Wish us luck !!

congratulation Zaini, so happy for both of you
manal

Thanks Manal .

Zaini.

Congratulations to little Z, Litte E and Litte A!!!

Remember also that ferritin readings can be wrong.  Little A's ferritin readings were much higher than his SQUID or T2*.  For example, at one time his ferritin was 1300, 1800 on two readings while his SQUID was only 700.  Chances are lil Z's actual iron is much lower than her ferritin.  Lil A is currently on 750mg of EXJADE - he weighs about 30 kg. 

Lil Z has started taking 700-800 mg Asunra on alternate days,and her SGPT this month was 29,so far so good .

Inshallah everything will go the way you want it Zaini

manal

Thanks Manal,InshAllah .

Zaini.

All the best to Lil Z!
A long way to go but she has such a wonderful mom who in turn has such lovely support here at thalpal...you will succeed for sure!
Love,
Madhavi

Thanks Madhavi,

Couldn't do it with out you all 

Zaini.

I hope lil Z's SGPT remains in a good range and that her iron levels continue to drop.  I have a good feeling if you did a SQUID or MRI you would find that her iron levels are around 500-600. 

You're doing a great job my friend,

Sharmin

Hi Sharmin,

I am sorry i missed this post somehow,thanks a lot my friend  .

Zaini.

 

Hi Everyone,

Here is an update on Lil Z's ferritin,checked on 31st December it came back 727,in August it was 918,its decreasing slowly,she is taking 800 mg of Asunra daily,400 in the morning and 400 in the evening,the question is should i decrease her dose or not? I haven't asked her hemo because i am sure she'll ask me to lower the dose,but i need an opinion from you guys first,what do you guys think? Her weight is around 29-30 kg .

Zaini.

Congratulations!
Why do you want to lower it?

Thanks Dore,

I don't want to lower it just wanted to know that with ferritin going down should the dose be lowered ?

Zaini.