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i take the first step

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Offline Zaini

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Re: i take the first step
« Reply #30 on: March 29, 2009, 05:35:25 PM »
Quote
This has been a true group effort and everyone who has taken part in advancing our understanding of what will help the health of thals deserves a big thanks and a round of applause.       

You too Andy  :yes

Panos,

I am really happy for you,the way you have fought to stay on your chelation is an inspiration for us all,don't worry about the minor ups and downs,once you start IV desferal once again,you'll reach your goal. :goodluck

Zaini.
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Offline Sharmin

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Re: i take the first step
« Reply #31 on: March 29, 2009, 06:27:55 PM »
Ball,

How often are you transfusing now?  How much blood are you receiving at each transfusion?
IV desferal is very effective.  We have been on combination therapy - my son's iron levels dropped from 2880 to 1545 within 6 months - so combination therapy may work for you (under a doctor's supervision of course).

Best of luck

Sharmin
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Sharmin
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Offline Manal

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Re: i take the first step
« Reply #32 on: March 29, 2009, 10:30:49 PM »
Panos

I am really so happy for you and soon your ferritin will be under the 1000

One more thing that you should consider is not to take IP6 and colostrum at the same time. Colostrum has protein and when it is taken with IP6, it combines with it resulting in ineffectiveness of the IP6.

So IP6 should be taken either alone or with no proteins at all

Take care

manal
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Offline baal

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Re: i take the first step
« Reply #33 on: April 01, 2009, 02:31:42 AM »
@sharmin
i get tranx every 12-14 days,
the units were washed,leukofree and radiated.....
but we dont weight them....

@ manal
thx for the tip...now i take the inositol at first for it own...

and now the news
after the first week again with combi....
and after transfusion.....
my fe is 3125 and the hb is 11.6
i am feeling really good.....
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Offline Andy Battaglia

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Re: i take the first step
« Reply #34 on: April 01, 2009, 02:46:26 AM »
 :yahoo
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Andy

All we are saying is give thals a chance.
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Offline Sharmin

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Re: i take the first step
« Reply #35 on: April 01, 2009, 02:55:18 AM »
Baal,

That is great!!

Sharmin
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Sharmin
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Offline Zaini

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Re: i take the first step
« Reply #36 on: April 01, 2009, 03:07:27 AM »
Panos,

All our prayers are with you,i hope you reach 1000 very soon  :goodluck.

Zaini.
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Offline nice friend

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Re: i take the first step
« Reply #37 on: April 01, 2009, 05:21:18 AM »
Hi Panos ,
That's Great Buddy ... Good progress, keep it up and you will se more amazing effects of it, you will feel good happy and energetic as your S.fe wil come down .. WAY TO GO buddy , i hope you will achieve your target sooner than me ... i hope your S.FE will come below 100 verry soon ...  i  m realy very happy for you .... How is Your Diabetes buddy ??... please keep an eye on that too ..
keep a good record of BSLs ( Blood Sugar Level ).... its realy nice to see that you are making progress towards good and healthy life , MAY GOD BLESS YOU WITH ALL THAT YOU NEED AND WITH ALL THAT IS GOOD IN YOUR FAVOUR .... Always Praying for You and all the other thals who are fighting hard... for those who are thinking to give up , MAy God bless  them with hope ofe good healthy life and strength to fight and come back in life ....

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Dori

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Re: i take the first step
« Reply #38 on: April 01, 2009, 10:02:11 AM »
Quote from: baal on April 01, 2009, 02:31:42 AM
@sharmin
i get tranx every 12-14 days,
the units were washed,leukofree and radiated.....
but we dont weight them....

@ manal
thx for the tip...now i take the inositol at first for it own...

and now the news
after the first week again with combi....
and after transfusion.....
my fe is 3125 and the hb is 11.6
i am feeling really good.....

We dont weight them either. I never heard about this in Europe, to be honest. You just get that whole bag. I never had a half bag or something like that. The mump knows most of the time how much you have been given. Once there was 330 ml in the bag, such a strange huge amount.

Anyway, good luck with the trip to the 1000. I'll join you!

 :thumbs
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Offline Canadian_Family

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Re: i take the first step
« Reply #39 on: April 01, 2009, 03:56:33 PM »
Congratulation Baal. Please keep up the good work.
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Regards.
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Offline Manal

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Re: i take the first step
« Reply #40 on: April 02, 2009, 01:09:23 AM »
Congratulations my friend , keep up the good work

manal
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Offline baal

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Re: i take the first step
« Reply #41 on: April 08, 2009, 04:53:58 AM »
hi all
since a few days i have to stop chelation again
cause i get a flu...
with nose..eyes running and pain by breathing...
fewer of cause too....
i take antibiotics for a week....
today i go for transx....hb is at 10.2
lets see wats happen....
                                panos
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Offline Zaini

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Re: i take the first step
« Reply #42 on: April 08, 2009, 09:20:05 AM »
Panos,

Did you check your WBC count,since you are on Ferriprox its necessary to keep monitoring WBC count and specially when you get flu like symptoms cause Ferriprox can cause Neutropenia.

Zaini.
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Offline nice friend

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Re: i take the first step
« Reply #43 on: April 08, 2009, 10:03:49 AM »
Quote
Panos,
Did you check your WBC count,since you are on Ferriprox its necessary to keep monitoring WBC count and specially when you get flu like symptoms cause Ferriprox can cause Neutropenia.
Zaini.
Hi Panoz ,
Zaini iis right please do check your WBC , and take car buddy , Best of luck :goodluck

Best Regards
Take Care
Umair
Logged
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Sharmin

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Re: i take the first step
« Reply #44 on: April 08, 2009, 04:57:51 PM »
Baal,

I hope that you feel better soon.  Good luck with your tx, and I hope that you are able to start chelating again soon.  While you are sick, keep up with the IP6 and other antioxidants so that somethind is binding with the free iron in your body.

Sharmin
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Sharmin
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