Hi all im Johnny from Melbourme Victoria

Hi Everyone,
                Let me start by saying that this is a FAB site.
 Up untill October 2004 I hadent even heard of the word thalassemia let alone the condition or the trauma that you guys & gals have been going through your whole lives. I am deeply ashamed of my ignorence. On the 1st. of October 2004 I met a wonderfull inteligent extremely attractive  woman by the name of Effie. Shortly after I called her one day and heard strange noises in the background (hospital type noise ) upon confronting her she reluctantly told me that she was a thal major. I simply said so big deal. I didnt realise what a big deal it actualy was for her , I didnt realise the stigma that a lot of you guys/gals feel is asociated with the condition. I truely am sorry that the world that we live in has made you feel this way. I for one have since made a consiouce effort with the approval of Effie to educate the people around me & those that I come across in day to day life of the condition & also educate myself on treatments & methods used in variouse parts of the world to see if We can at least make life more confortable ( less transfusions ) for Effie. She is a wonderfull woman as are a lot of other patients that Ive met since meeting Effie many of whom have become close friends.

Exjade seems to be a great product at the moment ( better than injection ) anyway unfortunately its not available in Aus as yet but we are awaiting aproval ( hoping sooner rather than later)

Anyway again thankyou all for the information that ive seen & read so far.

P.S. sorry about the spelling 

Hello Johnny

Welcome to the group and good to see you finally here also. Incase your wondering who I am its Maria from mtu.

I am sure you will enjoy this forum and  your doing a great job in supporting Effie and she is very lucky to have such a wonderful partner like you at her side.

Enjoy the forum and see you soon at MTU.  Regards Miaki

Welcome to the group, Johnny!  Nice to have you here.  I'm sure you'll feel right at home.   

Hi Johnny,

Welcome to the group. I am sure you will feel right at home here. And, you are doing a wonderful thing by raising awareness of thal and being a great support for your partner .... more power to you.

Poirot

Hi Johnny

Welcome to the group.. we really need people like you here on the site, who have a great heart to ACCEPT , love and  appreciate a person for what she or he is and not get prejudiced because of any health problem.
It is not their fault that they have a health condition for which we just have a supportive treatment. But I am sure they have a whole lot to offer.. they are intelligent, smart and hard working . They are achievers in their own way. Life has not been very kind to them and they have learnt LIFE the hard way.

I am a mother of a Thal , who is almost 30 years old and doing fine. She too has someone beside her, who loves her for what she is and is a great friend and support to her.

All the very best to both of you ..

shikha mitra

Where's the rest of the post where Johnny intorduces himself?

The rest of what post, AD?  If anything was edited, you'd see that it was edited at the bottom of his post.