Wish us luck !!

Hey, I wanted to wish your daughter good luck. I am glad to hear that this type of meds are not very hard for me.
I have not ask for this tests. Whatever it cost I wont stop taking Exjade though. If my appetite is back in the middle of the week I will increase the dosage to 1500mg. Does it work to take those meds in the evening? Does she take enough water? I will try the fennel seed trick 


My fingers and toes are crossed for littl Z, a bit older me and all the other who are trying to get the ferritin down!!!!

Sleep well, Dore
p.s. it might be an idea to do something special when she reach at 2000....?

Thanks Andy,

Its hard to find good supplements here,as doctors don't prescribe themselves,still i'll keep looking.

Dore,

Thanks dear,i am trying my best to force her to take water,but almost half of the day she is at school,but still its a relief that her bottle is empty when she comes back from school,she is actually taking the medicine in evening.Her ferritin last checked was 1441 ng/dl .

Good luck to all people who are chelating and trying to get their ferritin down.

Zaini.

Andy,

Shouls i check Little Z for Cytopenia everytime she gets fever?

She has got fever again .

Zaini.

Zaini,

I have not been checking Little A for cytopenia when he gets a fever .  I was told by Oakland and by our pediatrician here that the sudden neutropenia he experienced with a virus the one time had to do with the virus and that Exjade has never been associated with neutropenia.  I was told that any child having particular viruses can have the sudden neutropenia with quick recovery. 

I hope that Little Z feels better very soon, please wish her the best from me 

Sharmin

Wishing little Z a speedy recovery

manal

104 degree fever again 

Please pray .

Zaini.

Zaini, Does she have a cold or other infection as well?

Aaah, I hope she feels better soon!! 

Does someone know how much that is in Celcius?

Dore

Sharmin,

She has chest and nasal congestion,GP gave antibiotic "Cefixime".

Dore ,

Its 40 degree Celsius.

Zaini.

Aaah, that is a high temperature. I hope the Cefixime can get it down!!!

Take care, 

Zaini, this time of the year children are always prone to these congestion.

Don't forget the water bath. The doctor once told me that all the drugs that lower the fever don't work except when the body temp is around 38.5 celcius. So what you have to do is o lower the body temp to 38.5 by water bath so that the drug can start working effectivly.

Also don't forget to give her a lot of water and juice,food is not important in fever . As they say ''starve the fever and feed the cold''

please update us

manal

             
  GET WELL SOON LITTLE Z
             

Umair

Hi Zaini
I hope Little Z gets better soon. Hassan too had fever 40.6c last week, but he is ok since yesterday. Is there any connection between Asunra and immunity I started Asunra in october and Hassan caught his first cold in the same month. He had his first cough in nov, his first chest infection also in nov...followed by a series of throat congestion and throat infection every two to three weeks. He is due for his tx on thursday and this time too his ferritin might not be exactly accurate becoz of infection. I am so frustrated
loads of health to zainab
maha

Thanks Manal and Umair,

I am trying to keep her hydrated,she did take a water bath yesterday,but not today,she is taking a nap right now,i'll check her temperature again when she wakes up.I hope it will be gone as she has started antibiotic.

Maha,

I also desperately want to know if there is a connection between Asunra and this,fever and then antibiotics do effect hb in negative way,and she has chest congestion,when my son gets sick i can realte it to his congestion or anything else,but when Zainab gets sick,i just feel blind,that i don't know whats going on in her body  Paranoid mom.

Zaini.

Still 102.4 degree fever,I called her hemo and she said it could be a viral,and if it persists we should check her for malarial parasite,but her fever does not have the pattern of malaria,so i don't think its a possibility.
I have not stopped Asunra.

Zaini.