Wish us luck !!

Zaini, little Z is in my prayers, please update us and good luck

manal

Zaini,

I am wishing you and little Z good luck.  I hope that all of her tests will be perfect - she has done very well so I just know that her tests will be great. 

Best of luck dear,

Sharmin

Thanks Manal and Sharmin,

I will update you as soon as i get the results.

Zaini.

Hoping our little Angels results are great.
Wishing you luck my little Z


Sharmin

Thanks Sharmin 

A quick note,We will see my daughter's hemo in two hours,i called lab to find the results,her serum creatinine is 0.6 which is well with in range and exactly the smae as it was before starting Asunra,but her SGPT is elevated, it was 22 before she started Asunra and now it's 45,normal range is till 33,i am quite nervous i don't what her hemo would say.

Andy,

What do you think? what should we be doing? Stop Asunra? go on with the same dose? Or increase the dose? Do you think these elevated levels are dangerous ? Her ferritin is almost the same,it was 1409 before starting Asunra and now it's 1441.

I am waiting anxiously for your replies.

Zaini.

My bad results did correct by themself. I hope they will do the same in your daughter's case. Maybe you can do an other test next week?

Dore,

Were you on the same dose after bad results or you cut down the dose?

Zaini.

Hmm, I think I was taking 875mg. I hope I have the right word for sgpt in my mind. here stands sgpt for?
Did she drink enough water?

SGPT is indicator of liver function,i think i'll have to wait and re check it again.

Zaini.

Yes, i was talking about the liver function. Do something relaxing before you go to the doc and dont worry too much. 
My fingers and toes are crossed!!!

Thanks a lot Dore 

Zaini.

Hi,

I went to my daughter's hemo and she said that SGPT is very slightly elevated so we can increase the dose and there is nothing to worry  she increased her dose very slightly though,from 400 to 500 mg daily and said if everything remains fine we should increase another 100 mg after a month.

As for genotyping she said it's very expensive so it's hard for hospital to do it every time,yes if any patient develops any reaction then lab will do extended matching  .

Zaini.

I am glad she believes it is fine. Btw is Asunra made in other mg? Exjade has only tablets of 125mg, 250mg and 500mg.
I am not sure of the hospital does genotyping. I think it goes autmotical, because all nurses mark other names on the special rose transfusion form. For me it is a big mystery.

Good luck with the new dose!!!

p.s. I just read your mess. at fb.

Hi Zaini
I am glad she increased the dose, that should atleast rest your mind a wee bit. Dose adjustments in Asunra is made in 5-10mg/kg.

Zaini, genotyping is done only once, so why did your doc say it is too expensive to do it everytime

goodluck with the increased dosage
maha

Zaini,

I am glad that everything is okay and that the doctor felt that it is fine to increase her dose.  I am glad that the doctor did not feel that her SGPT level was not very elevated either. It is good to see that her ferritin isn't elevated and that she is doing well.  

I hope that she does well with 500mg and that they are able to increase it next month.

Best,

Sharmin