Dore's appt

  Door ..

Best Regards
Take Care
Umair

Thank you. Things are getting worse though. The doc wiil call my mother later this morning pain. I have lots of pain, tired and difficulties with breathing. I have no idea. I thought I had fever: only 35.9 celcius. Somehow I guesss that body broke all new cells down :s I'm scared.

Dore
P.s has anyone an idea?

Dore,

I am really sorry to hear about your situation,i think you should check yourself for cytopenia ,got for a CBC to check if there in any abnormality in cell count,apart from i am really clueless as to why all this is happening,did you go to your hemo?

Please keep updating,

Zaini.

Dore, I too agree with Zaini. Please consult your doctor. I hope you feel well soon

manal

Tomorrow I got a consult at 12. If it's possible I will give an update. I am not sure since it's hard to get a connection in hospital  .

Take good care of yourself!

Dore

Dear Dore,

I hope that everything will be okay.  Please update us when it is possible.  All the best.

Sharmin

Dore,

Different possibilities like an antibody reaction, overactive spleen or just an old unit of blood, come to mind, but it's hard to say just by speculating. Hopefully, your next transfusion will last longer.

Hi Andy ,
if i m not wrong Dore has a history of splenectomy .... and yeah , Anti-body reaction and old unit of blood could b a reason of that decrease in Hg ... 

Dore,
ask you blood bank to provide you fresh blood and then note that if you Hg decrease's to the same rate , i hope n pray that after getting fresh blood your Hg will not decrease that much and it will b only bcoze of old unit of blood  ... Best of luck dore,  and please keep us upadated as much it is possible, praying the same , i hope your next Tx will last longer than previous onez  ....

Best Regards
Umair

My bloodbank is the best (plus first) of my country. They are even one of two who store the blood who have antibodies at all (the best blood but rare so people need it for themself)
I got this after reactons since 2 years but I got them always but immediatly when tx start.
I don't have a spleen. None of all complains are fit by one & the other way round.
Untill 2nd of June: a blood test, echo of upper stomach (hope this makes sense) and thorax (lung).. Then we will meet again. Owh I got pantozol (prontonpump??). It might by a "maagzweer". But I am right about my breathing problems. The good thing? I already take Exjade at night. The bad thing? 2morrow for first this new med. He thinks it will help me with eating. I can't eat now, you see....

That's all for now.

Dore
Ps it took us more than 2.5hrs to come home instead of usually <1hr
Ps this so don't fit with study ;(

2: I dnt have a spleen or gallbladder anymore...other guess is gallstones... That's exactly why they took my gallbladder out in 1990.... Geezhh!

Hello,

First of all: I am not so stressed anymore as I was.

Today I went to the hospital for the tests.

First I went in for the echo. It is very interesting to look with the doctor on the screen  . Ofcourse, all I know is that blue the blood that is flowing back, red that is flowing through and yellow/red is the heart?? I hope that some day I will able to see the common echo of a baby. That should not a lot easier to recognize!

After a while the doc asked: Did you have an operation? I said: "yes..... I dont have a galbladder and a spleen anymore. Doc: Oooooh   

He went further and rechecked it a few times. Then he went to my kidneys. Is it normal that this hurts like someone stab a fork in your side? (Yes, I am bit nervous about that). Only touching that area hurts from time to time.

Then he went to the office to the head to discuss the results. At the time I had sweep all the gel from my body, the door went open and the Head wanted to do it by himself.

To be short (and unofficial) the roads of gall (spelling? word?) are enlarged, but it is possible that's because I dont have a galbladder. The problem is that there are no other photos to compare with.

After this it was time for the blood tests. Three tubes; 2 purple and 1 green.

I had to wait for the thorax photo because the office was closed, but after 20 minutes we heard you can always go to the echo area...so off we went again. The wait was long, the photo short, and the conversation zero.

Tomorrow I will hear the results and I will tank up. Personally, my inner voice says that they haven't found anything. However, I am thankfully that I got a doctor who seems to believe that I am really are in horrible pain during those strange attacks.

Thank you,

Dore
p.s. From saturday to sunday I hope to attend a birthdayparty of an uncle and aunt. They celebrate it on one of the Frisian Islands. I say hope, because everyone is a bit nervous about how my body will reaction on this new blood transfusion.

My nickname  Door is a sweet variant of Dore. The sweetest variant is Dori (or Doriii).

Good luck with the tests Dore 

Zaini.

Dore,
Wow, that sounds like quite an experience.  I hope that your tests results reveal that everything is fine and that whatever ails you can be easily corrected. 

Best of luck,

Sharmin

Hi Dore,
wish you Best of Luckfor your test results ...

Best Regards
Umair

I have to be fast, because I should sleep already.
The doctor came to the chemo room. All he wanted to say in public is that my echo looks good. He didn't want to the discuss the rest in the room with all those other people. (my second previous hospital would not have care about this) He should call me later today, but he didn't. I was already told that he was very busy, because he was the only hemo/onco today. So, let's wait for monday.
Yesterday was a public holiday and today were all restaurants in the hospital closed! Really idiot, because they are always people in the hospital who need a real cup of coffee!!!. 

Owh, he always told me that (like you know) all patients with hemolytic anemia's has strange inexplicable belly pains. I know, but this was a new calibre for me.

Take care,

Dore
p.s. sa/su I am off the internet due a family meeting/party