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i take the first step

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Offline baal

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Re: i take the first step
« Reply #135 on: May 04, 2010, 06:57:11 PM »
today brandnew ferritin-count....

down and down....

     ......... 745 ......      
 
                           panos
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Offline Sharmin

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Re: i take the first step
« Reply #136 on: May 04, 2010, 07:00:13 PM »
Panos,

That is wonderful!  I am so glad for you!!  Your hard work is paying off:)

Sharmin
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Sharmin
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Offline Andy Battaglia

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Re: i take the first step
« Reply #137 on: May 04, 2010, 07:07:15 PM »
 :thumbsup
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Andy

All we are saying is give thals a chance.
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Offline baal

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Re: i take the first step
« Reply #138 on: May 04, 2010, 07:31:29 PM »
tx u both

tomorrow i get 2 units of blood

after more than 3 weeks.....

i am feeling very comfortable at moment...

thank u all for give me an helping hand....

if i could... i would hug u all...... :hugfriend
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Offline Lena

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Re: i take the first step
« Reply #139 on: May 05, 2010, 05:04:30 AM »


Bravo Pano!

This is great!!!  :cheer

(mine, after one month of ferriprox alone, has gone up to 232!
 that shows us the value of combination therapy, which I have already returned to--ferriprox along with desferal, as I do not want to go back to exjade.Today I am due for my MRI, we'll see.)


 Lena.
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Offline baal

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Re: i take the first step
« Reply #140 on: May 05, 2010, 06:48:20 AM »
good luck for your MRT lena

i have splitt my exjade dose in 2 parts...

an i take it wiht meals sometimes.....
 
                                    panos
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Offline Lena

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Re: i take the first step
« Reply #141 on: May 05, 2010, 03:34:02 PM »
Thank you, Pano.

I just got back from my MRI and the first unofficial results are these:
T2* heart and T2* liver is somewhere around 32....
It's o.k I guess.

Lena.
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Offline Dori

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Re: i take the first step
« Reply #142 on: May 05, 2010, 06:52:50 PM »
Lena, I do not understand this values. Oh friends, how I wish I could let them do a mri. It is the old song, we do not have this in the Netherlands. We can only get the iron in picture by blood tests.
Congratulations Panos!!!!!!!! I am glad I read it because this morning I have decided to increase my dose of Exjade from 1000 to 1500 but split the dose up in two. So that is what i am going to prepare now.
Everyone tells me to be content with having a stable ferritin at 600. It is. But I want to have it more low. Can you blame me for that wish?
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Offline Andy Battaglia

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Re: i take the first step
« Reply #143 on: May 05, 2010, 10:35:48 PM »
Lena,

If your heart T2* score is over 30, it is quite excellent and considered absolutely normal. Keep in mind that women generally score a few points lower on the T2* than men.
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Andy

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Offline Lena

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Re: i take the first step
« Reply #144 on: May 06, 2010, 04:15:11 AM »

Thank you, Andy.

I am aware this is normal count, the general population count. That is what the technician  who did the unofficial estimates for me told me. Now the maintenance dosage is to be set, but I guess the ferriprox-desferal combination therapy will go on and I believe this to be right. The only thing I am sceptical about now  is the toxicity of the drugs, as heart and liver are free from iron.

Lena.
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Offline baal

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Re: i take the first step
« Reply #145 on: July 10, 2010, 01:15:57 PM »
hi friends

time to share same good news with u all.....

i am feel very fine and my ferritin stays stabil in the 6 hundred ranges....

638 ...672.... and my last was 619......

since a few days i stopped the ferriprox and take only exjade....

the wether here is at moment very hot,and if it turns i try to make some

IV-desferal too....

and before i forget...i start to take another strong antioxidant too....

it is  very expensiv and the insurence didn pay for it....

but i here from DBA-anämias that it helps alot.....

maybe Andi nows somethink about it....


the medicin called LEUCIN....panos
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Offline Andy Battaglia

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Re: i take the first step
« Reply #146 on: July 10, 2010, 07:25:11 PM »
Panos,

Leucine is an essential amino acid, which means the body cannot make it. You can see a list of foods high in leucine at
http://www.dietaryfiberfood.com/leucine-rich.php

Leucine is necessary for muscle growth and replacement and I can see a need in thals as they get older.

Panos, leucine is a very cheap supplement when purchased from supplement companies or health food stores. Of course, when it is supplied by a pharmacy using a doctor's prescription, the price is much higher. I do not know the status of the supplement in Europe because Codex is doing everything possible to prevent people from acquiring the supplements needed for good health and Codex has much influence in Europe. Codex is nothing more than a tool of the pharmaceutical industry, which has no interest in health. They make their money from illness and do not want a healthy population and are trying to prevent people from having access to nutrients, as in Canada where L-carnitine can only be purchased with a prescription and at a high price. Try to find leucine from a health food store or supplement company. It will be much cheaper than what you are currently paying.
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Andy

All we are saying is give thals a chance.
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Offline Dori

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Re: i take the first step
« Reply #147 on: July 23, 2010, 07:18:28 AM »
Hello,

My friend in Toronto heard from her doctor that from now one she should only take Exjade after her meal. From someone else i heard another new thing, but I cannot remember it anymore. Has anyone heard about this?
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Offline Zaini

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Re: i take the first step
« Reply #148 on: July 23, 2010, 04:45:00 PM »
Quote from: Dori on July 23, 2010, 07:18:28 AM
Hello,

My friend in Toronto heard from her doctor that from now one she should only take Exjade after her meal. From someone else i heard another new thing, but I cannot remember it anymore. Has anyone heard about this?

I haven't heard any such thing yet,but it be helpful for sure.

Zaini.
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^*^Xaini^*^
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Offline baal

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Re: i take the first step
« Reply #149 on: December 16, 2010, 02:36:39 AM »
hi friends

let me share some statistik about
my ferritin-levels.
                                panos
« Last Edit: December 16, 2010, 07:57:27 PM by baal »
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