a better anticogulante


Thanks dear
manal

The list of questions is below.  I will do my best to get answers. 

1. is fetal hg less efficient for growing children than adult hg?

2. do fetal hg inducers trigger unwanted functions?

3. L-carnitine - what is the opinion on its usage

4. pulmonary hypertension - who is at risk, how to manage risk - NO inducers?  L-carnitine, citrilline

5. vitamin C with exjade, vitamin C when not using desferal

6. what is treatment for post splenectomy non transfusing alpha/beta thals? anything other than anticoagulants required?

7. have exjade/L1 been used in combination? 

8. magnesium, bilirubin and gall bladder stones

9. Patients with PKU

10.   effiency of DEXA at young age
11.   suitable anticoagulants that can be given to children rather than asprin,since it shouldn't e given to children and teens. Vitamin E is mainly an antioxidant, but also has the ability to thinner the blood, so would this be enough or there would be a better anticogulante

9. Patients with PKU

Sharmin

If it was my suggestion: PKD (PK def.)

Sorry Dore, I did mean to say PK def.  

I will have my husband print off the list tomorrow. 

Sorry Dore, I did mean to say PK def.  

I will have my husband print off the list tomorrow. 

 

PKD stands also for polycystic kidney disease...... Pretty confusing!

Dear Sharmin,


                     

Do post when you get time 

Zaini.

Friends, we're in San Francisco.  Our appts are tomorrow, your prayers are needed.  I hope it will go well.

I am so glad that Umair is well, I have been really concerned.  I hope Zainab is better too now - my wishes are with you all. 

Thanks Andy for showing us the way.  Any improvementsmy son makes, we owe it all to you.

Sharmin

Hi Sis ,

wish you all the best  ,, take care


Best Regards
Umair

Sharmin,

Enjoy your trip,i hope all the results of Little A will come back ok,my prayers are with you.

Zaini.

Good luck Sharmin, you are all in my prayers, will be waiting

manal

Hi Sharmin,

Have a nice time there (despite the appts) and I hope all will go well. I got my appt with the hemo tomorrow as well. To use a Dutch saying "We're (almost) in the same boat". 

Good luck to you too Dore, hope we hear good news. Take care

manal

Thank you. Firday is going to be a hard day. If you have suggestions what I should ask too (what has pop up in your head after reading my posts) then tell me please!!!!! I will also ask of he has already convinced the cardio to buy T2* software...

Dore, best of luck with your appt!


We have completed our first day of tests and appts. 
Good news - SQUID results - LIC = 1545  - down from 2880 July/08. 
The docs were impressed. 

Lots more to come later - we are exhausted and hungry!!

Sharmin

I am also impressed! Way to go little A!