Wish us luck !!

Good Luck lil Z for the first dose of asunra , how was the experience of first does ,i hope that it was gr mi right ??

Best regards
take care
Umair

Thanks Theodora 

Every opinion and every advice is so valuable for us right now,i have told Little Z that you'll have to drink a lot more water once you start Asunra,she is so eager to start it that she was like " lots of water !! no problem !! " she kept drinking water again and again even before taking Asunra .

Umair,

Thanks for remembering ,she took her first dose just minutes ago,she had no problem in taking it in water,it's totally tasteless.

Zaini. 

Good Luck Lil Z

I have homework for all members: read the leaflet very good and tell me of they wrote something about 'not crushing the pills' ?

Hi Dore,

I tried my best to complete the homework but every day when I go home I forgot, but thanks to Andy's link to Exjade leaflet, it clearly indicates on page 19 that the tablets must not be crushed. It also indicates that the tablets can be dispersed in water, orange or apple juice (there is no distinction there of the medium) and than wait for the full dispersion to obtain the fine solution.

Thanks.

Best of luck to little z

thanx to manal again for putting me up to this knowlegable thread..

i also started with Asunra...yesterday was my first day...so this thread helped me in knowing a lot abt Asunra plus the leaflet i got in the box of tablets gave a lot of information..
you wanted to know the prices of Asunra in India

i got a
box of 100mg 6 tablets/strip 5 strips+1( free issue) =1100.00

box of 400mg 6 tablets/strip 5 strips+1( free issue) =3300.00
                                                                              4400.00 +176.00(Vat payable)= Rs. 4576.00

Hi Zaini,

I hope that Zainab continued to feel well after taking exjade.  Was her stomach a little 'off' ?  Hopefully she felt great. 

anjjela

You are welcome , i am happy that you found it useful

Zaini

Little Z will be just fine, i am so sure

manal

Thanks everyone 

Little Z is fine Alhumdulillah,no complain yet , took her second dose today,point to consider is that she is on extremely low dose,15 mg/kg,i am not expecting any positive change in her ferritin,but i hope it won't spike scarily .

I asked her doctor to let her start with 500 mg,but she said no , said just let her start then we'll increase the dose if she tolerates it well.

Let's hope for the best. 

Zaini.

Thanx God Lil Z is fine and feeling well , i hope she wil well tolerate with asunra in future and she will b able to tolerate 30mg/kg dose as welll ...

Lil Z :
You are in my prayers Lil Sis ....

Best Regards
Take care
Umair Bhayya

Thanks for your prayers Umair,we need them,and little Z is also praying for you so you can leave pump and start using Asunra,

Getting rid of pump is a big relief.

Zaini.

Congratulations for starting Asunra.  Hopefully everything will be fine until the required dosage is met.  take care of your little treasure.  Give Zainab a big kiss for me and tell her she is very lucky to have such a caring mother.

Jade

Thanks Jade 

We do need all the wishes right now and ever .

Zaini.

Hi Zaini
Couldn`t reply to your post earlier as I was away for umrah. Anjjela though did mention the price at which she purchased Asunra. I am surprised that prices vary in the same country. I get a box of 100mg at RS 1335 and a box of 400mg at RS 4015 plus vat and for every three issues I get one free.

Hope Zainab is doing good. Glad that she doesn`t mind taking it with water. I still remember Hassan`s face when I first gave Asunra mixed with water.
take care
maha

Thanks Maha,

Actually there is a bit of difference of value in Pakistani ans Indian rupee,so price is almost the same,if you are getting it via India,why don't you desirox,it's a bit cheaper then Asunra,Cipla is in process of getting desirox registered in Pakistan,so hopefully it will be easily available in Pakistan too.
I also tried to contact Osvah Pharma in Iran to know their prices,but never got a reply.

Glad that she doesn`t mind taking it with water. I still remember Hassan`s face when I first gave Asunra mixed with water.

Hassan is quite younger,so maybe ,that's why ,give him a big kiss 

Zaini.

Zaini
My hema recognises novartis but not cipla. Moreover novartis has its office very close to home, so its easier for my brother to get it for me.I am very thankful that Hassan atleast finishes his glass of juice without fuss as this is quite a problem with little kids, making them drink all the medicine. My trouble starts after he finishes his Asunra, to keep him away from eating anything for half an hour. During weekends when dad and sis are at home, no one gets breakfast until Hassan is able to eat.
take care
maha