One month after starting hydrea...

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Offline Manal

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Re: One month after starting hydrea...
« Reply #75 on: June 01, 2009, 10:27:05 PM »
Puja

If IP6 is combined with protein, IP6 loses its efficiency or function. That is why itshould be given on empty stomache. May be you can give it to him one hour before he wakes up, he can swallow it with a glass of water and continue sleeping

manal

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Offline Zaini

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Re: One month after starting hydrea...
« Reply #76 on: June 18, 2009, 11:59:43 AM »
Manal, :hugfriend

I hope you are fine , haven't seen you on the forum for a while,hope everything is ok.

Zaini.
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Offline Sharmin

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Re: One month after starting hydrea...
« Reply #77 on: June 18, 2009, 02:40:22 PM »
Hi Manal,

I was thinking the same thing - missing you here,

Sharmin
Sharmin

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Offline Manal

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Re: One month after starting hydrea...
« Reply #78 on: June 19, 2009, 01:00:56 AM »
Thank you so much Zaini and Sharmin for your concern and wishes, but actually i am suffering from a really awful pustule that is totally closing my right eye and causing a lot of pain and swelling. The doctor gave me an antibiotic (Augmantein 1 gram twice a day whch is very harsh on my stomach and can not tolerate it in addition to continous dizziness),also an anti bacterial cream and drops too. You ought to see me i look like a boxer who has been punched in the eye :rotfl :rotfl

He advised me to avoid TV and computer screens as possible to avoid tiring the other eye. That is why i wasn't able to log in a lot.

I really miss you guys so much and i am sure i have a lot of posts and news to catch.

Lots of love to everyone :hugfriend

manal

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Offline Andy Battaglia

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Re: One month after starting hydrea...
« Reply #79 on: June 19, 2009, 02:16:32 AM »
Manal, 

Can you try a different antibiotic?

 :getwell
Andy

All we are saying is give thals a chance.

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Offline Manal

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Re: One month after starting hydrea...
« Reply #80 on: June 19, 2009, 02:35:20 AM »
Thank you Andy so much. Actually i asked the doctor to change it but Augmentin is the only one that is available in (2 grams daily).Looks like a tough bacteria.

He suggested taking Augmentin shots instead of the tablets but i am a big coward so i have to endure the nausia and the stomache ache. I try to take it in the middle of the meal

manal

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Offline Sharmin

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Re: One month after starting hydrea...
« Reply #81 on: June 19, 2009, 02:40:04 AM »
Manal,

I hope that your eye gets better very soon - that must be so tough not being able to open your eye.  Very nice to hear from you my friend  :hugfriend

Sharmin
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Offline Manal

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Re: One month after starting hydrea...
« Reply #82 on: June 19, 2009, 02:42:50 AM »
Thanks dear, you are right it is very annoying especially it is the first time having such a thing

manal

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Offline Zaini

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Re: One month after starting hydrea...
« Reply #83 on: June 19, 2009, 04:32:25 AM »
Awww Manal,

I hope you feel better soon  :hugfriend .

Zaini.
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Offline AL

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Re: One month after starting hydrea...
« Reply #84 on: June 19, 2009, 06:43:51 AM »

GET WELL SOON MANAL!

You're in my prayers too!

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Offline nice friend

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Re: One month after starting hydrea...
« Reply #85 on: June 19, 2009, 01:57:49 PM »
 :getwell :getwell :getwell :getwell :getwell :getwell :getwell
 :getwell GET WELL SOON MANAL SIS , :getwell
 :getwell :getwell :getwell :getwell :getwell :getwell :getwell


Best Regards
Umair
Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.

===========
Umair

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Offline Manal

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Re: One month after starting hydrea...
« Reply #86 on: June 19, 2009, 02:14:45 PM »
Thank you Zaini, AL and Umair so much for your wishes. :hugfriend

 It is better today and started opening my eye but the pain is still there, hope it will recover soon

Hope you are all great :hugfriend

manal

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Offline maha

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Re: One month after starting hydrea...
« Reply #87 on: June 20, 2009, 03:57:29 AM »
Hi Manal
Glad its getting better. Are you taking any B- complex? If not do start it. 2g of antibiotics can really give very bad and painful mouth ulcers.

get well soon
maha

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Offline Manal

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Re: One month after starting hydrea...
« Reply #88 on: June 20, 2009, 12:39:28 PM »
Thanks Maha :hugfriend, I am on Centrum only but definetly i will look for the B- complex, thanks dear

manal

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Offline Manal

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Re: One month after starting hydrea...
« Reply #89 on: June 21, 2009, 01:07:15 AM »
Dear friends,

To remind you of my son's last update, it was

Quote
Unfortuatly, i did the CBC today and it was horribal, the Hb dropped from 7.3 to 6.1 and i usually have the RBCs count around 3.5 Today it was the first to see it 2.8

The only thing that was risen is the MCV, it increased from 60 to 66

My doctor said not to worry cause the whole month he got virl infection, fever for 5 days and also bronchitis. Now he is fine only nasal back charge, but thanks God he is still active and the spleen and the liver are moderate. Liver anf Kidney functions are all normal


Today, i did the CBC after one month :yahoo :yahoo

HB is 7.8 ( I am soooo happy, we never reached this before :cheer :cheer :veil :veil)
MCV 68.2
Red cell count 3.48
Haematocrit 23.8%

Only the Leucocytic count has dropped from 7000 to 5,200 and this is really what worries me cause i will be forced to stop hydrea if it reached 3500 (i pray not :pray :pray)

Tomorrow i will receive the liver and kidney functions in addition to the retix count and also will vist the hematologist

Questions:
1- I am wondering is it possible to increase from 6 to 7.8 in one month???
2- Till now i can not set a constant trend for the effect hydrea on HB increase??? But i hope it will offer us a little bit more increase :pray :pray :pray
3- I am wondering, does lowering the dose of the hydrea this month had any significance in this increase or there is no relation???

I will keep updating

manal


 

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