Wish us luck !!

Thank you Dore 

I am hoping that little Z is all better today. 

Sharmin

Sharmin,

She is ok as she has no fever,but cough and congestion is still there,she is completing her antibiotic,and i am giving her turmeric,honey and nigella,so i hope it will help her.

Do you know the normal ranges of Urine Creatinine and Urine Protien,its strange that they are not written in her reports.

As for low phosphorus,her hemo asked me to double her milk intake.

Zaini.

Zaini,

I will check on Little A's reports tomorrow what the normal ranges are listed as.  I hope that little z is getting better.

Little A is still congested but he did go to school today because he has missed so much school lately.  Transfusion is tomorrow, but lately I have been able to take my laptop with me. 

Sharmin

Zaini,

How is little Z?  I hope that she is over her cold now.

Little A has a harsh sounding cough and a very stuffy nose - but he feels well and is playing. 

Sharmin

Sharmin ,

She is ok,cough is still there,its been only one week she was transfused,but is already looking a bit pale i'll get her hb checked tomorrow,she is getting a bit cranky too,i don't know if its cold or her hb has gone very low,i hope its not.

Zaini.

Zaini,

It is a good idea to check her hg - but please know that when they are feeling unwell they look pale even if the hg is not low.  Sometimes when little A is sick he looks pale but his hg is good - and a week later when he feels better his color returns to pink on its own. 

Hoping that the little ones get over these colds soon,

Sharmin

Zaini,

I am listing all of the tests are routinely done for little A since he has been on exjade and the normal reference ranges (in Canada) for each.

glucose random    3.6 - 11.1 mmol/L
sodium                133 - 145
potassium             3.3 - 5.1
chloride              98 - 111
CO2 content        21 - 31
ALT                    1 - 35       U/L
bilirubin, total      0 - 19   umol/L
bilirubin direct      0 - 7    umol/L
creatinine             30 - 70 umol/L
urea                    2.0 - 7.0  mmol/L
ferritin                 10 - 110 ug/L
GGT                    11 - 63   U/L
Lactate dehydrogenase     125 - 300 U/L

Urine Chemisty reference ranges were not provided, but the tests are as follows and I am posting little A's results from January 7/09

Creatinine, urine          2.50  mmol/L
Protein, urine              0.05  mmol/L
protein/creat ratio, urine  0.020    g/mmol

Little A's ALT level has remained around 25 since we began exjade - however in his last blood test it was 53 - Andy had told us that this is too small of an elevation to have any concern over - our doctor here and the docs in Oakland confirmed this.  I think that little Z's ALT was an even smaller number so you should not be concerned at all right now. 

I hope this helps,

Best of luck for little Z on her next blood test,

Sharmin

  Little-Z ,

Best Regards
Take  Care
Umair

Thanks a lot Sharmin  That definitely helped.

I have never checked Little Z's  glucose levels,should i get them checked?

Zaini.

Hi Zaini,

I guess glucose levels should be intermittently checked in all thals - I don't think that children whose ferritins are below 2000 are really at risk of having iron in their pancreas - but they do suggest having glucose checked intermittently in Oakland. 

Sharmin

Yes Zaini, the endocrinologist require this test for Ahmad twice a year. Though it is more related to  increased iron overload, all thal should check it


manal

Thanks Sharmin and Manal,

I'll get the test done,by glucose levels you mean fasting blood sugar? Or GCT?Which test exactly should i ask for?

Zaini.

Zaini ,
i hope and wish that Little-Z's results will come Normal , ...

Lots of good wishes and prayers
Best Regards
Take Care
Umair

Thanks Umair 

I've got her Vitamin D levels checked,will have to wait till 18th,lets hope they come back normal,along with SGPT and Serum Creatinine.

Zaini.

Hi Sis,
INSHA-ALLAH (if God will's it)  ... hope and believe good for the results ...

Best Regards
Take Care
Umair