i take the first step

  • 176 Replies
  • 133840 Views
*

Offline Zaini

  • *****
  • 3448
  • Gender: Female
  • Life is too short to be perfect.
Re: i take the first step
« Reply #165 on: March 31, 2011, 03:19:08 AM »
Oh Panos thats really high,pardon my ignorance,but aren't there any meds or injections you can take to lower it?

Zaini.
^*^Xaini^*^

Re: i take the first step
« Reply #166 on: March 31, 2011, 11:26:43 AM »
hi panos.
i am so sorry dear. i hope u r fine now. take care.
shaziya

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: i take the first step
« Reply #167 on: March 31, 2011, 06:46:27 PM »
Panos,

Do you know if any mistake was made with the blood this time that led to the TRALI? Was the matching correct? And, is there any possibility that a more thorough matching process can be used to avoid future reactions?
Andy

All we are saying is give thals a chance.

*

Offline Dori

  • *****
  • 1443
Re: i take the first step
« Reply #168 on: April 18, 2011, 09:14:02 PM »
Panos, I am so sorry to hear. All the shivering (is from having it cold). It sounds a bit similar to me. However, I am very sorry to hear. I hope it was just once and your blood sugar will act very normal very soon. Stay strong and keep us up to date!
PS I restarted Exjade. It's a very annoying process and I fight to myself to not take regular doses immediately.If I set a targer for myself. By September I want to have bring it down from 1400 to 500.

*

Offline baal

  • ***
  • 139
  • Gender: Male
  • to be or not to be
Re: i take the first step
« Reply #169 on: July 14, 2011, 03:34:31 PM »
hi all

today i got news from the ferritin-battlefield.

it seems that more and more i kill the enemy....

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: i take the first step
« Reply #170 on: July 14, 2011, 04:46:02 PM »
Excellent! I am very pleased to see this continued success.  :biggrin
Andy

All we are saying is give thals a chance.

*

Offline Manal

  • *****
  • 3100
  • Gender: Female
  • mother of thal intermedia child
Re: i take the first step
« Reply #171 on: July 14, 2011, 05:35:19 PM »
Congratulations Panos, so happy for you. You are doing a great job :wink
Manal

*

Offline Lena

  • *****
  • 581
  • Gender: Female
Re: i take the first step
« Reply #172 on: July 15, 2011, 02:51:12 PM »
Bravo, Pano! You certainly did well. Do you still use all three chelators?

Lena

*

Offline Dori

  • *****
  • 1443
Re: i take the first step
« Reply #173 on: July 16, 2011, 08:36:27 AM »
Congratulations Panos! :-D

*

Offline Dharmesh

  • *****
  • 610
  • Gender: Male
Re: i take the first step
« Reply #174 on: August 04, 2012, 11:02:04 AM »
Hi Panos ,
I m sorry to hear that you got diabetic ,  but its good to hear that never thought to give up and you raised up ur self and strongly determined to fight not to give-up .... keep this spirit alive in your self and be strong always, as you are now .... yeah ,as dore mentioned, i m having diabetes and managing it ( trying ) with insulin .... variation and fluctuation of BSLs in diabetes is a normal thing for thals and non-thals, but its dificult to controle with thalassemia , as Hep-C also play's its role in ups and down of BSL ..... but with time its settle's up and you got to knowing the how many units/dose to take on wat level of BSL .... sooo feel easy and never b afraid to it ... as your S.Fe is decreasing you will see more changes and your diabetes will bcome more easy to handle .. you will see the noticeable decrease in the need of inuslin when your S.Fe will decrease more ... here is a thread that i started a couple of months ago, when my S.Fe was decreasing , its about the change in the "decrease of S.Fe and need of insulin" .... i hope it will help you understanding alot ...
here is the link : http://www.thalassemiapatientsandfriends.com/index.php?topic=1870.0;highlight=diab
( i m Diabetic since april 2006 ) , i m always heere to help, soo please feel free to ask if you want to know about anything ....

Best Regards
Take Care
Umair
I also got diabetes in end of March 2006. And really want to see S.Ferritin starts decreasing. Umair and Panos both of you are inspiring, truly :thumbsup
Start listening your body, it always gives signs

*

Offline Pratik

  • Thal Major.
  • *****
  • 826
  • Gender: Male
Re: i take the first step
« Reply #175 on: August 12, 2012, 05:30:20 AM »
Hey Andy,

What does L1 consists of? I heard from one of your post in this thread that it also protects heart well and helps T2 function, so I am very interested in it.
Every child is special.

*

Offline Andy Battaglia

  • *****
  • 8793
  • Gender: Male
  • Will thal rule you or will you rule thal?
Re: i take the first step
« Reply #176 on: August 12, 2012, 03:52:35 PM »
L1 is deferiprone, kelfer or Ferriprox.
Andy

All we are saying is give thals a chance.

 

SMF spam blocked by CleanTalk