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i take the first step

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Offline baal

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i take the first step
« on: February 15, 2009, 07:56:48 PM »
hi all

i become this days my last ferritin-count....
and  i must sy thats it is really amazing.....
august 2008 i had 8.800 ferritin and feel
very unconforteble.....
at that time i met theodora(smurfette)
in the chatt-room and she told me about
the L1 she start to take.....
after this day i start for myself...with one
tablett...after some days i take 2....after weeks
i took 3....then 4 ....and now....i take....
5 pills in the morning...5 before lunch...and 5 more at the afternoon...
plus every 2cend week for 7days desferal iv in the row....

AND KNOW.....serumferritin  3600

i never ever has such a small amount of fe....
i think i will hold that system on....

by the way...i get know the ip6 kapsules from my drogist...
it was 200 mg kapsules...
did i had to take 1 or more every day?            panos
« Last Edit: May 31, 2009, 02:03:47 AM by baal »
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Offline Andy Battaglia

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Re: i take the first step
« Reply #1 on: February 15, 2009, 08:05:53 PM »
That's great news Panos. Are you taking the Ferriprox oral solution yet? Take 2 capsules of IP6 on an empty stomach with a full glass of water. Do not eat any protein foods until at least 30 minutes have passed. And keep up the good work. I am really happy to hear how much your ferritin has dropped. L1 also helps protect your heart so there are benefits that you won't see with ferritin tests but you will see with T2* or SQUID.
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Andy

All we are saying is give thals a chance.
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Offline nice friend

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Re: i take the first step
« Reply #2 on: February 15, 2009, 08:59:18 PM »
Hi Panoz ,
 :congrats buddy , You done a gr8 job .... well done .. keep up the good work up buddy and you will see more amazing results , i m realy hapy to hear abt the drop in your ferritin ... wat is your weight buddy ??..
Quote
L1 also helps protect your heart so there are benefits that you won't see with ferritin tests but you will see with T2* or SQUID.
:agree keep it up ..  :clapcheerboy :clapcheerboy :thumbs :thumbup :yay

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Dori

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Re: i take the first step
« Reply #3 on: February 15, 2009, 09:37:38 PM »
Hey Panos,

 :yaaaaaay 

That is really awesome!!!!

 :congrats

Keep the good work going on! Don't stop, but continue the treatment and soon you will reach the magical 1000   :cheer

Best wishes,

Dore
p.s. Are you from Greece?
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Offline baal

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Re: i take the first step
« Reply #4 on: February 15, 2009, 09:38:01 PM »
hi andy and nice friend

thx for reply....
yes at home i take the liquid L1...
and outhome i take the tabletts....
buddy my weight is about 82 kilo.

i raissed up since i have diabetes too (since october2008)
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Offline baal

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Re: i take the first step
« Reply #5 on: February 15, 2009, 09:40:08 PM »
hi dore

yes i am a greek....
but i lived in germany...
not so far away from u...
to the netherland border its about 2 hours...
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Offline Dori

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Re: i take the first step
« Reply #6 on: February 15, 2009, 09:51:09 PM »
Guten Abend,

In that case we are nearly neighbours ;) You see, I live in Apeldoorn. That's 1.5 to 2 hours from the frontier :) We pass usually the frontier by Arnhem. Where near the frontier do you live? I did attend concerts in Arnhem Oberhause and Köln in the past  :shy And we went around Chirstmas to Münster. I dont speak German very well though, but I do understand it pretty good. I start to love Germany more and more :).

Too bad you did develop diabetes :( Umair has diabetes as well, so there is at least one person who can tell you more about that.

Auf wiedersehen,

Dore
p.s. I dont have thal, but the rare anemia pyruvate kinase deficiency. It is an North-European anemia. I get every 3 weeks a transfusion. Chelation therapy goes slow, because my child doc did not treat it (very well). I started with the intensive therapy when I was 16, so I am doing this since 5.5 years. I am allergic for all meds, but this fourth try of Exjade is going well. I got a fe. of 2400.
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Offline Canadian_Family

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Re: i take the first step
« Reply #7 on: February 15, 2009, 10:40:19 PM »
That is awsome news.... Please continue the good work.
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Regards.
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Offline Manal

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Re: i take the first step
« Reply #8 on: February 15, 2009, 11:58:14 PM »
Congratulations Panos

manal
 :congrats :congrats :congrats :congrats
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Offline Zaini

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Re: i take the first step
« Reply #9 on: February 16, 2009, 03:08:01 AM »
Panos,

Thats the great news indeed  :thumbs :hi5boys Thats how every thal should be compliant with the chelation.You are an inspiration :) .

Zaini.
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^*^Xaini^*^
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Offline nice friend

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Re: i take the first step
« Reply #10 on: February 16, 2009, 04:59:53 AM »
Hi Panos ,
I m sorry to hear that you got diabetic ,  but its good to hear that never thought to give up and you raised up ur self and strongly determined to fight not to give-up .... keep this spirit alive in your self and be strong always, as you are now .... yeah ,as dore mentioned, i m having diabetes and managing it ( trying ) with insulin .... variation and fluctuation of BSLs in diabetes is a normal thing for thals and non-thals, but its dificult to controle with thalassemia , as Hep-C also play's its role in ups and down of BSL ..... but with time its settle's up and you got to knowing the how many units/dose to take on wat level of BSL .... sooo feel easy and never b afraid to it ... as your S.Fe is decreasing you will see more changes and your diabetes will bcome more easy to handle .. you will see the noticeable decrease in the need of inuslin when your S.Fe will decrease more ... here is a thread that i started a couple of months ago, when my S.Fe was decreasing , its about the change in the "decrease of S.Fe and need of insulin" .... i hope it will help you understanding alot ...
here is the link : http://www.thalassemiapatientsandfriends.com/index.php?topic=1870.0;highlight=diab
( i m Diabetic since april 2006 ) , i m always heere to help, soo please feel free to ask if you want to know about anything ....

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Lyanne

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Re: i take the first step
« Reply #11 on: February 16, 2009, 06:34:03 AM »


   Wow ! Amazing!  :congrats :hi5boys

I hope I really could try Ferriprox myself. Been dying to try it for months now but no doctor would prescribe it yet, since no medical representatives would introduce them to the pills. Although they have it launched it on our local group already, still they have very small knowledge about the Ferriprox.  :dunno  ??  :wah
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LYANNE :yahoo
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Offline Sharmin

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Re: i take the first step
« Reply #12 on: February 16, 2009, 06:44:27 AM »
Baal,

That is great progress!  It shows what committment to chelation can do in a short time.  I think that you can further slash your iron levels in no time. 

Best of luck,

Sharmin
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Sharmin
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Offline jade

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Re: i take the first step
« Reply #13 on: February 16, 2009, 12:43:27 PM »
Panos,

This is wonderful news indeed.  Keep it up.

Take care
Jade
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Offline baal

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Re: i take the first step
« Reply #14 on: February 25, 2009, 06:19:19 PM »
newsflash
 
today i got transfusions (2 units)
and of cause some results:
leuco 13.00
hb       9.2
hämatokrit 28.0
thrombos 658.000
crp      0.33
natrium 141
kalium    4.01
calcium 2.30
chlorid   100
kreatinin i.s. 0.62
glucose 149
billirubin 1.4
GOT  65
alk phosp. 113
LDH i.s. 178
ferritin  3275

F E R R I T I N  3275  isn it crasy......
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