Thank you Manal, that means so much. I will update you as soon as I know more. I so wish that we had genotype testing before he began transfusions - but I know that there isn't anything we can do about that now
I keep looking at my phone wishing for it to ring. I think that he is stable right now, he is playing Wii with his dad.
I will be okay my dear - please enjoy your trip. XOXO to the kids and I look forward to seeing your pictures,
Sharmin