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i take the first step

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Offline stroberon

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Re: i take the first step
« Reply #45 on: April 10, 2009, 10:51:05 AM »
 :huh
DEAR FRIEND
I CANNOT SAY CONGRATULATIONS BECAUSE YOU SEEM TO HAVE DISCOVER FERRIPROX AND ITS LIFE SAVING EFFECTS 9 YEARS AFTER ITS MARKET INTRODUCTION!!!!
HOWEVER KEEP UP AND MAKE YOUR TARGET TO GET YOUR FERRITINE UNDER 100 LIKE HUNDREDS OF PATIENTS IN GREECE!!!
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Offline baal

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Re: i take the first step
« Reply #46 on: April 12, 2009, 03:43:31 AM »
dear friend and landsmen

its the work of this wonderfull thal-group we have here,
that makes me try to taste the combination-therapie
with ferriprox and desferal.
the drug ferriprox isnt new to me....
i firsttime take it under the name L1 and it comes from switzerland
and has no accreditation.....
this was over 10 years ago...
unfortunatly after a while i become pain in my bones and had to stop them...
5 years later i try again...
the result was vomiting and pain in my feet...
this is my 3th try....
what is different iss that i start very very slow(with low low dose)
and grow up....
this time it seems to work.....
however i will thank u for ur care and wish to require ur thal-story
                                                                              panos
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Offline Zaini

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Re: i take the first step
« Reply #47 on: April 12, 2009, 08:58:02 AM »
Good luck Panos,with every thing  :goodluck we all are so happy for you.

Zaini.
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^*^Xaini^*^
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Offline nice friend

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Re: i take the first step
« Reply #48 on: April 12, 2009, 11:43:45 AM »

Good Luck Panoz

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Manal

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Re: i take the first step
« Reply #49 on: April 12, 2009, 07:19:44 PM »
Soon we will congratulate you of reaching a ferritin of less than 100, best of luck

manal
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Offline erum minhas

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Re: i take the first step
« Reply #50 on: April 13, 2009, 04:01:33 AM »
dear panos

i just want to tell you that go for ultra sound of your both knee joints , because the arthritis and joint effusion caused by  ferriprox is common .your report reflects low serum calcium ,so please repeat it too

erum minhas
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Offline baal

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Re: i take the first step
« Reply #51 on: May 08, 2009, 11:46:46 PM »
hi pals
@erum minas,thx for ur advice....
my calcium-level....as the magnesium and the kalium
are all in the norm-levels......
i do a lot to hold em ......i take IDEOS,
l-carnithin plus magnesium and some more....

and know i will tell u from my last fe-count....
its 2800 and be the loest i ever had......
i make some mind and come to the resolution
to change my therapy.....

i hold the every second week IV desferal for a week on
(6 vials per 24hours)
and take now 4 times ferriprox (5-5-5-5)
6 in the mornig 12 midday
6 in the evening and last at midnight....
i recodnisted that so everytime i have
red urine .....
with 3 times there are few hours without color in the urine

                                                  panos
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Offline Zaini

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Re: i take the first step
« Reply #52 on: May 09, 2009, 04:59:32 AM »
Panos,

Thats such a great news,i am really happy for you, :yahoo :yahoo keep up the good work and soon your ferritin will be below 1000  :hugfriend.

Zaini.
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^*^Xaini^*^
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Offline Sharmin

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Re: i take the first step
« Reply #53 on: May 09, 2009, 05:36:56 AM »
What great news Panos, within six months you can get your iron levels below 2000 - with your dedication I know that you will do it!
We are all here to support you and celebrate with you when it happens!

Sharmin

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Sharmin
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Offline nice friend

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Re: i take the first step
« Reply #54 on: May 13, 2009, 09:29:03 AM »
WowwwWWwww , :yahoo Panos ,
 :congrats You're Faster Than me buddy , i m really glad for you . .. keep it up buddy :thumbsup . i hope to hear soon that your Fe level is within he normal ranges .. really soon ... carry On buddy ...

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline baal

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Re: i take the first step
« Reply #55 on: May 13, 2009, 01:41:21 PM »
@ ALL

I am happy to inform you that today I received new results ferritin now down to 2380..  :biggrin

However, I would like to check, as my friend is going to a different sector in the hospital and the doctor there told him not to take L1 4 times per day (every 6 hours) as the body can only excrete a certain amount of ferritin. Do you have an idea ?

Thanks for your views.

Bye, Panos
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Offline nice friend

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  • If I Can, Why Not You??... If I Can U TOO !!!...
Re: i take the first step
« Reply #56 on: May 13, 2009, 01:53:47 PM »
Wow Panos , going too fast buddy , good to hear your latest Fe results :congrats ... sorry buddy i have no idea abt 4 times a day method of L1 ...

Best Regards
Umair
Logged
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Lena

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Re: i take the first step
« Reply #57 on: May 13, 2009, 05:02:25 PM »
Pano,

It's the first time I have ever heard something like this!!! Excrete only a certain amount of fe? No, I think he is wrong about it.
<xtes girisa apo Thesalloniki kai otan paro ta apotelesmata tis mri tha se paro na ta poume. filia.>

Lena.
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Offline Dori

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Re: i take the first step
« Reply #58 on: May 17, 2009, 06:29:05 PM »
Quote from: erum minhas on April 13, 2009, 04:01:33 AM
dear panos

i just want to tell you that go for ultra sound of your both knee joints , because the arthritis and joint effusion caused by  ferriprox is common .your report reflects low serum calcium ,so please repeat it too

erum minhas

I am not happy to hear - nor did I ever hear of that before. You know that arthritis is (almost) problem #1 by iron overload?
I am really afraid to be diagnosed with it (I know it's wrong grammar)

Dore
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Offline baal

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Re: i take the first step
« Reply #59 on: May 29, 2009, 10:13:33 AM »
back again

brandnew results (yesterday)

serumferritin...............1994 ng/ml

                           panos
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