Dore's appt

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Offline Manal

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Re: Dore's appt
« Reply #180 on: October 17, 2009, 12:16:02 AM »
Dore, probably the quick rise of ferritin is due to your illness cause i know that you didn't transfuse a lot since you reached the low levels.

As for the nose allergy i realy feel sorry for you and know exactly how awful it is cause my daughter suffers from it to :(

I really wish your dad and you a speedy recovery and do hope that you enjoy your trip as much as possible

manal

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Offline Zaini

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Re: Dore's appt
« Reply #181 on: October 17, 2009, 02:18:02 AM »
Dore,

I am really sorry to hear that your dad is in pain :( sometimes i wonder how can doctors miss things like that  :dunno

And i think you should investigate a little why your hb goes down so fast,and please try to be regular with your supplements dear :hugfriend.

Zaini.
^*^Xaini^*^

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Offline Prets

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Re: Dore's appt
« Reply #182 on: October 17, 2009, 09:56:07 AM »
Dore,

Sorry to see you go through all this. I dont have any knowledge on this, but I hope things get better soon. If being negative helps sometimes, its worth it. :-)
Do take care,
love.
Symptomatic Beta Thal Minor.

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Offline nice friend

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Re: Dore's appt
« Reply #183 on: October 17, 2009, 01:23:24 PM »
Dore,
sorry,cant read complete thread ,  but  ,,,, wish u  and ur father all the best of luck health and everything .. may GOD bless ur father with the best of heealth and he will b super fine soon again ...

Best Regards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Prets

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Re: Dore's appt
« Reply #184 on: November 22, 2009, 11:55:50 AM »
Dore,

I dont know much about the Vit D conversion, maybe someone else on the boards maybe aware.

About antibiotics -  a lot of us have low immunity, and each time i feel REALLY awful, the first thing we suspect is some kind of infection in the body. If that is the case, antibiotics will turn me into superwoman overnight.  :smileblue

Hope you feel better soon,

Love and Hugs!
 :hugfriend
Symptomatic Beta Thal Minor.

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Offline Dori

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Re: Dore's appt
« Reply #185 on: December 08, 2009, 03:58:55 PM »
Hello,

My last report of fe was 500. They will check it tomorrow again. I expect to see a lower level again. But that's not why I wanted to write here. It's pretty personal, but I need to talk about it.
Now I am almost deironed and expect to be the ruler of the iron from now on I start to look better at my life. I only want to see and feel it now how empty my life is. There aren't friends left who live close by me. I feel lonely and I have decided to turn it the other way round. Which is easier said then done and makes me feel very sad. I'll stop here because it hurts me too much. I only write it here to tell you that you must try hard to make friends and keep friends. Sportclubs are the best way to make friends (i think) but that's nothing for me. And I would like to know your view on this. Do you got any tips/ideas?
ps I am a student and our department is located in an empty area. It looks liks a students run immediately out the building to go home when the lectures are finished. I did do this in the past, but I know understand this is not the way.

I decided to post this en public, because I think more of us deals with this issue. When you have something to tell me, but dont want to post it here you may send a message to me.

I am a little more than a year here and you all helping me so much. Thank YOU!

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Offline Zaini

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Re: Dore's appt
« Reply #186 on: December 08, 2009, 05:05:48 PM »
Dore,

I can understand what you want to say,i can only imagine what it must feel not to have friends,but rest be assured we are all here for you :hugfriend ,you are such a sweet person,who wouldn't wanna be your friend  :wink tips about making friends,for me almost all my friendships started in school and college,we had a group of five friends in school,and we are still friends  :biggrin although we don't meet much often,and one of us has moved to London,but still we keep in touch,and apart from all that we have those special memories of times we spent together,so its not too late for you either,i hope you'll find people who are sincere and love you for yourself :yes :goodluck .

Zaini.
^*^Xaini^*^

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Offline Waleed

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Re: Dore's appt
« Reply #187 on: December 08, 2009, 06:51:33 PM »
Hello,

My last report of fe was 500. They will check it tomorrow again. I expect to see a lower level again. But that's not why I wanted to write here. It's pretty personal, but I need to talk about it.
Now I am almost deironed and expect to be the ruler of the iron from now on I start to look better at my life. I only want to see and feel it now how empty my life is. There aren't friends left who live close by me. I feel lonely and I have decided to turn it the other way round. Which is easier said then done and makes me feel very sad. I'll stop here because it hurts me too much. I only write it here to tell you that you must try hard to make friends and keep friends. Sportclubs are the best way to make friends (i think) but that's nothing for me. And I would like to know your view on this. Do you got any tips/ideas?
ps I am a student and our department is located in an empty area. It looks liks a students run immediately out the building to go home when the lectures are finished. I did do this in the past, but I know understand this is not the way.

I decided to post this en public, because I think more of us deals with this issue. When you have something to tell me, but dont want to post it here you may send a message to me.

I am a little more than a year here and you all helping me so much. Thank YOU!

Dore
    i cant imagine wut made such a nice person to think that way. 1st of all i really challenge wut u've said cuz v r all here for u. This is the place where u share things u call them very personal. Wut made u think that when zaini me and others r here u r so lonely. I guess cuz no one is actually around u. Well i'll like to share that Im too away from my universty n street friends and my lovely cousins.... the friends i have here in riyadh r too bz in jobs but that doesnt mean im lonely or dont hav friends... wut i do is -- make myself busy in things that groom ur personality or increase knowledge. Log on to net and U hav millions of millions ppl with U. But if that reallky doesnt work u know what i do... i walk into coffee or tea shops and there i get noticed ppl who r of my type. Sportsclub isnt a good place why??? i just sumtimes go into cricket ground without knowing any1 boy playing there and just to SEE the match and ultimately i end up in having new friends ...i made many friends in gym. Call ur close friends, chat with ur family or have a walk in the park or ur street to know who's doing wut ... a rare hello to the ones living nearby can give u real acquaintance. Isnt there any one when u go 2 transfuse? when there's no one i talk to little children there and really tease them to hear the best out of them ... hmmm... u can barge in to beauty saloon to get urself groomed , i cant imagine women keep their lips at rest anytime (my cousin even mimicks sleeping  :rotfl ) . There are hundreds and hundreds way to overcome that but even then if u fail to find anything helpful just log on to thalpal  :biggrin and get bz with me  :yahoo
Waleed

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Offline Waleed

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Re: Dore's appt
« Reply #188 on: December 08, 2009, 07:54:23 PM »
no friends in uni????? outside the library??? no one in hospital ? then i make nurses my friend ;) ... btw wut do u study at university?
Waleed

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Offline Manal

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Re: Dore's appt
« Reply #189 on: December 09, 2009, 12:09:01 AM »
Dore,

When i joined my university, i had no one from school joining the same university. And i had spent months not doing anything other than attending lectures as i am not very talented in introducing myself to others. Anyway, by coincednce, i joined the art club (each university has different club for students such as art clubs, reading &poems clubs, dancing, singing, sports, social activietis, theatre............)

The advantages of joining such clubs is getting to know friends who share the same hobby and then you find common talks that will be generated

Hope this helps :wink

manal

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Offline Keep Smiling

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Re: Dore's appt
« Reply #190 on: December 09, 2009, 07:08:35 AM »
Dore,

i know being friendless is very tragic, so try to be social......
definitely, when u speak out your problems with ur friends it relieves u deeply and gives u a sense that u r not alone....... i think we r all here friends sharing everything from our medical reports to our daily activities :rolleyes

i pray that u get sincere friends soon............

Abbas

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Offline nice friend

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Re: Dore's appt
« Reply #191 on: December 10, 2009, 04:18:08 PM »
Same here , Dore .... i also dont have friends nearby me :( ... thats is the reason why i use that much internet ..... otherwise , i would like/preffer to go and play with my friends instead of sitting in-fornt of pc if  i got some friends in my area :( .... all my cousins aare like friends to me but sometimes .... they also have many things to manage and cant give me 24 hours of a day  :( .... that's why i spend more time using internet n making friends online .... but its okiey .... i never stopped looking around to find sumthing to keep myself busy but u cant keep ur self busy all the time with machines n books .... but its ok , i m  fine n happy .... :( . oky got a go , its dinner time here ... c ya ..

Best REgards
Take Care
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

*

Offline Manal

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  • mother of thal intermedia child
Re: Dore's appt
« Reply #192 on: December 29, 2009, 01:50:39 AM »
Quote
Hopefully I will like it by them.

I hope so Dore, wish you all the luck and happy new year to you :hugfriend

manal

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Offline Prets

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Re: Dore's appt
« Reply #193 on: December 29, 2009, 08:32:20 AM »
Wow, Dore,

I totally understand these things, especially now!

I've hurt my knee badly, some ligament issues. So i will be resting in bed through New years,

Am i going to get lonely? YES YES YES...

Its hard for me to have friends, lasting ones at that too - because they don't really think we have health problems that are genuine. So i often get left alone! Like now!

Hope this situation improves and SOon!

Love,
:-)
Symptomatic Beta Thal Minor.

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Offline Dori

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Re: Dore's appt
« Reply #194 on: May 07, 2010, 10:06:02 AM »
My apiologies for deleting some of my posts but I have no choice.
I simple wanted to post here that I would not have been so far with my life without you. I found a voluntering job, I started to study more like fulltime and working hard on the getting more friends part. I wont say things are going easier but I am somewhat happier. I slowely see the sense of these supplelemts and starts to take them more regular. So far three days in a row! I will get there where I want to be.

 

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