Wish us luck !!

Zaini,

I would wait until, the ferritin goes below 500 before lowering the dose.

Thanks Andy,

I was also thinking the same,just wanted to confirm i was on the right track.

Zaini.

Zaini,

That is excellent news, I agree with Andy - keep her on the current dose until her iron levels are below 500 because you want to decrease her iron level to less than 500 and then maintain her at levels below 500.  I am so glad for you and for her:)  Your hard work and patience are paying off:)

Sharmin

I agree with Andy. Get it down and then consider lowering the dose.

Lena

Hi Zaini,

Very happy to hear Little E's ferritin level. You worked really hard to get here. All kudos to you and off course little Z.

Based on our experience, please stay extra vigilant on the liver function tests. possibly test it every month to make sure her liver is not affected by exjade.

Finally Zaini, congratulation and keep it down

manal

Thank you everyone,

Sharmin,Lena,Bostonian,Manal, 

We are keeping her SGPT in check,we get it checked every time she goes for transfusion,on her last transfusion it was 22, Do we need to do LFT too?

Thanks for all your support.

Zaini.

Yes, little Z and Ziani, keep the therapy going! I believe soon you are in control about little Z's ferritin.
Please tell little Z shes an inspiration for all, atleast for me. Her studies are going well?
(L)

Thank you Dore  you are an inspiration for us as well, yes her studies are going pretty good,she has memorized more then half of the Holy Quran,and with that her academic studies are going good as well.

Love,

Zaini.