Wish us luck !!

Thanks Dore ,Maha and Sharmin,

I just hope that her SGPT will not elevate further,now i remember Mariam had the same problem with Aysam .I hope it will becaome normal very soon.

Zaini.

Hi Zaini,

The normal SGPT (ALT) range is up to the low 40's, so little Z's range is only at the high end of normal. ALTs will often rise with Exjade and do need to be monitored to make sure they don't go to high, but currently this is nothing to cause alarm. it's one of those things, like the rash, that many patients experience early on with Exjade. Your doctor will tell you if it rises high enough to be of real concern.

Thanks Andy,

Her doctor said we should repeat Serum Creatinine and SGPT after a month,and right now it's ok,we'll have to see what happens when we gradually increase the dose.

Zaini.

Little Z came back from school with fever and sore throat,is it ok to give her Asunra ? 

Zaini.

Should we be checking her for cytopenia?

Zaini,

I can find no precaution against taking Exjade during a cold in the Exjade prescribing information. Desferal may be unique in this matter because it promotes bacterial infections like yersinia. I don't believe this is a concern with other chelators.

And yes, patients on Exjade should have regular white blood cell counts done.

Thanks Andy,

I also tried searching for it but didn't find anything.

We did CBC on 9th feb and it was normal,i guess i'll get WBC count checked again.

Zaini.

Zaini,

I hope that Zainab feels better very soon.  We continue giving little A exjade when he is sick.  Remember, viral illness can cause neutropenia in all children - neutrophils can bottom out (0.0) followed by a quick recovery - usually within a day or two.

I hope that she gets through this cold quickly - I will be checking the board from Oakland to see how things are going. 

Take care Zaini,

Sharmin

Hi Zaini
 From the time I started Asunra Hassan`s fallen sick a number of times. Once he was even admitted for antibiotic IV, but I didn`t miss Asunra even for a day.
wishing Zainab a speedy recovery
maha

Thanks Sharmin and Maha,

I remembered that Little A fell sick but Sharmin didn't stop exjade,so i gave her Asunra anyway,the strange thing is that GP told us that there is no severe kind of infection in throat or chest that could be attributed to fever of 104 degree,so he suggested CBC to check Nutropenia,results will be available by tomorrow afternoon,i hope till then she'll be feeling better.

Zaini.

Zaini,

Cough, sore throat and fever are all listed as early side effects when first taking Exjade so there could be a connection.

Thanks Andy,

Lets see if there is any difference in her counts tomorrow,she is very disturbed even in her sleep ,although fever is a bit low as i gave her Febrol,GP said we should wait for the report before starting any antibiotic  .

Zaini.

Her fever is down to 101 degree,i hope it will vanish soon.

Zaini.

Zaini, i hope she continue's to be fine. Please update us with the results and a big hug for her. Zaini,please don't for get givng her a lot of water

manal

I hope she feels better soon. As for the water: try to give her (instant) vegetable broth for the minerals.