Wish us luck !!

Hi Zaini,

Have you received the rest of little Z's test results yet?  Who's the cutie little baby?  She is sooooo precious!!

Sharmin

Hi Sharmin,

I am waiting for her Vitamin D results...

This is my sweet little neice    Duaghter of Pareeshay,she is soooo cute.

Zaini.

hi sis!
  wid lil Z's vit D test result..

Thanks a lot sis 

Hi everyone,

Sorry for late update but i am a bit struggling now a days with myself,getting out of bed is even a struggle.
Little Z went for transfusion on friday,her hb 4 weeks post transfusion was 9.8,which isn't bad i guess,what with she had fever and cough after last transfusion,About SGPT doctor said this reading is not concerning,Little Z is now on 600 mg Asunra.For Vitamin D her hemo also suggested shots.

Zaini.

Zaini Sis,
yeah , its  good Hb , .. good luck Little-Z for With D shots and Asunra ( and all the treatments ) ... :thmbsup .. for


Best Regards
Take Care
Umair

Zaini,

I think you should also have your vitamin D level checked.

Zaini,

Having a hg of 9.8 after four weeks is ideal.  Do you know how much blood she received during her previous transfusion? 

I agree with Andy,  I think that you should have your vitamin D checked. 

Sharmin

Thanks Andy,

My cousin also suggested that i should get my Vitamin D levels checked,whats alarming me is that now a days when a wake up after sleep,my face has so much swelling that it really looks odd,puffy eyes and everything.

Sharmin,

Little Z is receiving 450 ml blood on every transfusion,which makes it around 16 ml per kg.

Zaini.

According to Oakland that is perfect - to have a hg of 9.0 - 10.0 (approx 9.5) four weeks post tx - with the volume little Z is receiving.  Furthermore, with her being sick it is great that she was able to maintain her hg - god bless


I had severe vitamin D deficiency last year - I was on 3000IU vitamin D for a few months.  Now I am on 1000IU maintenance dose of vitamin D. 
Sharmin

Hi Zaini
You should get your hb checked and also your thyroid function as a swelling or oedema is a symptom of hypothyroidism. I remember you had your thyroid checked sometime a year or so back and it was in the borderline. I really think you should repeat the test. Goodluck with your health. Hassan`s fighting with his sis, got to run

Maha

Thanks Maha,

I will get these levels checked ASAP.

Zaini.

Zaini,

Why don't you postpone little Z transfusion for another week ( Tx every 5 weeks) as long as the Hb is 9.8??? Why don't you wait until it is 9
Was this normal for her before starting carao???

As for the puffy face, sometimes this happen to me when i sleep for 8 hours or more after a long period od sleeping 4 or 5 hours only

manal

Andy and Sharmin,

Why don't you postpone little Z transfusion for another week ( Tx every 5 weeks) as long as the Hb is 9.8??? Why don't you wait until it is 9 

Should i be doing that? What do you think?

Was this normal for her before starting carao???

Manal,

Before starting carao she was going on three weeks,and her hb used to hover between 9 and 9.5.
The puffiness is here when ever i wake up,be it one hour or more.

Zaini.

Before starting carao she was going on three weeks,and her hb used to hover between 9 and 9.5.

I think this is a good observation that should be monitered cause i observe that after carao the rate of hemolysis durig fever or illness is not the same but i am still monitering.

Regarding my opinion, i think that a hb of 9.8 is more or less a 10 so why not to wait for a week so that you reduce the iron taken from transfusion and at the same time she will be still in the rate of 9.2 to 9.5 which will not affect growth or activity

manal

i observe that after carao the rate of hemolysis durig fever or illness is not the same but i am still monitering.

I also think so.

Zaini.